Learning & Resource Center

Find a Doctor

Are you looking for a doctor who knows about LGS? Professionals listed on this site have treated patients with Lennox-Gastaut Syndrome and/or related disorders and many have been recommended for this page by other LGS families. You can find more…

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What is epilepsy surgery?

Epilepsy surgery is any type of brain surgery where parts of the brain are removed, disconnected, destroyed, or stimulated to stop seizures. There are many different types of epilepsy surgeries. Which procedure is used depends upon the type of seizures…

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Vagus Nerve Stimulation (VNS)

How does the brain control heart rate, digestion, sweating, speech, chewing, and the gag reflex? Though these functions seem unrelated, they’re all controlled by the vagus nerve – a long fiber that connects the brain to the throat, heart, and…

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Corpus Callosotomy

What Is a Corpus Callosotomy? The corpus callosum is a band of nerve fibers located deep in the brain that connects the two halves (hemispheres) of the brain. It helps the hemispheres share information, but it also contributes to the…

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Deep Brain Stimulation (DBS)

Children who are not eligible for surgery, or who have had limited surgical success, often attempt the ketogenic diet or vagal nerve stimulation (VNS). A newer approach targets the source of the seizure, using magnets or electricity to stimulate the…

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Comprehensive Care Centers

Individuals with Lennox-Gastaut Syndrome have complex and lifelong neurological and medical needs that are unique. Often, a local care team is not familiar with LGS or may not have had another patient with this diagnosis. A visit to a Comprehensive…

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Seizures & Safety

Patients with epilepsy have a mortality rate significantly higher than that of the general population. Seizures can sometimes be fatal for a variety of reasons. It is important to take appropriate precautions to make sure that your child with LGS…

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Seizure Clusters and Status Epilepticus in LGS

Seizure clusters and status epilepticus are very common in LGS and a Seizure Action Plan should be created for every child and adult with LGS so all can know what to do in the case of these seizure emergencies. What…

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Keeping a Seizure Diary

Keep a seizure diary where you record seizures along with other relevant information, such as dietary changes, the timing of medication intake of both anticonvulsants and other drugs, amount and quality of sleep, etc. This is a useful tool when…

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Sudden Unexpected Death in Epilepsy (SUDEP)

Mortality due to epilepsy is a significant concern for the families of those with LGS. Seizures can sometimes be fatal for a number of reasons. Some children with LGS may lose their lives due to accidents, status epilepticus, or illness….

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