New Treatment for Seizures in LGS
What is Clobazam Oral Film? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey….
New Treatment for Seizures in LGS
What is Fenfluramine? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey. Fenfluramine (the…
New Treatment for Seizures
What is Cenobamate? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey. Cenobamate (the…
New Treatment for Seizures
What is perampanel? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey. Perampanel (the…
The LGS Foundation is proud to be part of the Chan Zuckerberg Initiative (CZI) Rare As One Network – a group of 50 patient-led organizations that are accelerating research and driving progress in the fight against rare diseases. The LGS…
Every mother will say their child is special. But my sweet Josie truly is. She is the definition of a warrior.
My name is Zoe Rabun and I am the mother to our beautiful daughter, Josie Rabun (3). We first noticed unusual behavior with Josie at the age of 9 months. She would wake up in her sleep and have these…
Eli was born in the summer of 2003 at 34 ½ weeks old. He spent 7 days in the NICU due to a ventricular septal wall defect. By 3 months of age, it was evident that he was not meeting…
A Sister's Special Bond
My sister, Robyn, and I are 4 1/2 years apart. We are like any other sisters…we share laughs, tears, and yes, we even argue! What sets us apart is our special bond. From the moment I saw my sister in…
Songs Inspired by her Brother Help Raise Awareness of LGS
On November 1, local artists and LGS community members joined the LGS Foundation in Santa Monica, California to help raise awareness and funds for Lennox-Gastaut Syndrome. Meet the Artist: Christina Apostolopulos Hi, my name is Christina and my younger brother…
Celebrating 100 Days of Seizure Freedom
Cash is the youngest of our three boys. He is the light of our lives and here to teach lessons to all of us. Cash started having seizures when he was 3 weeks old. These were easily controlled with medications….
