Forever Loved: Memory Wall & Celebration of Life Butterfly Release

We Remember

This page is dedicated to the most beautiful and resilient lives ever witnessed. Many lives have been touched and many gifts have been shared through the time that was spent together.

Our hope is that by visiting this page you leave with a special feeling of having had the opportunity to learn about all of the children and adults that shine on in this space and in our hearts. They truly made this world a better place and are missed every day.

In Memory Of . .

Include Your Loved One on Our Forever Loved Memory Wall

Remembering our loved ones and sharing who they are will ensure that they will live on in our hearts, thoughts, and memories. Honoring your loved one allows those who visit Forever Loved the opportunity to celebrate the life and impact they left with you and the world around them.

Include Your Loved One on Our Forever Loved Memory Wall


LGS Foundation Celebration of Life Butterfly Release

The annual Celebration of Life allows a special time dedicated to remembering and honoring the impact that each person has left in the world. The LGS Foundation will always honor the spirit of our loved ones whose lights continue to shine and light the way as we continue to strive for the Cures for LGS.

Releasing majestic butterflies speaks to the strength and beauty of the love we continue to share. Butterflies symbolize transformation, hope, and wishes that are carried to the heavens to be granted.

2022 Celebration of Life Butterfly Release


Gifts made In Loving Memory &
Personalized Bereavement Cards

Many families choose to honor the lives of their deceased loved ones by requesting that donations be given to the LGS Foundation in lieu of flowers. This is a wonderful way to celebrate the life of a loved one while giving an everlasting gift that works to find a cure for those living with LGS.

MAKE A GIFT in Loving Memory

If you would like to receive personalized bereavement cards for your loved one, please email info@lgsfoundation.org for more information. A sample card can be found below. Families sometimes like to share these at the memorial service to raise awareness of LGS.

Sample personalized bereavement card


Updated 02/09/2024