LGS Foundation Meeting of the Minds

The LGS Foundation is organizing the first-ever Meeting of the Minds professional conference to find disease-modifying therapies and cures for LGS. This two-day Virtual Conference will bring together patients, families, doctors, researchers, industry partners, and advocacy organizations to discuss progress…

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Celebrating our Rockin’ LGS Siblings

It can be hard for brothers and sisters when a sibling has a chronic illness like LGS. Their routines are disrupted, and they worry and wonder what is happening and if their sibling will be alright. Often parents’ time is…

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Walk ‘n’ Wheel for LGS Research

Hundreds of  LGS families and community members came together on June 5th, 2021 to Step Towards a Cure for LGS! Together our community pledged Over 1 Million Steps and Raised Over 60K for Research into Lennox-Gastaut Syndrome. Learn more about…

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LGS Foundation Community Teams

Do you want to share your enthusiasm and energy? Do you want to share your experience? Do you want to make an impact in the lives of those living with LGS? Then we need you! Join an LGS Foundation Community…

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Brittany and Amaree

Single mother to Amaree (age 11), diagnosed with LGS at age three.

Having big hopes and dreams for Amaree, Brittany grieved for the things that her daughter would not get to experience. Then one day Brittany decided to stop wasting time focusing on what Amaree could not do, and decided that she…

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Sue and Tony McCain

Parents to 23-year old Matthew, diagnosed with LGS at age seven.

The LGS journey is tough. Many families struggle with isolation, anxiety, and fear for the future. Sue and Tony explain that although their path has not been an easy one, they are grateful for each and every day with their…

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Tayla and Brian

Adopted mother to 16-year old Brian.

After nine years of teaching special education, Tayla decides it’s time for a change and hands in her resignation. The next day she meets her adoptive son, Brian. “ Brian was this frail, ornery, sickly little boy, and he started…

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