LGS Learning & Resource Center

LGS IS HARD. FINDING INFORMATION DOESN’T NEED TO BE.

The LGS Foundation is dedicated to providing a comprehensive LGS Learning and Resource Center (LLRC) so those living with LGS can #NeverStopLearning

Whether it is to find a doctor, learn about epilepsy surgery, understand seizure clusters, or something else, the LLRC is here for you.

We are working hard to add topics to the LLRC. Is something missing? Please let us know at info@lgsfoundation.org

PACIFIC Research Study for Seizures

The PACIFIC Study is a clinical trial for a drug called LP352. This study will assess the safety and tolerability of this drug as well as examine changes in seizure frequency over the 90-day treatment period. The study plans to enroll…

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Carisbamate for Seizures

What is Carisbamate? Carisbamate (the generic name), also known as Comfyde (the brand name), is a medication used to treat seizures. When taken orally, Carisbamate can inhibit voltage-gated sodium channels, which may be useful for drug-resistant epilepsy. LGS is tough….

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Caring for the Caregiver

Being a caregiver for a loved one with LGS is a commitment unlike any other. Caregiving requires limitless amounts of energy, empathy, and patience. While most caregivers will tell you that taking care of a loved one is a genuinely…

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The Skyway Study for Soticlestat in Seizures in LGS

The Skyway Study is a Phase 3 clinical research study of an investigational medication for children, teens, and adults diagnosed with Lennox-Gastaut Syndrome (LGS) who are currently using 0-3 anti-seizure medications to manage symptoms and are still experiencing seizures. The…

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STARS Research Study for Seizures

The STARS (Stand Together Against pRolonged Seizures) Research Study is a clinical trial for a drug called Alprazolam, which is sometimes used to treat seizures. Alprazolam is the active ingredient in Xanax, a commonly known drug. This study is a…

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Ganaxolone for Seizures in CDKL5 Deficiency Disorder

New Treatment for CDKL5 Deficiency Disorder (a genetic cause of seizures that can lead to LGS)

What is Ganaxolone? Ganaxolone (the generic name), also known as Ztalmy (the brand name), is a prescription medication used to treat seizures associated with cyclin-dependent kinase-like 5 (CDKL5) deficiency disorder (CDD), a known cause of seizures that can evolve into…

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Midazolam Nasal Spray (Nayzilam) for Seizure Clusters

What Is Midazolam Nasal Spray? Midazolam (generic name), also known as Nayzilam (the name brand), is a prescription medicine used for the short-term treatment of seizure clusters (also known as acute repetitive seizures). It is a rescue medication in the…

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Cannabidiol (Epidiolex) for Seizures in LGS

What is Cannabidiol? Cannabidiol (the generic name), also known as Epidiolex (the brand name), is a prescription medicine that is used to treat seizures associated with Lennox-Gastaut syndrome, Dravet syndrome, or tuberous sclerosis complex in patients 1 year of age…

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Felbamate (Felbatol) for Seizures in LGS

What is Felbamate? Felbamate (the generic name), also known as Felbatol (the brand name), is an anti-epileptic drug that was approved by the Food and Drug Administration (FDA) for the management of focal seizures (previously called partial seizures) and seizures…

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Lamotrigine for Seizures in LGS

What is Lamotrigine? Lamotrigine (the generic name), also known as Lamictal (the brand name), is a medication used to treat epilepsy and stabilize mood in bipolar disorder. For epilepsy, this includes focal seizures, tonic-clonic seizures, and seizures in Lennox-Gastaut syndrome….

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