Caregiver Support

We Are Here for You and Your Loved One  Being a caregiver for a child with Lennox-Gastaut Syndrome (LGS) or other serious medical conditions can be both enormously gratifying and extremely challenging. The experience is life-altering and can be all-consuming….

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Join a Community Awareness Event

for redirect.

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Get Connected & Supported

A diagnosis of LGS can be deeply unsettling and may leave you at a loss as to where to turn for help and guidance. We are here for you. In this section, you will find information, resources, and communities of…

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Get Connected and Supported

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COVID-19 and LGS

Since March of 2020, the United States has faced unprecedented public health challenges during the COVID-19 pandemic. Tragically, this virus has claimed many lives in the U.S. and beyond. Vaccines from several pharmaceutical companies have been recently developed, evaluated for…

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For Our Bereaved Families

We are here for you My name is Kathy Leavens and I lost my son, Matthew, to LGS in 2013. As you read, please know that you are not alone. Losing someone you love, especially a child, is painful and…

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Share Your Story

At the LGS Foundation, we want to hear your stories! In an effort to help spread awareness of LGS, we believe that your story will help others to understand what living with LGS is like and the effects it has…

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Join Our Private Online Family Community

Looking for support for LGS? Meet thousands of others who understand. You’re Not Alone. The LGS Foundation moderates a social network group for those affected by LGS. Get the emotional support you need from others in similar circumstances, and gain practical…

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Connect with an LGS Patient Navigator or Family Ambassador

The LGS Foundation is firmly grounded in the belief that everyone who is living with LGS should have access to the information, resources, and support they deserve, including a connection with others. LGS Patient Navigator Program Connect Based on Topic …

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