More Than a Meeting: Building Relationships
Have you ever wanted to talk to your members of Congress but weren’t sure where to start? The lessons learned from the LGS Advocates provide an opportunity to take that first step. Every August, lawmakers return to their home states…
Individuals of any age who meet the criteria for drug-resistant epilepsy (defined as failure to achieve seizure freedom after using two or more anti-seizure medications) are considered surgical candidates and are eligible for assessment. Epilepsy surgery is complex and differs…
Finding the right surgery for your LGS loved one takes time and careful planning. The full evaluation process usually takes a few weeks to a few months. While this might feel like a long wait, getting a thorough picture of…
Is My Surgeon Qualified? All surgeons must be licensed by their state. Some hospitals also require extra certifications. For children, you’ll want a doctor who has specialized training in brain surgery specifically for kids. Brain surgery in children requires extra…
From seizures to full lives through precision diagnoses, precision treatments, and whole‑life care Every family living with Lennox‑Gastaut Syndrome knows how hard this journey can be—and how deeply we all dream of better answers and brighter days. That’s why the…
What is Responsive Neurostimulation (RNS)? The word “responsive” means this device is smart, it monitors what’s happening in the brain and reacts in real time. The RNS System is a small, programmable device that continuously monitors brain activity. When it…
The definition and rules governing Guardianship vs. Conservatorship can vary from state to state; therefore, please seek legal advice for details on your specific state laws and what type of guardianship or conservatorship your loved one will require. A guardianship…
Reflections from the 10th International LGS Foundation Family & Professional Conference
I came to Orlando as a first-time attendee, still relatively new to the LGS community. I am leaving inspired, hopeful, and more energized about the future of LGS research than I have ever been. Over three days, we laughed and…
For families living with Lennox-Gastaut Syndrome (LGS), every day can feel like a battle against the unpredictable. New research is moving beyond traditional surgery and heavy prescriptions, opening a path toward non-invasive options that could fundamentally change how we treat…
Accelerate Research. Change Lives.
The LGS & Associated DEE Research Accelerator brings industry, academia, and patient advocacy together in a pre-competitive environment — eliminating duplication and moving the needle faster for those living with LGS and related Developmental & Epileptic Encephalopathies (DEEs). Member Benefits …
