Save the Date for the 10th International Family & Professional Conference
July 9-11, 2026
Caribe Royale I 8101 World Center Drive, Orlando, FL
Every two years, the LGS Foundation organizes a comprehensive multi-day educational meeting. The conference brings together more than 350 LGS family members and epilepsy professionals from around the world to better understand the causes, treatments, and how to live with LGS. Talks cover everything from treatment options to services and include information on improving quality of life, accessing resources, and much more.
In non-conference years, the LGS Foundation hosts the LGS Research Meeting of the Minds Conference for professionals and families and focuses on LGS research. We can’t wait to see you!
New This Year: Camp Small Steps
Camp Small Steps is a new, optional Friday night experience created especially for LGS families.
For one special evening, families are invited into a warm, sensory-aware environment designed for connection, comfort, and togetherness. The space will offer gentle, hands-on activities, creative play, and opportunities to relax and recharge; with families participating side by side at their own pace.
Whether you stop by briefly or spend the evening enjoying the space together, Camp Small Steps is designed to feel welcoming, flexible, and supportive—centered on what matters most: shared moments, community, and being together, one small step at a time.
🎓 Scholarships Are Now Open
The LGS Conference Scholarships help make the 2026 Family & Professional Conference accessible to families impacted by Lennox-Gastaut Syndrome.
Scholarships provide financial support to help offset conference-related costs for families who may not otherwise be able to attend.
👉 Click Here to Apply for a Conference Scholarship
Applications are open to U.S. and international families. Funding is limited.
“Our LGS Conference is more than an event – it’s a chance for us to strengthen bonds, share insights, and grow together as a community. Its success lies in the incredible spirit of our families, researchers, and partners coming together to learn, share, and inspire one another.”
– Tracy Dixon-Salazar, PhD, Executive Director
Thank you to Our 2026 Sponsors
We value our relationship with each of our partners. In addition to financial support, partners provide their unique expertise and perspectives on the issues and needs our families face daily. And while it is our commitment to improve the lives of those impacted by Lennox-Gastaut Syndrome that brings us together, it is our shared understanding that collaborative initiatives generate steadier progress and stronger outcomes that will ensure our partnership proves valuable for the families and providers in our community.
Interested in becoming a sponsor? Email us at info@LGSFoundation.org
Past LGS Family & Professional Conferences
9th International Family & Professional Conference
More than 400 global leaders, healthcare professionals, family leaders, and advocates for LGS united in Phoenix, Arizona for three days of educational sessions and community collaboration, July 11-14, 2024.
VIEW THE 2024 CONFERENCE RECORDINGS ON YOUTUBE
VIEW THE 2024 CONFERENCE PHOTOS ON FACEBOOK
Workshop Resources & Materials
- Plan Your Next Doctors Visit
- My Child’s “Pre-IEP Worksheet”
- Share Your Story (Mock Bill Exercise) Worksheet
Thank You to Our 2024 Sponsors
We value our relationship with each of our partners and their shared commitment to improving the lives of those impacted by Lennox-Gastaut Syndrome.
LGS Foundation Family & Professional Conference June 17-19, 2022
Thank You For Joining Us
2022 conference sessions provided attendees with clinical and research updates on Lennox-Gastaut Syndrome, along with information on emerging therapies, special needs resources, and topics related to quality of life. This event allowed the opportunity to foster new relationships and collaborations, both for families and professionals. New this year was our Sib Camp and fun activities for those with LGS.
Please note that these photos are for personal use only. These photos are not authorized to be used for commercial purposes.
7th International LGSF Family Conference
Updated 01/06/26 (KK)