Personal Stories

Two Peas in a Pod

A Sister's Special Bond

My sister, Robyn, and I are 4 1/2 years apart. We are like any other sisters…we share laughs, tears, and yes, we even argue! What sets us apart is our special bond. From the moment I saw my sister in…


A Sister’s Love

Songs Inspired by her Brother Help Raise Awareness of LGS 

On November 1, local artists and LGS community members joined the LGS Foundation in Santa Monica, California to help raise awareness and funds for Lennox-Gastaut Syndrome. Meet the Artist: Christina Apostolopulos Hi, my name is Christina and my younger brother…


Cash’s LGS Journey

Celebrating 100 Days of Seizure Freedom

Cash is the youngest of our three boys. He is the light of our lives and here to teach lessons to all of us.  Cash started having seizures when he was 3 weeks old. These were easily controlled with medications….


Our Little Ironman

Charles (age 10)

Donate Now to Support Charles Life throws us curveballs. And in the fall of 2012, my wife and I got thrown a big one. At only 18 months old, Little Charles Wagner was diagnosed with Lennox-Gastaut Syndrome (LGS), a rare…


Fighting for a Cure for LGS

Savannah (age 28) & Tracy's Story

According to my records, I’ve witnessed more than 40,000 seizures—a remarkable number, even for a medical professional. Still, I’m not a medical doctor. I’m a mom. I remember the first seizure vividly. I awoke to the sound of choking coming…


Brittany and Amaree

Single mother to Amaree (age 11), diagnosed with LGS at age three.

Having big hopes and dreams for Amaree, Brittany grieved for the things that her daughter would not get to experience. Then one day Brittany decided to stop wasting time focusing on what Amaree could not do, and decided that she…


Golf-A-Thon to Support the LGS Foundation

Support me as I attempt to hit 1,101 golf balls for LGS Awareness Day (Nov 1) to honor my son, John!

Donate now to honor John!   Thank you so much for showing interest in my efforts to raise funds and awareness for Lennox-Gastaux Syndrome (LGS), a rare form of epilepsy that impacts my son, John. John had his first seizure…


Sibling Spotlight

Addyson (age 11)

Hi my name is Addyson Gruber. I am 11 years old and I live in Cincinnati Ohio with my brother Braxtin, my mom Katie and my dad Mark, and Braxtin’s service dog, Dawson. I am going into the 6th grade…


Sibling Spotlight

Bennett (age 6)

Hi, my name is Bennett. I am six years old and in the 1st grade. I live in Leesburg, Va. I like to play soccer, build legos, build houses out of cardboard boxes, and play with my family and friends….


Tayla and Brian

Adopted mother to 16-year old Brian.

After nine years of teaching special education, Tayla decides it’s time for a change and hands in her resignation. The next day she meets her adoptive son, Brian. “ Brian was this frail, ornery, sickly little boy, and he started…