Thank you for an amazing 3rd Annual Swing “FORE” the Cures for LGS
Lennox-Gastaut Syndrome (LGS) is a severe epilepsy syndrome that develops in young children and often leads to lifelong disability. About 50,000 people in the United States and 1 million people worldwide have LGS. Our goal at the LGS Foundation is to end the devastation and suffering caused by LGS.
“Our hearts are grateful for the ongoing support of family and friends in raising funds for the LGS Foundation. Thank you all for helping us to create a hopeful path forward for those affected by this devastating syndrome. Because of your generosity, there is a hopeful path forward.“
– Karen and Jeff Groff
Danny Groff began having seizures in his first year of life and was eventually diagnosed with LGS when he developed multiple seizure types along with severe intellectual delay. Danny’s seizures have caused broken bones, broken teeth, lacerations, and status epilepticus over the years often requiring emergency treatment and hospitalizations. Danny is 38 years old and functions at the level of a toddler. He has tried over 25 treatments including brain surgery. There is no cure for LGS at this time. Danny’s parents, Jeff and Karen Groff, are inspired to raise funds for research in order to eventually ensure better outcomes for those suffering from this disease. Thank you to family and friends who tirelessly support their efforts.
Give Now to Support Our Efforts
All proceeds benefit the LGS Foundation.
Interested in becoming a sponsor? Email karen@lgsfoundation.org.
Previous Events:
Thank you to everyone who came out to Swing “FORE” A Cure for LGS. Because of your support, we raised over $18,000 for cutting-edge LGS Research! And a special thank you to our sponsors and volunteers for your continued support.
“We are delighted to have spent another fun afternoon with friends and family raising money for the LGS Foundation. We truly appreciate your participation!” – Karen & Jeff Groff
Thank You To Our 2023 Sponsors
56 players enjoyed a round of golf, including special contests and a dinner, raffle, and silent auction. Over $11,000 was raised through the combined efforts of golfers, volunteers, sponsors, and donors.
Karen and Jeff Groff, parents to Dan, who has LGS, and hosts of the outing, reported that six individuals with LGS were represented by golfers. “We were fortunate to connect with three more Ohio families that we did not previously know,” they said. "The event was a lot of fun, and it helped create a community of support.”
One of the golfers commented, “I had no idea about what those with LGS deal with on a daily basis.”
The Groffs are active volunteers for the LGS Foundation, and they work every day to create hope and improve the lives of those impacted by LGS.
Updated 06/28/2024