Individuals with Lennox-Gastaut Syndrome (LGS) have complex, lifelong neurological and medical needs that require specialized care. Many local healthcare providers may be unfamiliar with LGS or have limited experience managing its unique challenges. Visiting a Comprehensive Care Center provides patients and families access to expert care, helping to bridge the gap between specialized knowledge and local healthcare teams when complex issues arise.
If a center is not located near you, our Find a Doctor page can help connect you with medical professionals across the U.S. who have experience treating LGS.
Criteria for DEE & LGS Comprehensive Care Centers
To be designated as a Comprehensive Care Center, a facility must:
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Provide a multidisciplinary approach to treating Developmental and Epileptic Encephalopathies (DEEs), including LGS.
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Maintain a high concentration of expertise and resources dedicated to DEEs, including LGS.
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Demonstrate a strong knowledge base and familiarity with LGS and related conditions.
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Commit to advancing clinical knowledge through collaboration with the LGS Foundation and other experts.
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Participate in clinical trials and research on LGS, staying informed on emerging treatments and breakthroughs; Participate in LGS Foundation-sponsored events.
These centers play a crucial role in improving patient outcomes and advancing the understanding of LGS through specialized care and research.
Medical professionals interested in having their center designated as a DEE & LGS Comprehensive Care Center may click here to apply online.
DEE & LGS Comprehensive Care Centers
BOSTON CHILDREN’S HOSPITAL
300 Longwood Avenue
Boston, MA 02115
www.childrenshospital.org
Clinic Lead: Annapurna Poduri, MD, MPH
Director Epilepsy Genetics Program
To make an appointment: Contact Lisanna Paulino
(617) 919-8282
lisanna.paulino@childrens.harvard.edu
Services offered:
- Pediatric neurologist/epileptologist
- Genetic counselor
- Pediatrician
- Cardiologist
- Orthopedics
- Gastroenterologist
- Endocrinologist
- Pulmonologist
- Sleep specialist
- Metabolic specialist
- Developmental or neuro-psychologist
- Dietician
- Keto clinic
- Speech pathologist/therapist
- Occupational therapist
- Physical therapist
- Social work
THE CHILDREN’S HOSPITAL OF PHILADELPHIA
3401 Civic Center Boulevard
Philadelphia, PA 19104
www.chop.edu/centers-programs/epilepsy-neurogenetics-initiative-engin
Clinic Lead:
Eric Marsh, MD, PhD
Associate Professor of Neurology
Epilepsy Neurogenetics Initiative (ENGIN)
To make an appointment:
Contact Christina McGill
215-590-1719
ENGIN@email.chop.edu
Services offered:
- Pediatric neurologist/epileptologist
- Adult neurologist/epileptologist
- Genetic counselor
- Cardiologist
- Orthopedics
- Gastroenterologist
- Endocrinologist
- Pulmonologist
- Sleep specialist
- Metabolic specialist
- Developmental or neuro-psychologist
- Dietician
- Keto clinic
- Speech pathologist/therapist
- Occupational therapist
- Physical therapist
- Social work
CLEVELAND CLINIC
9500 Euclid Avenue
Cleveland, OH 44195
my.clevelandclinic.org/departments/neurological/depts/epilepsy#overview-tab
Clinic Lead:
Ajay Gupta, MD
Head, Pediatric Epilepsy
my.clevelandclinic.org/departments/neurological/depts/epilepsy/pediatric-doctors
To make an appointment:
Penelope Hoytt, Intake Coordinator
216-445-0601
epilepsynursepeds@ccf.org
Services offered:
- Pediatric neurologist/epileptologist
- Adult neurologist/epileptologist
- Genetic counselor
- Pediatrician
- Cardiologist
- Orthopedics
- Gastroenterologist
- Endocrinologist
- Pulmonologist
- Sleep specialist
- Metabolic specialist
- Developmental or neuro-psychologist
- Dietician
- Keto clinic
- Speech pathologist/therapist
- Occupational therapist
- Physical therapist
- Social work
- Caregiver support services (i.e., monthly support group)
- Other
CHILDREN’S HOSPITAL COLORADO
13123 E 16th Ave
Box 155
Aurora, CO 80045
www.childrenscolorado.org
Clinic Lead:
Kelly Knupp, MD
Associate Professor of Pediatrics and Neurology
Pediatric Neurology
To make an appointment:
Call 720-777-6895*
*Families should identify they have a child with Lennox-Gastaut Syndrome when they call for an appointment to ensure they are scheduled properly.
