Join a Community Awareness Event

for redirect.

More

Get Connected & Supported

A diagnosis of LGS is deeply unsettling and can leave you at a loss as to where to turn for help and guidance. We’re here for you. In this section, you will find information, resources, and communities of support for…

More

Get Connected and Supported

More

Get Involved in Research

More

COVID-19 and LGS

Since March of 2020, the United States has faced unprecedented public health challenges during the COVID-19 pandemic. Tragically, this virus has claimed many lives in the U.S. and beyond. Vaccines from several pharmaceutical companies have been recently developed, evaluated for…

More

Explore Resources

More

For Our Bereaved Families

Losing someone you love, especially a child, is painful and overwhelming. What you are experiencing is tremendously painful and the wave of feelings you have right now is okay. Some of the immediate emotions in grief are shock, numbness, denial,…

More

Share Your Story

More

Join Our Online Communities

Looking for support for LGS? Meet thousands of others who understand. You’re Not Alone. The LGS Foundation moderates a social network group for those affected by LGS. Get the emotional support you need from others in similar circumstances, and gain practical…

More

Connect with an LGSF Ambassador

The LGS Foundation is firmly grounded in the belief that everyone who is living with LGS should have access to the information, resources, and support they deserve, including a connection with others. In 2015 the Family Ambassador Program was established…

More