About LGS Treatments Kits are for families who are considering “What’s Next” in treatment. The kit contains information on current treatments, clinical trials, and tips on maximizing your time with the specialists on your loved one’s healthcare team. Kit Contents…
We Are Here for You and Your Loved One Being a caregiver for a child with Lennox-Gastaut Syndrome (LGS) or other serious medical conditions can be both enormously gratifying and extremely challenging. The experience is life-altering and can be all-consuming….
A diagnosis of LGS can be deeply unsettling and may leave you at a loss as to where to turn for help and guidance. We are here for you. In this section, you will find information, resources, and communities of…
What is a Clinical Trial? Clinical trials are research studies performed in those with a medical condition like LGS. They scientifically evaluate a medical or surgical intervention. They are the primary way that researchers find out if a new treatment,…
Bereavement Card We are here for you My name is Kathy Leavens and I lost my son, Matthew, to LGS in 2013. As you read, please know that you are not alone. Losing someone you love, especially a child, is…
At the LGS Foundation, we want to hear your stories! We believe that your story will help others to understand what living with LGS is like and the effects it has on your family. We will select stories to feature…
Looking for support? Meet thousands of others who understand what it is like to live with lGS. You’re Not Alone. The LGS Foundation moderates several social network groups for those affected by LGS. Get the emotional support you need from…