Services offered:
- Pediatric neurologist/epileptologist
- Genetic counselor
- Pediatrician
- Cardiologist
- Orthopedics
- Gastroenterologist
- Endocrinologist
- Pulmonologist
- Sleep specialist
- Metabolic specialist
- Developmental or neuro-psychologist
- Dietician
- Keto clinic
- Speech pathologist/therapist
- Occupational therapist
- Physical therapist
- Social work
COOK CHILDREN’S MEDICAL CENTER
Jane and John Justin Neurosciences Center
1500 Cooper St, 4th Floor
Ft Worth, TX 76104
cookchildrens.org/neurology
Clinic Lead:
M. Scott Perry, MD
Genetic Epilepsy Clinic
Medical Director, Neurology; Co-Director, Jane and John Justin Neurosciences Center
To make an appointment:
Contact Amy Davis, Epilepsy Program Coordinator
682-885-7259
682-885-2500
Services offered:
- Pediatric neurologist/epileptologist
- Adult neurologist/epileptologist
- Genetic counselor
- Pediatrician
- Cardiologist
- Orthopedics
- Gastroenterologist
- Endocrinologist
- Pulmonologist
- Sleep specialist
- Metabolic specialist
- Developmental or neuro-psychologist
- Dietician
- Keto clinic
- Speech pathologist/therapist
- Occupational therapist
- Physical therapist
- Social work
- Caregiver support services
- Epilepsy support group meetings (on average, every 2 months)
- Sibs2Sib program for siblings of children with chronic medical conditions
University of Michigan Health – C.S. Mott Children’s Hospital
Pediatric Epilepsy Program 1540 E. Hospital Drive Level 6, Reception C Ann Arbor, MI 48109 www.mottchildren.org
Pediatric Epilepsy Program 1540 E. Hospital Drive Level 6, Reception C Ann Arbor, MI 48109 www.mottchildren.org
Key Contacts
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Program Coordinator: Russell Derry, MPH
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Clinic Lead: Sucheta Joshi, MD, MS – Clinical Professor of Pediatrics, Medical Director of Pediatric Epilepsy, Service Chief of Pediatric Neurology
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Office: (734) 936-4179
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Fax: (734) 763-7551
Specialty Clinics & Providers
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Neurology & Epilepsy: Pediatric and adult epileptologists, pediatric neurologists
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Genetics & Counseling: Genetic counselor, metabolic specialists
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Cardiology, Orthopedics, Gastroenterology, Endocrinology, Pulmonology, Sleep Medicine
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Behavioral & Developmental Care: Developmental/neuro-psychologists, behavioral health specialists
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Therapies & Support: Speech, occupational, and physical therapy; dieticians; keto clinic; social work; caregiver support services; transition to adult care
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Other Key Specialists: Pediatrician, oral/maxillofacial, gynecology, dentistry, rehabilitation, and transplant care
Additional Pediatric Services at Mott
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Allergy & Immunology
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Blood Disorders
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Bones, Muscles & Joints
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Cancer & Hematology
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Digestive & Liver Health
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Ear, Nose & Throat
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Emergency & Trauma Care
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Eye & Vision Care
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Fetal Diagnosis & Treatment
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Heart Conditions
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Infectious Disease
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Kidney & Urology
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Lung & Respiratory Care
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Newborn Intensive Care
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Plastic Surgery
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Pregnancy & Childbirth
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Radiology & Imaging
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Rheumatology & Skin Diseases
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Sports Medicine & Weight Management
HELEN DEVOS CHILDREN’S HOSPITAL
35 Michigan St., Suite 3003
Grand Rapids, MI 49503
www.spectrumhealth.org/patient-care/childrens-health/neurosciences
Clinic Lead:
Seth Devries, MD
Director, Epilepsy Genetic Clinic
To make an appointment:
Contact the Neurosciences Division
616-267-2500
Services offered:
- Pediatric neurologist/epileptologist
- Adult neurologist/epileptologist
- Genetic counselor
- Pediatrician
- Cardiologist
- Orthopedics
- Gastroenterologist
- Endocrinologist
- Pulmonologist
- Sleep specialist
- Metabolic specialist
- Developmental or neuro-psychologist
- Dietician
- Keto clinic
- Speech pathologist/therapist
- Occupational therapist
- Physical therapist
- Social work
- Caregiver support services
- Child Life Specialist
- Quarterly Support Group Meetings
Inova Neurology
8081 Innovation Park Dr, Fairfax, VA 22031
Phone Number: (571) 472-4200
Services offered:
- Pediatric Neurologist/Epileptologist
- Adult Neurologist/Epileptologist
- Epilepsy Monitoring Unit (EMU)
- Quarterly Specialized LGS Clinics
- Developmental Pediatrics
- Cardiologist
- Orthopedics
- Gastroenterologist
- Endocrinologist
- Pulmonologist
- Rheumatologist
- Sleep Specialist
- Psychiatrist
- Monthly Virtual Epilepsy Support Group
- Dedicated prior authorization team for specialty LGS medications.
