Adults living with LGS often have complex needs that require comprehensive care and community support. A knowledgeable and dedicated multidisciplinary team of family members/legal guardians, medical professionals, and social service specialists are essential in meeting these needs. Planning for the…
The collaborative efforts of our expert healthcare professionals, neurologists, epileptologists, neurosurgeons, and neuroscientists have significantly accelerated and enhanced the accuracy of diagnoses, enabling us to provide families with timely access to a comprehensive range of potential treatment options. Each child…
What is a Clinical Trial? Clinical trials and research studies are done to scientifically evaluate a medical or surgical intervention. They are the primary way that researchers find out if a new treatment, like a new drug, diet, surgery, or…
There is no cure for LGS but numerous treatments for seizures are available. The goal of seizure treatment in LGS is to minimize the seizures, treatment side effects, and the number of medications as well as to attain the best…
1 in 3 Children with LGS had Prior Infantile Spasms (IS). The LGS Foundation is committed to providing education and increasing awareness of Infantile Spasms (IS). Infantile Spasms typically occur before one year of age and affect approximately 2,500 children…
Who has LGS? 1-2% of all people with epilepsy have LGS 3-4% of all children with epilepsy have LGS 48,000 children and adults in the U.S. have LGS 1,000,000 children and adults have LGS worldwide LGS is typically diagnosed between…
A Absence seizure A seizure causing a brief loss of awareness, which is often characterized by staring into space for a few seconds. Other symptoms include lip-smacking, eyelid fluttering, and chewing motions. Adjunct Treatment An adjunct treatment is one used…
LGS is tough. So are we! As you read about LGS, please remember that you are not alone. Lennox-Gastaut Syndrome (LGS) is a severe epilepsy syndrome that develops in young children and often leads to lifelong disability. Nobody is born…
In LGS, the brain is affected at a critical time in its development. Learning problems and seizures result. There are many causes of seizures that can evolve into LGS. While we don’t know why seizures evolve into LGS, we do…
A diagnosis of Lennox-Gastaut Syndrome is usually based upon a thorough clinical evaluation, a detailed patient history, and a complete physical and neurological evaluation, including advanced imaging techniques, such as electroencephalography (EEG) and magnetic resonance imaging (MRI). Your doctor will…
