Seizures & Safety

Seizures & Safety

Patients with epilepsy have a mortality rate significantly higher than that of the general population. Seizures can sometimes be fatal for a variety of reasons. It is important to take appropriate precautions to make sure that your child with LGS…

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Seizure Clusters and Status Epilepticus in LGS

Seizure clusters and status epilepticus are very common in LGS and a Seizure Action Plan should be created for every child and adult with LGS so all can know what to do in the case of these seizure emergencies. What…

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Keeping a Seizure Diary

Keep a seizure diary where you record seizures along with other relevant information, such as dietary changes, the timing of medication intake of both anticonvulsants and other drugs, amount and quality of sleep, etc. This is a useful tool when…

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Sudden Unexpected Death in Epilepsy (SUDEP)

Mortality due to epilepsy is a significant concern for the families of those with LGS. Seizures can sometimes be fatal for a number of reasons. Some children with LGS may lose their lives due to accidents, status epilepticus, or illness….

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Seizure Action Plan Awareness Week

On February 1, 2020, the Seizure Action Plan (SAP) Coalition launched its new website at www.seizureactionplans.org in conjunction with Seizure Action Plan Awareness Week. This new website offers information and resources for patients, professionals, and advocacy organizations to learn about…

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