JOE DIMAGGIO CHILDREN’S HOSPITAL NEUROSCIENCE CENTER
1150 N. 35th Avenue
Hollywood, FL 33021
www.jdch.com/services/neurology
Clinic Lead:
Syndi Seinfeld, DO
Medical Director- Epilepsy Program
To make an appointment:
Contact Shenetra Mack
954-265-3505
ShMack@mhs.net
Services offered:
- Pediatric neurologist/epileptologist
- Adult neurologist/epileptologist
- Genetic counselor
- Pediatrician
- Cardiologist
- Orthopedics
- Gastroenterologist
- Endocrinologist
- Pulmonologist
- Sleep specialist
- Metabolic specialist
- Developmental or neuro-psychologist
- Dietician
- Keto clinic
- Speech pathologist/therapist
- Occupational therapist
- Physical therapist
- Social work
- Monthly support group for caregivers of children with epilepsy (English and Spanish)
- Advocacy with Epilepsy Florida
- Assistance with IEPs and school forms
- Behavioral therapies and services referrals
- Access to clinical trials
- The pediatric neurosurgeons/neuroscience team has expertise in vagus nerve stimulator implantations, responsive neurostimulation, and corpus callosotomy.
LE BONHEUR CHILDREN’S HOSPITAL
Pediatric Neurology
848 Adams Street, L400
Memphis, TN 38103
www.lebonheur.org
Clinic Lead:
James Wheless, BScPharm, MD, FAAP, FACP, FAAN, FAES
Professor & Chief of Pediatric Neurology, Le Bonheur Chair in Pediatric Neurology; Director, Le Bonheur Comprehensive Epilepsy Program & Neuroscience Institute
To make an appointment:
Contact Lauren Siebrase-Wilkes, NP
901-287-5060
laurensiebrase@lebonheur.org
Services offered:
- Pediatric neurologist/epileptologist
- Adult neurologist/epileptologist
- Genetic counselor
- Pediatrician
- Cardiologist
- Orthopedics
- Gastroenterologist
- Endocrinologist
- Pulmonologist
- Sleep specialist
- Metabolic specialist
- Developmental or neuro-psychologist
- Dietician
- Keto clinic
- Speech pathologist/therapist
- Occupational therapist
- Physical therapist
- Social work
ANN & ROBERT H. LURIE CHILDREN’S HOSPITAL OF CHICAGO
225 E. Chicago Ave., Box 29
Chicago, Illinois 60611
www.luriechildrens.org
To make an appointment:
Contact the Epilepsy Center
312-227-3540
Services offered:
- Pediatric neurologist/epileptologist
- Genetic counselor
- Pediatrician
- Cardiologist
- Orthopedics
- Gastroenterologist
- Endocrinologist
- Pulmonologist
- Sleep specialist
- Developmental or neuro-psychologist
- Dietician
- Keto clinic
- Speech pathologist/therapist
- Occupational therapist
- Physical therapist
- Social work
Massachusetts General Hospital
55 Fruit Street
Boston, MA 02114
www.massgeneral.org
MAYO CLINIC
200 First St SW
Rochester, MN 55905
www.mayoclinic.org
Clinic Lead:
Elaine Wirrell, MD
Director of Pediatric Epilepsy
Pediatric Epilepsy Clinic
To make an appointment:
Call Nicole Fay
507-284-9974
Services offered:
- Pediatric neurologist/epileptologist
- Adult neurologist/epileptologist
- Genetic counselor
- Pediatrician
- Cardiologist
- Orthopedics
- Gastroenterologist
- Endocrinologist
- Pulmonologist
- Sleep specialist
- Metabolic specialist
- Developmental or neuro-psychologist
- Dietician
- Keto clinic
- Speech pathologist/therapist
- Occupational therapist
- Physical therapist
- Social work
- Transition clinic for LGS patients transferring to adult services
- Access to clinic trials
Nationwide Children's Hospital
700 Children's Dr. Columbus OH 43205
Clinic Lead: Anup Patel, MD
To make an appointment: Contact Complex Epilepsy Clinic at Nationwide Children's Hospital
Phone Number: (614) 722-6200
Services offered:
- Pediatric Neurologist/Epileptologist
- Genetic Counselor
- Pediatrician
- Cardiologist
- Orthopedics
- Gastroenterologist
- Epilepsy Surgery Specialist(s)
- Endocrinologist
