LGS Learning & Resource Center

LGS IS HARD. FINDING INFORMATION DOESN’T NEED TO BE.

The LGS Foundation is dedicated to providing a comprehensive LGS Learning and Resource Center (LLRC) so those living with LGS can #NeverStopLearning

Whether it is to find a doctor, learn about epilepsy surgery, understand seizure clusters, or something else, the LLRC is here for you.

We are working hard to add topics to the LLRC. Is something missing? Please let us know at info@lgsfoundation.org

Lamotrigine for Seizures in LGS

What is Lamotrigine? Lamotrigine (the generic name), also known as Lamictal (the brand name), is a medication used to treat epilepsy and stabilize mood in bipolar disorder. For epilepsy, this includes focal seizures, tonic-clonic seizures, and seizures in Lennox-Gastaut syndrome….

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Seizure Types Associated with LGS

LGS is a lifelong developmental brain disorder and frequent, debilitating seizures are the main feature. Therapies may help, however, in most cases, they do not completely stop seizures. Seizures often change in children with LGS as they grow and develop….

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List of Treatments for Seizures

This page offers a list of FDA- approved treatments often used in those with LGS. Not all medications used in LGS are listed here. This list reflects U.S. FDA-approved medications. For info on epilepsy treatments in the U.K. visit this…

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Fenfluramine (Fintepla) for Seizures in LGS

New Treatment for Seizures in LGS

What is Fenfluramine? Fenfluramine (the generic name), also known as Fintepla (the brand name), is a prescription medicine used to treat seizures associated with Dravet Syndrome and Lennox-Gastaut Syndrome (LGS). Watch Now: Overview of Fenfluramine for LGS Presented by: Michael…

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Clobazam Oral Film (Sympazan) for Seizures in LGS

New Treatment for Seizures in LGS

What is Clobazam Oral Film? Clobazam oral film (the generic name), also known as Sympazan (the brand name), is a prescription medicine used along with other medicines to treat seizures associated with LGS. It is an oral film that dissolves…

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Cenobamate (XCOPRI) for Seizures

New Treatment for Seizures

What is Cenobamate? Cenobamate (the generic name), also known as XCOPRI (the brand name), is a prescription medicine used to treat partial-onset seizures in adults 18 years of age or older. It is not yet approved for seizures in LGS but…

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Perampanel (Fycompa) for Seizures

New Treatment for Seizures

What is perampanel? Perampanel (the generic name), also known as Fycompa (the brand name), is a prescription medicine used alone or with other medicines to treat focal seizures (previously called partial seizures) with or without secondarily generalized seizures in people…

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Find a Doctor

Are you looking for a doctor who knows about LGS? Check out our list. Professionals listed on this site have treated patients with Lennox-Gastaut Syndrome and/or related disorders. Many have been recommended by LGS families in our community of support….

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About Epilepsy Surgery

Epilepsy surgery is any type of brain surgery where parts of the brain are removed, disconnected, destroyed, or stimulated to stop seizures. There are many different types of epilepsy surgeries. Which procedure is used depends upon the type of seizures…

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Vagus Nerve Stimulation (VNS)

How does the brain control heart rate, digestion, sweating, speech, chewing, and the gag reflex? Though these functions seem unrelated, they’re all controlled by the vagus nerve – a long fiber that connects the brain to the throat, heart, and…

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