meet the amazing doctors and scientists that make up our
medical Science Advisory Board (MSAB)
This amazing group of individuals is taking a stand against Lennox-Gastaut Syndrome by helping our team in the Foundation’s mission to accelerate LGS research. The hope is that we will lessen the burden of LGS for younger generations. If we are successful, the science we accelerate to find the cures for this epilepsy disorder of early life will usher in cures for other circuits and aging disorders of the brain.
University of California, San Francisco
Mayo Clinic Rochester
University of Maryland, School of Medicine
University of Texas, San Antonio
University of California, Irvine
Cook Children’s Hospital, Fort Worth
About our MSAB
The LGS Foundation Medical Scientific Advisory Board (MSAB) advises the LGS Foundation Research Committee and helps lead the strategic scientific direction for current and future LGS research activities. As internationally acclaimed experts, MSAB members provide strategic guidance and advice to LGS Foundation on our mission and objectives. Further, the MSAB evaluates research proposals and makes funding recommendations to the Research Committee regarding proposals that will advance science toward better treatments and cures for LGS.
Roles & Responsibilities:
Each MSAB member:
- Is fully versed in the goals and objectives of LGS Foundation’s programs
- Serves as an advocate for LGS Foundation’s programs and communicates programs to the broader community
- Actively participates in CURE LGS 365 grant review
- Attends the annual LGS Foundation Research Roundtable at AES and other LGS Foundation events whenever possible
- Shares developments in the field
- Assists in the identification and recruitment of new MSAB members
- Makes recommendations to LGS Foundation staff regarding ideas for projects, grant proposals and/or collaborations
A diversity of perspectives is an important aspect of the MSAB’s function. Prospective MSAB members are identified by existing MSAB members or with potential input from the LGS Foundation and are appointed by the Research Committee. The suggested number of members should be from 6 to 8 people. Advisory board members will serve two-year terms with the possibility for renewal for additional terms based on their interest, involvement, and at the discretion of the MSAB Chair(s) and Research Committee. Term limits begin on January 1st.
This novel funding mechanism allows researchers to submit letters of intent 365 days a year and funds worthy projects within two months of submission. With only a tiny fraction of public and private funds going towards research on LGS, families of the more than one million people with LGS worldwide worry that lifesaving, stabilizing treatment may not come to fruition in their loved ones lifetime. The LGS Foundation’s Cure LGS 365 Research Grants Program is combating these fears and aims to rapidly accelerate research.