Forever Loved: Memory Wall & Celebration of Life Butterfly Release

We Remember

This page is dedicated to the most beautiful and resilient lives ever witnessed. Many lives have been touched and many gifts have been shared through the time that was spent together.

Our hope is that by visiting this page you leave with a special feeling of having had the opportunity to learn about all of the children and adults that shine on in this space and in our hearts. They truly made this world a better place and are missed every day.

In Memory Of . . .

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Add Your Loved One to Our Forever Loved Memory Wall

Remembering our loved ones and sharing who they are will ensure that they will live on in our hearts, thoughts, and memories. Honoring your loved one allows those who visit Forever Loved the opportunity to celebrate the life and impact they left with you and the world around them.

I would like to add my loved one to the memory wall

LGS Foundation Celebration of Life Butterfly Release

The annual Celebration of Life allows a special time dedicated to remembering and honoring the impact that each person has left in the world. The LGS Foundation will always honor the spirit of our loved ones whose lights continue to shine and light the way as we continue to strive for the Cures for LGS.

Releasing majestic butterflies speaks to the strength and beauty of the love we continue to share. Butterflies symbolize transformation, hope, and wishes that are carried to the heavens to be granted.


2022 Celebration of Life Butterfly Release

June 17th, 2022

The 2022 Annual Celebration of Life will be held on June 17th, 2022 at the LGS Foundation Family & Professional Conference in Grapevine, TX.

During our annual Celebration of Life ceremony, butterflies will be released in honor and memory of our beautiful children who have made an impact on the world and those closest to them.

A Memory Board will be in our Ballroom for the duration of the event in hopes that attendees will get to know the ones who made a huge impact on our lives. If you would like for your child to be honored and remembered please complete the form below.

I would like a Butterfly released to honor my loved one

2021 Celebration of Life

Updated April 10, 2022