LGS Learning & Resource Center

LGS IS HARD. FINDING INFORMATION DOESN’T NEED TO BE.

The LGS Foundation is dedicated to providing a comprehensive LGS Learning and Resource Center (LLRC) so those living with LGS can #NeverStopLearning

Whether it is to find a doctor, learn about epilepsy surgery, understand seizure clusters, or something else, the LLRC is here for you.

We are working hard to add topics to the LLRC. Is something missing? Please let us know at info@lgsfoundation.org

Additional Resources

The following list contains links to third-party websites. The LGS Foundation is not responsible for the content or privacy policies of these external sites. While we try to only list sites here that we feel contain useful information for our…

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Seizure Types Associated with LGS

LGS is a lifelong developmental brain disorder and frequent, debilitating seizures are the main feature. Therapies may help, however, in most cases, they do not completely stop seizures. Seizures often change in children with LGS as they grow and develop….

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List of Treatments for Seizures

This page offers a list of FDA- approved treatments often used in those with LGS. Not all medications used in LGS are listed here. This list reflects U.S. FDA-approved medications. For info on epilepsy treatments in the U.K. visit this…

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Fintepla® (Fenfluramine) for LGS

New Treatment for LGS

What is Fintepla (Fenfluramine)? FINTEPLA® is a prescription medicine used to treat seizures associated with Dravet Syndrome and Lennox-Gastaut Syndrome (LGS) in patients 2 years of age and older. Watch an overview of Fintepla® for Lennox-Gastaut Syndrome – Presented by…

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Sympazan® (Clobazam Oral Film)

New Treatment for LGS

What is Sympazan? Sympazan (clobazam) oral film is a prescription medicine used along with other medicines to treat seizures associated with LGS in people 2 years of age or older. Watch an overview of Sympazan for LGS – Presented by…

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XCOPRI® (Cenobamate Tablets) for LGS

New Treatment for LGS

What is XCOPRI? Once-daily XCOPRI® (Cenobamate) CV is a prescription medicine used to treat partial-onset seizures in adults 18 years of age or older. Watch an overview of XCOPRI for LGS – Presented by Dr. Michael Chez More information about medication…

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Fycompa® (Perampanel) in LGS

New Treatment for Seizures

What is FYCOMPA (perampanel)? FYCOMPA is a prescription medicine used alone or with other medicines to treat partial-onset seizures with or without secondarily generalized seizures in people with epilepsy aged 4 and older. It is also used with other medicines…

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Find a Doctor

Are you looking for a doctor who knows about LGS? Check out our list. Professionals listed on this site have treated patients with Lennox-Gastaut Syndrome and/or related disorders and have been recommended by LGS families in our community of support….

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About Epilepsy Surgery

Epilepsy surgery is any type of brain surgery where parts of the brain are removed, disconnected, destroyed, or stimulated to stop seizures. There are many different types of epilepsy surgeries. Which procedure is used depends upon the type of seizures…

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Vagus Nerve Stimulation (VNS)

How does the brain control heart rate, digestion, sweating, speech, chewing, and the gag reflex? Though these functions seem unrelated, they’re all controlled by the vagus nerve – a long fiber that connects the brain to the throat, heart, and…

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