A Life of Love, Resilience, and Butterflies
Around the age of three, Maurice began having seizures. They weren’t just one kind—he experienced several types, each unpredictable and frightening. He fell often and eventually wore a helmet to protect his head. Despite this, Maurice still lost his front…
More seizure-free days may be on the horizon
The EMERALD clinical study is evaluating an investigational medicine, relutrigine, to understand its safety and how effective it may be at reducing seizures in children and adults living with Developmental and Epileptic Encephalopathies (DEEs). Relutrigine is an investigational medicine that…
The Daily Living section equips caregivers with practical, everyday support strategies. It outlines personal care tasks – such as bathing, toileting, and similar routine activities – and explains how to determine if home health services might best support your loved…
When great minds meet, great breakthroughs happen!
The 2025 LGS Research Meeting of the Minds, held July 21–22, brought together over 100 caregivers, healthcare professionals, researchers, and industry partners committed to improving care for individuals living with Lennox-Gastaut Syndrome (LGS) and associated developmental and epileptic encephalopathies (DEEs)….
Charlie was born on February 25, 2011, in Lansing, Michigan—the youngest of five grandsons. From the very beginning, he was full of life. He reached milestones quickly—talking, walking, and potty training earlier than his cousins. He was healthy, vibrant, and…
Save the Date for the 10th International Family & Professional Conference July 9-11, 2026 I Orlando, FL Every two years, the LGS Foundation organizes a comprehensive multi-day educational meeting. The conference brings together more than 350 LGS family members…
Advancing Evidence-Based LGS Care Across the Lifespan
2025 LGS Research Meeting of the Minds: Advancing Evidence-Based LGS Care Across the Lifespan Thank you for being an essential part of the 2025 LGS Research Meeting of the Minds. Your participation and dedication to advancing care for those living…
Help Raise Awareness this November!
Six Weeks of Action | One Global Voice for LGS This fall, the LGS Foundation invites YOU—families, friends, allies, and supporters—to help us shine a light on Lennox-Gastaut Syndrome (LGS). Whether you have a personal connection to LGS or simply…
Stepping Together for a Breakthrough!
Thank You for Making the 10th Annual Walk ‘n’ Wheel for LGS Research a Success! We are deeply grateful to everyone who joined us as we Stepped Together for a Breakthrough at the 10th Annual Walk ‘n’ Wheel for LGS…
Locations Around the World Light Up for LGS Awareness
The LGS Foundation continues to shine a light on Lennox-Gastaut Syndrome as we #IlluminateForLGS—raising awareness and promoting understanding of what truly matters to LGS families. Join Us & Illuminate for LGS Awareness! Starting on November 1 and continuing throughout the…
