When great minds meet, great breakthroughs happen!
The 2025 LGS Research Meeting of the Minds, held July 21–22, brought together over 100 caregivers, healthcare professionals, researchers, and industry partners committed to improving care for individuals living with Lennox-Gastaut Syndrome (LGS) and associated developmental and epileptic encephalopathies (DEEs)….
Charlie was born on February 25, 2011, in Lansing, Michigan—the youngest of five grandsons. From the very beginning, he was full of life. He reached milestones quickly—talking, walking, and potty training earlier than his cousins. He was healthy, vibrant, and…
Save the Date for the 10th International Family & Professional Conference July 9-11, 2026 I Orlando, FL Every two years, the LGS Foundation organizes a comprehensive multi-day educational meeting. The conference brings together more than 350 LGS family members…
Advancing Evidence-Based LGS Care Across the Lifespan
2025 LGS Research Meeting of the Minds: Advancing Evidence-Based LGS Care Across the Lifespan Thank you for being an essential part of the 2025 LGS Research Meeting of the Minds. Your participation and dedication to advancing care for those living…
Help Raise Awareness this November!
Join Us In raising awareness for the more than one million children and adults worldwide living with LGS! YOU are a part of something BIG, and your efforts have a BIG impact. Join us in raising awareness around International LGS…
Stepping Together for a Breakthrough!
Thank You for Making the 10th Annual Walk ‘n’ Wheel for LGS Research a Success! We are deeply grateful to everyone who joined us as we Stepped Together for a Breakthrough at the 10th Annual Walk ‘n’ Wheel for LGS…
Locations Around the World Light Up for LGS Awareness
The LGS Foundation continues to shine a light on Lennox-Gastaut Syndrome as we #IlluminateForLGS—raising awareness and promoting understanding of what truly matters to LGS families. Join Us & Illuminate for LGS Awareness! Starting on November 1 and continuing throughout the…
Some conversations are tough to have when you don’t know where to start. And especially when it comes to talking about the topic of Long-Term Care Plans for your loved one with a rare epilepsy. Below are insights shared by…
The definition and rules governing Guardianship vs. Conservatorship can vary from state to state; therefore, please seek legal advice for details on your specific state laws and what type of guardianship or conservatorship your loved one will require. A guardianship…
Growing old is an inevitable part of life, but it can be especially daunting for those who care for individuals with a rare epilepsy. Life as a caregiver (e.g., cooking, managing medicines, medical appointments, therapy, etc.) can lead to decreased…