- Pulmonologist
- Sleep specialist
- Metabolic specialist
- Developmental or Neuro-Psychologist
- Dietician, Keto Clinic
- Speech Pathologist / Therapist
- Occupational Therapist
- Physical Therapist
- Social Work
- Caregiver Support Services (i.e., monthly support group)
- Pediatric to Adult Transition Support
NEW YORK PRESBYTERIAN HOSPITAL – WEILL CORNELL MEDICAL COLLEGE
1320 York Avenue, Ste 605
New York, NY 10021
www.weillcornell.org
Clinic Lead:
Srishti Nangia, MD
Director
To make an appointment:
Contact Nisia Nedd; Department of Child Neurology
212-746-3278
Services offered:
- Pediatric neurologist/epileptologist
- Adult neurologist/epileptologist
- Genetic counselor
- Pediatrician
- Cardiologist
- Orthopedics
- Gastroenterologist
- Endocrinologist
- Pulmonologist
- Sleep specialist
- Metabolic specialist
- Developmental or neuro-psychologist
- Dietician
- Keto clinic
- Speech pathologist/therapist
- Occupational therapist
- Physical therapist
- Social work
- Caregiver support services (i.e., monthly support group)
NICKLAUS CHILDREN’S HOSPITAL
3200 SW 60th CT
Suite 302 – Neurology
Miami, FL 33155
www.nicklauschildrens.org
To make an appointment:
Contact Gabriela Martinez
786-624-2381
Gabriela.Martinez@nicklaushealth.org
Services offered:
- Pediatric neurologist/epileptologist
- Adult neurologist/epileptologist
- Genetic counselor
- Pediatrician
- Cardiologist
- Orthopedics
- Gastroenterologist
- Endocrinologist
- Pulmonologist
- Sleep specialist
- Metabolic specialist
- Developmental or neuro-psychologist
- Dietician
- Keto clinic
- Speech pathologist/therapist
- Occupational therapist
- Physical therapist
- Social work
- Caregiver support services
- Parent clinic ambassador
- Advocacy with Epilepsy Florida
- Help with IEPs and school forms
- Summer camp
- Parent-Child Interaction Therapy referral
- Behavioral therapies and services referrals
NYU COMPREHENSIVE EPILEPSY CENTER
223 East 34th St
New York, NY 10016
nyulangone.org/locations/comprehensive-epilepsy-center
The NYU Comprehensive Epilepsy Center is actively involved in multiple medication research studies.
To make an appointment:
Contact Samantha Stanhope
646-558-0808
Services offered:
- Pediatric neurologist/epileptologist
- Adult neurologist/epileptologist
- Genetic counselor
- Cardiologist
- Orthopedics
- Gastroenterologist
- Endocrinologist
- Pulmonologist
- Sleep specialist
- Metabolic specialist
- Developmental or neuro-psychologist
- Dietician
- Keto clinic
- Speech pathologist/therapist
- Occupational therapist
- Physical therapist
- Social work
- Caregiver support services
- The Parent Network, FACES organization
- Annual epilepsy conference for parents and caregivers
- Lodging grants for out-of-state patients, through FACES
- Summer Camp scholarship program, through FACES
RAINBOW BABIES AND CHILDREN’S HOSPITAL
11100 Euclid Ave
Cleveland, OH 44106
www.uhhospitals.org/rainbow/services/pediatric-neurology
Clinic Lead:
Asim Shahid, MD
Division Chief Pediatric Neurology and Epilepsy
To make an appointment:
Pediatric Epilepsy
216-286-6644
Services offered:
- Pediatric neurologist/epileptologist
- Adult neurologist/epileptologist
- Genetic counselor
- Pediatrician
- Cardiologist
- Orthopedics
- Gastroenterologist
- Endocrinologist
- Pulmonologist
- Sleep specialist
- Metabolic specialist
- Developmental or neuro-psychologist
- Dietician
- Keto clinic
- Speech pathologist/therapist
- Occupational therapist
- Physical therapist
- Social work
SEATTLE CHILDREN’S HOSPITAL
4800 Sand Point Way NE
Seattle, WA 98105
www.seattlechildrens.org
Clinic Lead:
Russell Saneto, DO, PhD
Professor, Neurology and Adjunct Professor Pediatrics
