Caregiver Support

We Are Here for You and Your Loved One  Being a caregiver for a child with Lennox-Gastaut Syndrome (LGS) or other serious medical conditions can be both enormously gratifying and extremely challenging. The experience is life-altering and can be all-consuming….

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Join a Community Awareness Event

for redirect.

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Get Connected & Supported

A diagnosis of LGS can be deeply unsettling and may leave you at a loss as to where to turn for help and guidance. We are here for you. In this section, you will find information, resources, and communities of…

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Get Connected and Supported

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Explore Resources

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For Our Bereaved Families

We are here for you My name is Kathy Leavens and I lost my son, Matthew, to LGS in 2013. As you read, please know that you are not alone. Losing someone you love, especially a child, is painful and…

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Share Your Story

At the LGS Foundation, we want to hear your stories! We believe that your story will help others to understand what living with LGS is like and the effects it has on your family. We will select stories to feature…

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Join Our Support Communities & Support Groups

Looking for support? Meet thousands of others who understand what it is like to live with lGS. You’re Not Alone. The LGS Foundation moderates several social network groups for those affected by LGS. Get the emotional support you need from…

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Connect with an LGS Patient Navigator or Family Ambassador

The LGS Foundation is firmly grounded in the belief that everyone who is living with LGS should have access to the information, resources, and support they deserve, including a connection with others. LGS Patient Navigator Program Connect Based on Topic …

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