Host a Local Walk for LGS

Simple Walks. Real Connection. Meaningful Impact.

The Walk for LGS Research is a global awareness and fundraising initiative led by the LGS Foundation. Each April, families, volunteers, workplaces, and community groups host local, community-led walks to raise awareness for Lennox-Gastaut Syndrome (LGS) and support critical research.

Community-Led Walks are designed to be:

  • Simple to host
  • Meaningful for families

  • Focused on connection, visibility, and impact

You don’t need event experience.
You don’t need a large crowd.
You just need a willingness to bring people together.

A Community-Led Walk is a welcoming, local gathering held during April that brings people together to raise awareness for LGS, support research, and strengthen local connections. Participants walk, wheel, stroll, or roll together for a short time, then spend additional time connecting, sharing stories, and building community.

Walks can be small or large, casual or lightly planned, and may be public, private, or workplace-based. There are no distance requirements or formal programs—success is measured by participation, connection, and the shared impact created together.

Hosting a Walk creates a meaningful impact, including:

  • Connecting families affected by LGS in your area
  • Raising local awareness about a rare and often misunderstood condition
  • Giving friends, coworkers, and neighbors a way to show support
  • Creating visible moments of inclusion, understanding, and hope

  • Supporting research that leads to better treatments and outcomes

Every Walk—no matter the size—helps families feel seen and supported.

Your Walk Creates Real Impact

Hosting a Community-Led Walk helps raise local awareness, connect families, and fund critical LGS research. Every step sparks conversation, every gathering builds understanding, and every dollar raised moves us closer to better treatments and outcomes.

You don’t need a big crowd to make a difference—you just need to start.

👉 Start the Host Application

Bring the Walk to your community this April.

Hosting a Walk follows a clear, supported process:

Apply → Plan → Invite → Walk → Share Impact

  1. Apply with a proposed date, location, and estimated attendance
  2. Plan using guidance and tools provided by the LGS Foundation
  3. Invite your community using sample language and resources
  4. Host your Walk during April Walk Month

  5. Share photos and impact after your Walk

You focus on your community. We help guide the process.

Registration

  • $10 registration per participant
  • Free for individuals with LGS
  • Free for children aged 17 and younger 

Registration is managed through the LGS Foundation using a personalized registration link provided after approval.

Fundraising

Fundraising is separate from registration and is encouraged—but never required.

Hosts and participants may choose to:

  • Share a personal or team fundraising page

  • Invite others to donate if they’re able

Every dollar raised helps support LGS research.

Approved hosts receive clear guidance and practical tools designed to keep planning manageable and welcoming.

Guidance & Tools

  • A Host Planning Guide with step-by-step support
  • Registration tools (personalized event link)
  • Fundraising tools (optional fundraising pages and tips)
  • Sample social posts and invitation language

  • Ongoing support from the LGS Foundation team

Community-Led Walk Box

(Materials may include)

  • Walk Planning Guide
  • Social Toolkit 
  • #WalkForLGS Research Banner
  • #WalkForLGS Selfie Frame
  • “What Is LGS?” Informational Handouts 
  • LGS Awareness bracelets
  • “I Walk For” Handheld Signs 

Materials are designed for simple setup, strong visibility, and easy conversation-starting.

As a Lead Walk Host, you agree to:

  • Select a Walk date during April
  • Identify an accessible Walk location
  • Invite friends, family, community members, and coworkers
  • Create a welcoming, inclusive Walk experience
  • Share your Foundation-provided event link
  • Take and share photos from Walk Day
  • Complete a brief post-event follow-up

Your Walk can be simple—connection matters more than scale.

Some parks or locations may require a permit or small fee.

  • If a permit or agreement is required, it must be shared with the LGS Foundation before finalizing

  • Park or permit fees may be reimbursed up to $300 with prior approval and receipt submission

If you’re unsure, the Foundation team can help you navigate this step.

Take the First Steps

Hosting a Local Walk is about connection, visibility, and impact—not perfection.

Every step, every story, and every gathering moves us closer to better treatments for LGS.

👉 Start the Community-Led Walk Host Application

💼 For Workplaces & Corporate Teams

Corporate teams are invited to participate in the Walk for LGS Research through dedicated team-based opportunities designed to engage employees, raise awareness, and support LGS research together.

Corporate participants receive additional support and resources, including team fundraising tools, co-branded materials, and recognition opportunities.

Organizations interested in participating or hosting as a corporate team can learn more by contacting info@lgsfoundation.org.

Updated 01/16/26 (KK) 

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