Meet Olive
Our little unicorn
I’m a mom of four and my sweet Olive is our rainbow baby and our little LGS warrior, who is now four years old. She was a healthy newborn who underwent cardiac arrest at three months old and had anoxic…
Latest News
Our Board of Directors
It is a pleasure to introduce Our Board of Directors to You Our Board of Directors brings a wealth of experience and expertise to the LGS Foundation, united by their passion for our mission to end the devastation and suffering…
Felbamate (Felbatol) for Seizures in LGS
What is Felbamate? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey. Felbamate (the…
Trick or Treat for LGS
Order or Download your free About LGS Trick or Treat cards and spread awareness during Halloween.
Get Your About LGS Trick Or Treat Cards Today! (Available in English and Spanish) Share these cards with others while Trick-or-Treating to begin a conversation about LGS. Cards are business card sized (3.5 inches x 2 inches) and come in…
Halloween Masquerade Ball at Epilepsy Awareness Day at Disneyland to Raise Awareness of LGS
October 31st, 2022
Join us for the FIRST EVER Halloween Masquerade Ball at Epilepsy Awareness Day at Disneyland. This event is free to all registered Expo guests. Help us raise awareness of LGS. *Make sure to register for the Expo; you’ll get an…
Leaders in LGS Award
The LGS Foundation recognizes Those who have made a significant Impact in the LGS community The LGS Foundation appreciates and values our community’s commitment to ending the devastation and suffering caused by LGS and recognizes the significant impact of the…
Caregiver Support
Care for the Caregiver
Being a caregiver for a loved one with LGS is a commitment unlike any other. Caregiving requires limitless amounts of energy, empathy, and patience. While most caregivers will tell you that taking care of a loved one is a genuinely…
In Memory of Johnathan Rush, Jr.
3/19/2004 - 10/01/2016
Johnathan was my first born. He was born premature and not breathing. Because of his traumatic birth, his brain endured an injury that caused a variety of disorders. One the many we would later discover was Lennox-Gastaut Syndrome. His journey…
In Memory of Brian Jason Roedl
6/26/1973 - 12/16/2016
Brian was the oldest of our three sons. He began having petit mal seizures (head drops) at 9 months old. On the day of his first MMR vaccination, he encountered his first tonic-clonic seizure. It lasted approximately 15 minutes. Until…
In Memory of Aidan Nichols Long
4/17/2004 - 1/14/2021
Aidan was born in Kalispell, Montana in 2004 and was a healthy, curious and very talkative little boy. He grew up loving the Montana way of life. He enjoyed camping, canoeing, collecting insects and fishing with dad. He loved books,…