International LGS Awareness Day™

Let’s Raise Awareness this November… together!

Faces of LGS: Real Stories, Real Research

Every person living with LGS has a story. Every family experiences LGS differently. This year, we’re putting those stories at the center of International LGS Awareness Day™ and connecting them to the research that can help change what life with LGS looks like.

International LGS Awareness Day™ on November 1 marks the beginning of a movement as families, advocates, healthcare professionals, researchers, organizations, and supporters unite throughout Epilepsy Awareness Month to raise awareness, advocate for change, share stories, accelerate research, and shine a light on Lennox-Gastaut Syndrome.

Every conversation, every story shared, every awareness activity, and every dollar raised helps move us closer to better treatments, stronger support, and breakthroughs for everyone affected by LGS.

GET INVOLVED

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Make LGS Visible. Make LGS Understood.

Why does this day exist? Lennox-Gastaut Syndrome is rare, severe, and still poorly understood outside the families who live it. Diagnosis can take years. Most people keep having seizures despite multiple medications. And the impact reaches well beyond seizures, into learning, communication, behavior, and every member of the family. We need people to know about it.

• More than one seizure type. Many people with LGS have several kinds of seizures, sometimes in a single day.
• Drug-resistant. Most keep having seizures despite trying multiple medications. The medications we have do not work well enough yet.
• More than seizures. LGS often affects development, communication, and behavior too.

Learn more: What is Lennox-Gastaut Syndrome? →

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2026 Key Awareness Dates

• Ongoing: Order your Awareness Apparel & Merch, and Trick-or-Treat Cards.
• October 1 – December 31: Peer-to-Peer Fundraising Challenge!
• November 1: International LGS Awareness Day™.
• November 1 to 7: Illuminate for LGS. Light up a landmark, home, or business in purple.
• November 16 to 17: Epilepsy Awareness Day at Disneyland!

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WAYS TO TAKE ACTION

Every effort counts! No matter how much time you have or where you live, you can make LGS visible in many ways.

Whether your impact reaches one person or thousands, every action helps build momentum.

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Faces of LGS: Caregiver Story Wall (Coming soon!)

Behind every statistic is a person. Behind every diagnosis is a family. And every experience with LGS is different.

These stories help us understand what living with LGS really looks like and the research questions that matter to the people living it.

Meet more of our families →

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Where the research is going

Why does this day exist? Lennox-Gastaut Syndrome is rare, severe, and still poorly understood outside the families who live it. Diagnosis can take years. Most people keep having seizures despite multiple medications. And the impact reaches well beyond seizures, into learning, communication, behavior, and every member of the family. We need people to know about it.

• Faster, right diagnosis to guide treatment now
• Treatments that change the disease
• Care for every stage of life

Every study starts with families who were willing to be counted. The LGS-CORE Study, part of our Learn From Every Patient Database, gathers information from families so researchers can see patterns no single clinic could spot alone.

LEARN ABOUT THE LGS-CORE STUDY

EXPLORE POWERING BREAHTHROUGHS

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Thank You to Our 2026 International LGS Awareness Day™ Partners

 

Interested in becoming a sponsor? Email us at info@LGSFoundation.org