The LGS Foundation is dedicated to providing a comprehensive LGS Learning and Resource Center (LLRC) so those living with LGS can #NeverStopLearning
Whether it is to find a doctor, learn about epilepsy surgery, understand seizure clusters, or something else, the LLRC is here for you.
We are working hard to add topics to the LLRC. Is something missing? Please let us know at info@lgsfoundation.org
The following list contains links to third-party websites. The LGS Foundation is not responsible for the content or privacy policies of these external sites. While we try to only list sites here that we feel contain useful information for our…
What is Topiramate? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey. Topiramate, sold…
A Clinical Trial for 2 to 5 Year Old Children With Epilepsy
LGS is tough. Finding information shouldn’t be. That is why we provide information about clinical trials in LGS. We hope you find this information useful as you navigate your LGS journey. The Stellina Study is a Phase 1/2a clinical study…
A Clinical Trial Open to Those with Seizures
LGS is tough. Finding information shouldn’t be. That is why we provide information about clinical trials in LGS. We hope you find this information useful as you navigate your LGS journey. The PACIFIC Study is a clinical trial for a…
What is Carisbamate? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey. Carisbamate (the…
Being a caregiver for a loved one with LGS is a commitment unlike any other. Caregiving requires limitless amounts of energy, empathy, and patience. While most caregivers will tell you that taking care of a loved one is a genuinely…
A Clinical Trial Open to Those With Seizures Associated with LGS
LGS is tough. Finding information shouldn’t be. That is why we provide information about clinical trials in LGS. We hope you find this information useful as you navigate your LGS journey. The Skyway Study is a Phase 3 clinical research…
A Clinical Trial Open to Those With Seizures
LGS is tough. Finding information shouldn’t be. That is why we provide information about clinical trials in LGS. We hope you find this information useful as you navigate your LGS journey. The STARS (Stand Together Against pRolonged Seizures) Research Study…
New Treatment for Seizures in CDKL5 Deficiency Disorder (a genetic cause of seizures that can lead to LGS)
What is Ganaxolone? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey. Ganaxolone (the…
New Treatment for Seizure Clusters
What Is Midazolam Nasal Spray? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey….