To make an appointment:
Dial 206-987-2078 (Neurology)
Select Option 1
Services offered:
- Pediatric neurologist/epileptologist
- Genetic counselor
- Pediatrician
- Cardiologist
- Orthopedics
- Gastroenterologist
- Endocrinologist
- Pulmonologist
- Sleep specialist
- Metabolic specialist
- Developmental or neuro-psychologist
- Dietician
- Keto clinic
- Speech pathologist/therapist
- Occupational therapist
- Physical therapist
- Social work
ST. LOUIS CHILDREN’S HOSPITAL / WASHINGTON UNIVERSITY SCHOOL OF MEDICINE
660 South Euclid
St. Louis, MO 63110
www.stlouischildrens.org
Clinic Lead:
Mary Bertrand, MD
Associate Professor of Neurology and Pediatrics
To make an appointment:
Pediatric Neurology
800-678-5437
Services offered:
- Pediatric neurologist/epileptologist
- Adult neurologist/epileptologist
- Genetic counselor
- Pediatrician
- Cardiologist
- Orthopedics
- Gastroenterologist
- Endocrinologist
- Pulmonologist
- Sleep specialist
- Metabolic specialist
- Developmental or neuro-psychologist
- Dietician
- Keto clinic
- Speech pathologist/therapist
- Occupational therapist
- Physical therapist
UNIVERSITY OF CALIFORNIA SAN FRANCISCO
1825 4th Street, 5th Floor
San Francisco, CA 94143
www.ucsfbenioffchildrens.org/clinics/epilepsy
Clinic Lead:
Joseph Sullivan, MD
Director, Pediatric Epilepsy Center of Excellence (PECE)
To make an appointment:
Contact Leila Marks-Block
415-353-9064
Leila.Marks-Block@ucsf.edu
Services offered:
- Pediatric neurologist/epileptologist
- Adult neurologist/epileptologist
- Pediatrician
- Cardiologist
- Orthopedics
- Gastroenterologist
- Endocrinologist
- Pulmonologist
- Sleep specialist
- Metabolic specialist
- Developmental or neuro- psychologist
- Dietician
- Keto clinic
- Social work
- Caregiver support services (i.e., monthly support group
UNIVERSITY OF CALIFORNIA LOS ANGELES
300 Medical Plaza, Suite 3300
Los Angeles, CA 90095
https://www.uclahealth.org/providers/shaun-hussain
To make an appointment:
310-825-0867
Pediatrix Child Neurology Consultants of Austin
7940 Shoal Creek Blvd., Suite 100
Austin, TX 78757
www.childneurotx.com
Clinic Lead:
Dr. Karen Keough
CNCA Medical Director
To make an appointment contact:
Caitlin Aulicino
512-494-4000
Services offered:
- Pediatric neurologist/epileptologist
- Caregiver support services (i.e., monthly support group)
- EEG services, including in-home routine, and EMU
- Partnerships with other disciplines allow us to easily offer a variety of options for comprehensive evaluation and treatments
Winchester Neurological Consultants
125-A Medical Circle, Winchester, VA, 22601
https://www.winchesterneurological.com/
Services offered;
- Epileptology
- Neurology
- Neurosurgeons
- Neuroimaging including brain SPECT, PET, Wada, and functional MRI
- Specialized nurses
- Neuropsychologists
- Dietitians
- Pharmacist
- Research nurses
National Association of Epilepsy Centers (NAEC)
NAEC-accredited epilepsy centers offer specialized epilepsy care; however, they may not provide the same comprehensive, multidisciplinary approach as DEE & LGS Comprehensive Care Centers.
For more information, visit NAEC Find a Epilepsy Center.
Disclaimer: The LGS Foundation does not endorse any particular care provider or center and provides this list only as a service to the community. Not all of the professionals and institutions listed on this site have the same treatment approach. Your decision to select a particular health care provider and/or treatment option is yours alone, and LGS Foundation bears no responsibility for the care provided by any professional listed on this site or for the outcome of any treatment option you may select.
Updated 08/26/25 (KK)