Adult C.A.R.E. Binder

Long-Term Care Planning for Adults with Lennox-Gastaut Syndrome (LGS) Planning for care for your loved one with LGS may feel daunting at times. If you have feelings of concern or anxiety as you prepare for your loved one’s future, rest…

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Request Information & Materials

Looking for information, materials, and/or resources for Lennox-Gastaut Syndrome? Then you have come to the right place. The LGS Foundation is committed to providing a wealth of information for LGS caregivers, families, and professionals. We believe that everyone should have…

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Request an About LGS Treatments Kit

About LGS Treatments Kits are for families who are considering “What’s Next” in treatment. This comprehensive kit contains information on current treatments, clinical trials, and tips on maximizing your time with your loved one’s healthcare team. Please note that given the…

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Caregiver Support

We Are Here for You and Your Loved One  Being a caregiver for a child with Lennox-Gastaut Syndrome (LGS) or other serious medical conditions can be both enormously gratifying and extremely challenging. The experience is life-altering and can be all-consuming….

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Join a Community Awareness Event

for redirect.

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Get Connected & Supported

A diagnosis of LGS can be deeply unsettling and may leave you at a loss as to where to turn for help and guidance. We are here for you. In this section, you will find information, resources, and communities of…

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Get Connected and Supported

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Clinical Trials in LGS

What is a Clinical Trial? Clinical trials and research studies are done to scientifically evaluate a medical or surgical intervention. They are the primary way that researchers find out if a new treatment, like a new drug, diet, surgery, or…

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Explore Resources

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For Our Bereaved Families

We are here for you My name is Kathy Leavens and I lost my son, Matthew, to LGS in 2013. As you read, please know that you are not alone. Losing someone you love, especially a child, is painful and…

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