International Family & Professional Conference

Thank you for joining us in Orlando!

The 10th International LGS Family & Professional Conference brought together more than 400 families, caregivers, individuals living with LGS, clinicians, researchers, advocates, and partners for three inspiring days of education, connection, and community.

Thank you to everyone who joined us, shared your experiences, asked thoughtful questions, and supported one another. Together, we explored the latest in LGS research, treatment, care across the lifespan, and the future of our community.

One of the most meaningful moments of the conference was our Celebration of Life Butterfly Release, where we honored loved ones, celebrated resilience, and reflected on why this work matters.

WATCH THE CONFERENCE SESSIONS

Or browse the conference photo gallery to relive the weekend’s unforgettable moments.


Together, We Made an Impact

Thanks to the incredible generosity of our conference community, we raised $30,000 for the Powering Breakthroughs Campaign. With a matching gift from the Becky and Scott Perry Family Fund, that total grew to an incredible $55,000.

Your support is helping advance the LGS Foundation’s work to accelerate diagnosis, develop disease-changing treatments, and improve care for every stage of life.

Thank you for being part of this incredible community. We can’t wait to see you again at our next conference!


“Our LGS Conference is more than an event – it’s a chance for us to strengthen bonds, share insights, and grow together as a community. Its success lies in the incredible spirit of our families, researchers, and partners coming together to learn, share, and inspire one another.”

– Tracy Dixon-Salazar, PhD, Executive Director


Thank you to Our 2026 Sponsors

We value our relationship with each of our partners. In addition to financial support, partners provide their unique expertise and perspectives on the issues and needs our families face daily. And while it is our commitment to improve the lives of those impacted by Lennox-Gastaut Syndrome that brings us together, it is our shared understanding that collaborative initiatives generate steadier progress and stronger outcomes that will ensure our partnership proves valuable for the families and providers in our community.

Pinnacle Sponsor

Keystone Sponsor
Catalyst Sponsor
Workshop Sponsor

Interested in becoming a sponsor? Email us at info@LGSFoundation.org


Past LGS Family & Professional Conferences

9th International Family & Professional Conference

More than 400 global leaders, healthcare professionals, family leaders, and advocates for LGS united in Phoenix, Arizona for three days of educational sessions and community collaboration, July 11-14, 2024.

VIEW THE 2024 CONFERENCE RECORDINGS ON YOUTUBE

VIEW THE 2024 CONFERENCE PHOTOS ON FACEBOOK


Workshop Resources & Materials

LGS Workshop: Seizure Types, Seizure Action Plans, & Using Technology Devices
LGS Workshop: The Early Years - Navigating the Medical System, School, & Therapies
LGS Workshop: The Elephant in the Room - How to talk about SUDEP & Mortality in LGS
LGS Workshop: Advocating for a Better Future for Your Loved One

Thank You to Our 2024 Sponsors

We value our relationship with each of our partners and their shared commitment to improving the lives of those impacted by Lennox-Gastaut Syndrome.

LGS Foundation Family & Professional Conference June 17-19, 2022

Thank you for joining us at the 2022 LGS Foundation Family & Professional Conference, June 17-19th, 2022 at the Gaylord Texan Resort & Convention Center in Grapevine, Texas.

Thank You For Joining Us

2022 conference sessions provided attendees with clinical and research updates on Lennox-Gastaut Syndrome, along with information on emerging therapies, special needs resources, and topics related to quality of life. This event allowed the opportunity to foster new relationships and collaborations, both for families and professionals. New this year was our Sib Camp and fun activities for those with LGS.

VIEW CONFERENCE PHOTOS HERE 

Please note that these photos are for personal use only. These photos are not authorized to be used for commercial purposes.


Updated 07/22/26 (KK)