Experienced LGS Providers — Across the Lifespan
Looking for a healthcare professional experienced in Lennox-Gastaut Syndrome (LGS)?
This directory features providers who have treated individuals with LGS and related epilepsies and have been recommended by families within the LGS community.
Finding the right doctor can feel overwhelming. This list was built from real family experiences to help guide your search and connect you with providers who understand the complexity of LGS.
Because LGS is complex and often treatment-resistant, specialized epilepsy care is especially important. We are working to help families find knowledgeable providers at every stage of life, including both pediatric and adult specialists, as more individuals with LGS transition into adulthood.
Start with the Right Specialist
The LGS Foundation strongly recommends care from an Epileptologist — a neurologist with advanced training in epilepsy.
LGS typically requires ongoing, specialized management, medication expertise, and coordinated care that is best supported within epilepsy-focused practices. An epileptologist can help guide treatment decisions, manage complex seizure patterns, and support long-term care planning.
Find Care Near You
Use the interactive map and directory below to search for providers by location.
Provider Map Key:
🔵 Blue markers indicate adult providers
We are actively expanding our directory and adding new adult provider listings as recommendations are received to better support lifelong care for individuals with LGS.
If you’re unable to find a provider nearby, these resources may help expand your search:
Recommend a Physician
Do you know a doctor who understands LGS?
Patient families play an important role in helping others find knowledgeable care. If you’ve had a positive experience with a provider who has treated LGS, we encourage you to share their name.
Adult provider recommendations are especially valuable as we continue expanding resources for individuals living with LGS into adulthood.
Disclaimer: Not all of the doctors and other professionals listed on this site have the same treatment approach. We urge you to ask specific questions regarding training and experience before seeking treatment. Your decision to select a particular health care provider and/or treatment option is yours alone, and the LGS Foundation bears no responsibility for the care provided by any professional listed on this site or for the outcome of any treatment option you may select.
Criteria: Professionals listed on this site have treated patients with LGS and/or related disorders and their patients’ families have recommended them. We will add all recommended providers to the list. If a recommendation is withdrawn or LGS receives complaints about a professional, LGS Foundation may remove them from the site. If you are a physician and want someone to add you to this list, please ask one of your patient families to recommend you.
Updated 02/11/26 (KK)