International Family & Professional Conference

• 1 Adult – 3-Day: $250

• 1 Adult – 1-Day: $80

• 1 Adult – 3-Day: $400

• 1 Adult – 1-Day: $160

Children 17 and under, including individuals diagnosed with LGS, attend at no cost, but must still be included during registration.

Yes. A limited number of conference scholarships are available to help families who may not otherwise be able to attend.

Scholarship applications were open January 3–31, 2026.

Applicants will be notified by March 15, 2026.

Families awarded a scholarship will receive separate registration and hotel booking instructions. Please do not book travel or lodging until you receive confirmation.

The conference will be held at the Caribe Royale Orlando.

Families can book hotel accommodations through the official LGS Foundation room block:

👉 Click Here to Book Your Room Now

Rooms are available on a first-come, first-served basis until June 16, 2026, or until the room block sells out.

• Traditional King or Two Queens: $219/night (up to 4 guests)
• Suite upgrade: accommodates up to 5 guests (additional cost)

If you need an accessible room, please indicate this during the booking process.

• Sunshine Social: The Fun Starts Here (Thursday afternoon) – A welcoming space for families to gather with activities, games, snacks, and special character visits, offering a relaxed way to connect and kick off the conference together.
• Camp Small Steps (Friday night) – A new, optional family experience with gentle activities, creative play, and space to relax together. Families may come and go at their own pace.

• Celebration of Life Butterfly Release – A meaningful moment to honor our children, remember loved ones who have passed, and celebrate hope. Butterflies symbolize love, transformation, and connection

There will be no onsite childcare or patient care services provided at the 2026 Conference. Families should plan accordingly for their child’s care during sessions.

There will be no virtual attendance option for 2026. Sessions will be recorded and shared on the LGS Foundation website following the conference.

Speakers, exhibitors, and industry partners receive separate registration instructions and should not use the general family registration link unless directed.

Questions about registration type can be sent to info@LGSFoundation.org.

• Cancellations on or before June 1, 2026: refundable minus a $50 administrative fee
• Cancellations after June 1, 2026: nonrefundable

• No-shows are not eligible for refunds

Refunds are issued within 30 days to the original payment method.