The definition and rules governing Guardianship vs. Conservatorship can vary from state to state; therefore, please seek legal advice for details on your specific state laws and what type of guardianship or conservatorship your loved one will require. A guardianship…
Growing old is an inevitable part of life, but it can be especially daunting for those who care for individuals with a rare epilepsy. Life as a caregiver (e.g., cooking, managing medicines, medical appointments, therapy, etc.) can lead to decreased…
Ages 19-22
Transition to adulthood is a complex, confusing, and often emotional process. It’s also the first important step to plan for as you consider the long-term adult C.A.R.E. Plan for your loved one. For each family, the process can look and…
Ages 17-18
Many families ask, “When should I start planning?” Some families may be feeling they are already behind in the process and are wondering, “Is it too late to start planning?” If your loved one is older than age 13 and…
Ages 13-16
Many families ask, “When should I start planning?” Some families may be feeling they are already behind in the process and are wondering, “Is it too late to start planning?” While this guide targets age 13 as a starting point…
Savannah’s spirit will forever live on in the hearts of all who had the honor of knowing and loving her!
The LGS Foundation and our entire community are deeply saddened by the news of the passing of Savannah, the beloved daughter of our Executive Director, Tracy Dixon-Salazar. Savannah’s spirit will forever live on in the hearts of all who had…
Why advocating for people with disabilities, rare diseases, and chronic illnesses is important to the LGS Community!
Every year, during the last week of February, advocates representing dozens of rare diseases, take time from their chaotic, medically complex lives and travel to Washington, D.C. to raise awareness of the needs of the rare disease community. And LGS…
You Can Make a Difference for Families Impacted by LGS!
This holiday season, help us bring hope and essential support to those impacted by Lennox-Gastaut Syndrome (LGS). Your gift provides critical resources, education, and connection for families who need it most. Our goal is to raise $50,000, but we’ll only reach…
We are committed to helping LGS Families impacted by natural disasters get the assistance they need. The following list contains links to resources and third-party websites that specialize in emergency disaster relief. You can also email us at familysupport@lgsfoundation.org and…
The Latest in LGS Research - July 2024
While there are no cures for LGS, current LGS Foundation-funded researchers are focused on two areas where their efforts can lead to improved lives for those with LGS and their families. One of these areas is seizure control and another…
