Join us in raising awareness and increasing education at one of our many Community Awareness Events.
Save the Date for the 10th International Family & Professional Conference July 9-11, 2026 Caribe Royale I 8101 World Center Drive, Orlando, FL Scholarship Applications & General Registration Open in January 2026! Every two years, the LGS Foundation organizes a comprehensive…
Help Raise Awareness this November!
Together for a Breakthrough, Today & Every Day As we close out this year’s awareness campaign, we’re reminded of what makes the LGS community extraordinary: your courage, your voices, your actions, and your unwavering hope. Because of you, more people…
Stepping Together for a Breakthrough!
April 2026: Together for a Breakthrough A Global Movement. Powered by Community. In April 2026, families, advocates, and partners around the world will step forward together—walking, wheeling, and showing up in their own communities—to raise awareness, strengthen connection, and advance…
Locations Around the World Light Up for LGS Awareness
The LGS Foundation continues to shine a light on Lennox-Gastaut Syndrome as we #IlluminateForLGS—raising awareness and promoting understanding of what truly matters to LGS families. Join Us & Illuminate for LGS Awareness! Starting on November 1 and continuing throughout the…
The Celebration of Life honors the impact and profound influence of those who have departed from our world. It’s a time to honor our loved ones, whose spirits guide us in our pursuit of cures for LGS. At the LGS…
The Balancing Act on Lifetime TV Celebrates Rare Disease Day Watch Now: The Lennox-Gastaut Syndrome Foundation: Working Together to Find a Cure Executive Director of the LGS Foundation Dr. Tracy Dixon-Salazar sits down with Montel Williams to discuss the Foundation’s…
#ISAW
What is Infantile Spasms awareness week (ISAW)? Infantile Spasms Awareness Week (ISAW) is held annually on December 1-7 to raise awareness of Infantile Spasms (IS). ISAW is hosted by the Infantile Spasms Action Network (ISAN), a group of more than…
October 31st, 2022
Join us for the FIRST EVER Halloween Masquerade Ball at Epilepsy Awareness Day at Disneyland. This event is free to all registered Expo guests. Help us raise awareness of LGS. *Make sure to register for the Expo; you’ll get an…
COMMUNITY PARTICIPATION GUIDELINES: Throughout our work, the LGS Foundation is part of, supports, and directly works with many different communities. Within those communities, the LGS Foundation is committed to creating and maintaining an environment where everyone is welcomed, respected, and…
Thank you for an amazing 3rd Annual Swing “FORE” the Cures for LGS Lennox-Gastaut Syndrome (LGS) is a severe epilepsy syndrome that develops in young children and often leads to lifelong disability. About 50,000 people in the United States and 1…
