Request Information & Materials
Looking for information, materials, and/or resources for Lennox-Gastaut Syndrome? Then you have come to the right place. The LGS Foundation is committed to providing a wealth of information for LGS caregivers, families, and professionals. We believe that everyone should have…
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Request an About LGS Treatments Kit
About LGS Treatments Kits are for families who are considering “What’s Next” in treatment. This comprehensive kit contains information on current treatments, clinical trials, and tips on maximizing your time with your loved one’s healthcare team. Please note that given the…
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Caregiver Support
We Are Here for You and Your Loved One Being a caregiver for a child with Lennox-Gastaut Syndrome (LGS) or other serious medical conditions can be both enormously gratifying and extremely challenging. The experience is life-altering and can be all-consuming….
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Get Connected & Supported
A diagnosis of LGS can be deeply unsettling and may leave you at a loss as to where to turn for help and guidance. We are here for you. In this section, you will find information, resources, and communities of…
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Clinical Trials in LGS
What is a Clinical Trial? Clinical trials are research studies performed in those with a medical condition like LGS. They scientifically evaluate a medical or surgical intervention. They are the primary way that researchers find out if a new treatment,…
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For Our Bereaved Families
We are here for you My name is Kathy Leavens and I lost my son, Matthew, to LGS in 2013. As you read, please know that you are not alone. Losing someone you love, especially a child, is painful and…
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Join Our Support Communities & Support Groups
Looking for support? Meet thousands of others who understand what it is like to live with lGS. You’re Not Alone. The LGS Foundation moderates several social network groups for those affected by LGS. Get the emotional support you need from…
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