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About LGS
- Like many rare conditions, Lennox-Gastaut Syndrome can be a complete mystery when you first hear about it. Explore this section to get a thorough understanding of LGS—including its causes, symptoms, diagnosis and treatment.
New to LGS
- A diagnosis of LGS is deeply unsettling and can leave you at a loss as to where to turn for help and guidance. We’re here for you. In this section you will find information, resources, and communities of support for the challenging road ahead.
For Families
- If a loved one is living with LGS, the entire family shares in the difficult journey. How can you keep them safe? Find appropriate medical care? Get the support you need? This section gives answers to these and other critical questions.
About Research
- Even as our understanding of LGS grows, there is so much more to learn. From research grants to conferences, from publications to voice of the patient family, this section provides avenues for furthering your knowledge and impact.
Get Involved
- Host a fundraiser. Volunteer at an event. Shop our LGS store. These are just some of the ways you can lend your personal support to our mission. Check out this section to get started.
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The challenges are tough. So are we.

While there is no cure for LGS, there is a hopeful path forward. On this site, you will find useful information and resources – and most importantly, a community of support.

Find Support What is LGS?

LGS is a severe epilepsy syndrome that develops in children and leads to lifelong disability.

More Facts About LGS

Meet Olive

Our little unicorn

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Josie’s Story

Every mother will say their child is special. But my sweet Josie truly is. She is the definition of a warrior.

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Brittany and Amaree

Single mother to Amaree (age 11), diagnosed with LGS at age three.

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Click a photo above to view a personal story, or View all Stories

We are dedicated to improving the lives of individuals impacted by LGS through advancing research, awareness, education, and family support.

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LGS Learn From Every Patient Database

Help Us Find Better Treatments and Cures for LGS

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In Memory of Joshua Paul Keller

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International LGS Awareness Day & Epilepsy Awareness Month

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LGS Advocates are Raising Their Voices

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Illuminate for LGS – Locations Around the World Light Up for LGS Awareness

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Discovering Breakthroughs and Innovations in LGS Research

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Financial Resource Toolkit for LGS Families

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Trick or Treat for LGS

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2023 LGS Meeting of the Minds

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