
Thank you for joining us in Orlando!
The 10th International LGS Family & Professional Conference brought together more than 400 families, caregivers, individuals living with LGS, clinicians, researchers, advocates, and partners for three inspiring days of education, connection, and community.
Thank you to everyone who joined us, shared your experiences, asked thoughtful questions, and supported one another. Together, we explored the latest in LGS research, treatment, care across the lifespan, and the future of our community.
One of the most meaningful moments of the conference was our Celebration of Life Butterfly Release, where we honored loved ones, celebrated resilience, and reflected on why this work matters.
Or browse the conference photo gallery to relive the weekend’s unforgettable moments.
Together, We Made an Impact
Thanks to the incredible generosity of our conference community, we raised $30,000 for the Powering Breakthroughs Campaign. With a matching gift from the Becky and Scott Perry Family Fund, that total grew to an incredible $55,000.
Your support is helping advance the LGS Foundation’s work to accelerate diagnosis, develop disease-changing treatments, and improve care for every stage of life.
Thank you for being part of this incredible community. We can’t wait to see you again at our next conference!

“Our LGS Conference is more than an event – it’s a chance for us to strengthen bonds, share insights, and grow together as a community. Its success lies in the incredible spirit of our families, researchers, and partners coming together to learn, share, and inspire one another.”
– Tracy Dixon-Salazar, PhD, Executive Director
Thank you to Our 2026 Sponsors
We value our relationship with each of our partners. In addition to financial support, partners provide their unique expertise and perspectives on the issues and needs our families face daily. And while it is our commitment to improve the lives of those impacted by Lennox-Gastaut Syndrome that brings us together, it is our shared understanding that collaborative initiatives generate steadier progress and stronger outcomes that will ensure our partnership proves valuable for the families and providers in our community.


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Interested in becoming a sponsor? Email us at info@LGSFoundation.org
Past LGS Family & Professional Conferences
9th International Family & Professional Conference
More than 400 global leaders, healthcare professionals, family leaders, and advocates for LGS united in Phoenix, Arizona for three days of educational sessions and community collaboration, July 11-14, 2024.
VIEW THE 2024 CONFERENCE RECORDINGS ON YOUTUBE
VIEW THE 2024 CONFERENCE PHOTOS ON FACEBOOK
Workshop Resources & Materials
- Plan Your Next Doctors Visit
- My Child’s “Pre-IEP Worksheet”
- Share Your Story (Mock Bill Exercise) Worksheet
Thank You to Our 2024 Sponsors
We value our relationship with each of our partners and their shared commitment to improving the lives of those impacted by Lennox-Gastaut Syndrome.
LGS Foundation Family & Professional Conference June 17-19, 2022
Thank You For Joining Us
2022 conference sessions provided attendees with clinical and research updates on Lennox-Gastaut Syndrome, along with information on emerging therapies, special needs resources, and topics related to quality of life. This event allowed the opportunity to foster new relationships and collaborations, both for families and professionals. New this year was our Sib Camp and fun activities for those with LGS.
Please note that these photos are for personal use only. These photos are not authorized to be used for commercial purposes.
7th International LGS Family Conference
Updated 07/22/26 (KK)

