Stepping Together for a Breakthrough!
Join us as we Step Together for a Breakthrough at our 10th Annual Walk ‘n’ Wheel for LGS Research! April 26th, 2025 This year, we are making LGS research history by uniting leading experts to create formal recommendations that will…
Single mother to Amaree (age 11), diagnosed with LGS at age three.
Having big hopes and dreams for Amaree, Brittany grieved for the things that her daughter would not get to experience. Then one day Brittany decided to stop wasting time focusing on what Amaree could not do, and decided that she…
Get Your VIP Caregiver & Sibling Kits Today
First, we listened! It can be hard for brothers and sisters when a sibling has a chronic illness like LGS. This has disrupted their routines, and they worry and wonder what is happening and if their sibling will be alright….
Adopted mother to 16-year old Brian.
After nine years of teaching special education, Tayla decides it’s time for a change and hands in her resignation. The next day she meets her adoptive son, Brian. “ Brian was this frail, ornery, sickly little boy, and he started…
Parents to 23-year old Matthew, diagnosed with LGS at age seven.
The LGS journey is tough. Many families struggle with isolation, anxiety, and fear for the future. Sue and Tony explain that although their path has not been an easy one, they are grateful for each and every day with their…
