Virtual Walk ‘n’ Wheel for LGS Research

Stepping Towards a Cure, Together!

2022 Virtual Walk ‘n’ Wheel for Lennox-Gastaut Syndrome The LGS Foundation held its 7th Annual Walk ‘n’ Wheel for Lennox-Gastaut Syndrome on March 26th, 2022 to raise awareness and increase funding to accelerate research on Lennox-Gastaut Syndrome (LGS), a rare…

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Brittany and Amaree

Single mother to Amaree (age 11), diagnosed with LGS at age three.

Having big hopes and dreams for Amaree, Brittany grieved for the things that her daughter would not get to experience. Then one day Brittany decided to stop wasting time focusing on what Amaree could not do, and decided that she…

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Listening to and Supporting LGS VIP Siblings

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First, we listened! It can be hard for brothers and sisters when a sibling has a chronic illness like LGS. Their routines are disrupted, and they worry and wonder what is happening and if their sibling will be alright. Often…

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Tayla and Brian

Adopted mother to 16-year old Brian.

After nine years of teaching special education, Tayla decides it’s time for a change and hands in her resignation. The next day she meets her adoptive son, Brian. “ Brian was this frail, ornery, sickly little boy, and he started…

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Sue and Tony McCain

Parents to 23-year old Matthew, diagnosed with LGS at age seven.

The LGS journey is tough. Many families struggle with isolation, anxiety, and fear for the future. Sue and Tony explain that although their path has not been an easy one, they are grateful for each and every day with their…

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