Join a Community Awareness Event
for redirect.
Get Connected & Supported
A diagnosis of LGS is deeply unsettling and can leave you at a loss as to where to turn for help and guidance. We’re here for you. In this section, you will find information, resources, and communities of support for…
Get Connected and Supported
Get Involved in Research
COVID-19 and LGS
Since March of 2020, the United States has faced unprecedented public health challenges during the COVID-19 pandemic. Tragically, this virus has claimed many lives in the U.S. and beyond. Vaccines from several pharmaceutical companies have been recently developed, evaluated for…
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For Our Bereaved Families
Losing someone you love, especially a child, is painful and overwhelming. What you are experiencing is tremendously painful and the wave of feelings you have right now is okay. Some of the immediate emotions in grief are shock, numbness, denial,…
Share Your Story
Join Our Online Communities
Looking for support for LGS? Meet thousands of others who understand. You’re Not Alone. The LGS Foundation moderates a social network group for those affected by LGS. Get the emotional support you need from others in similar circumstances, and gain practical…
Connect with an LGSF Ambassador
The LGS Foundation is firmly grounded in the belief that everyone who is living with LGS should have access to the information, resources, and support they deserve, including a connection with others. In 2015 the Family Ambassador Program was established…
