Home - LGS Foundation

About LGS
- Like many rare conditions, Lennox-Gastaut Syndrome can be a complete mystery when you first hear about it. Explore this section to get a thorough understanding of LGS—including its causes, symptoms, diagnosis and treatment.
New to LGS
- A diagnosis of LGS is deeply unsettling and can leave you at a loss as to where to turn for help and guidance. We’re here for you. In this section you will find information, resources, and communities of support for the challenging road ahead.
For Families
- If a loved one is living with LGS, the entire family shares in the difficult journey. How can you keep them safe? Find appropriate medical care? Get the support you need? This section gives answers to these and other critical questions.
About Research
- Even as our understanding of LGS grows, there is so much more to learn. From research grants to conferences, from publications to voice of the patient family, this section provides avenues for furthering your knowledge and impact.
Get Involved
- Host a fundraiser. Volunteer at an event. Shop our LGS store. These are just some of the ways you can lend your personal support to our mission. Check out this section to get started.
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The challenges are tough. So are we.

While there is no cure for LGS, there is a hopeful path forward. On this site, you will find useful information and resources – and most importantly, a community of support.

Find Support What is LGS?

Lennox-Gastaut Syndrome (LGS) is a severe epilepsy syndrome that develops in very young children.

More Facts About LGS

Josie’s Story

Every mother will say their child is special. But my sweet Josie truly is. She is the definition of a warrior.

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Fighting for a Cure for LGS

Savannah (age 28) & Tracy's Story

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Tayla and Brian

Adopted mother to 16-year old Brian.

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Click a photo above to view a personal story, or View all Stories

The Lennox-Gastaut Syndrome (LGS) Foundation is a nonprofit organization dedicated to improving the lives of individuals impacted by LGS through advancing research, awareness, education, and family support.

Calendar of Events

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2022 LGS Research Roundtable at AES

Advancing Clinical Research In LGS, Starting The Conversation

Friday, December 2, 2022 | 11:00am ET

International LGS Awareness Day is Coming Soon!

November 1st: Help Us Raise Awareness about LGS

Latest News

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Leaders in LGS Award

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Caring for the Caregiver

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Our Medical Science Advisory Board

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Illuminate for LGS – Locations Around the World Light Up for LGS Awareness

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Swing “FORE” a Cure Golf Event for LGS

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The LGS Foundation Receives Chan Zuckerberg Initiative Rare As One Grant

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8th International Family & Professional Conference

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2021 LGS Research Roundtable at AES

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