Dr. Tracy Dixon-Salazar is a neuroscientist, geneticist, and patient advocate. Her desire to get her Ph.D. was inspired by her daughter, Savannah, who developed intractable seizures at the age of 2, which evolved into Lennox-Gastaut Syndrome (LGS) by the age…
Kathy Leavens serves as Senior Director Of Programs for the LGS Foundation. Kathy is a Certified Grief Educator. She was awarded the Leaders in LGS Award in 2016. Kathy also served as a Peer Support Specialist for the Family Support…
Amber is a successful and goal-driven visionary with over eight years of demonstrated leadership and excellence in operations, program, and project management. She earned her Bachelor of Science in Marketing from the University of South Florida. After leaving her role…
Jennifer Griffin’s LGS journey began when her son Theo, now 19 years old, received that diagnosis at the age of 5 after living with Infantile Spasms since he was 3 months old. After graduating from the Arc of California’s Partners…
For over 25 years, Cindy has journeyed nationally and globally as a nonprofit professional. Her leadership experiences include cultivating diverse and meaningful relationships, developing impactful programs, and inspiring support for national and global organizations that are changing lives for the…
Ashley Burns has always had a caregiver’s heart and a desire to serve others. At an early age, she began volunteering with various organizations across the U.S. and overseas serving veterans, children, and seniors. She built homes for those in…
Kayleigh came to the LGS Foundation in 2014 after her son’s diagnosis of Lennox-Gastaut Syndrome. Her previous experience with nonprofits, outgoing personality, and obvious passion for helping others made her the perfect candidate for the Foundation’s Family Ambassador program. After…
