For Our Bereaved Families
A place of compassion, remembrance, and connection
My name is Kathy Leavens, and my heart has been forever shaped by the love and the loss of my three sons — Eric (2005), Jacob (2013), and Matthew (2019). Each brought light and love into my life, and each…
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Join Our Support Communities & Support Groups
Looking for support? Meet thousands of others who understand what it is like to live with lGS. You’re Not Alone. The LGS Foundation moderates several social network groups for those affected by LGS. Get the emotional support you need from…
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Connect with an LGS Patient Navigator or Family Ambassador
Your situation is unique, but it doesn’t need to be isolating. The LGS Foundation firmly believes that everyone living with LGS should have access to the information, resources, and support they deserve. Furthermore, this includes information on how to connect…
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