Personal Stories

Sibling Spotlight

Addyson (age 11)

Hi my name is Addyson Gruber. I am 11 years old and I live in Cincinnati Ohio with my brother Braxtin, my mom Katie and my dad Mark, and Braxtin’s service dog, Dawson. I am going into the 6th grade…

More

Sibling Spotlight

Bennett (age 6)

Hi, my name is Bennett. I am six years old and in the 1st grade. I live in Leesburg, Va. I like to play soccer, build legos, build houses out of cardboard boxes, and play with my family and friends….

More

Tayla and Brian

Adopted mother to 16-year old Brian.

After nine years of teaching special education, Tayla decides it’s time for a change and hands in her resignation. The next day she meets her adoptive son, Brian. “ Brian was this frail, ornery, sickly little boy, and he started…

More

Sibling Spotlight

Tenley (age 10)

Hi, my name is Tenley. I am ten years old and in the 5th grade. I live in Leesburg, Va with my parents Carl, and Jeannie, my two brothers Bennett and Jackson, and our two dogs Hoop de Doo and…

More

Sue and Tony McCain

Parents to 23-year old Matthew, diagnosed with LGS at age seven.

The LGS journey is tough. Many families struggle with isolation, anxiety, and fear for the future. Sue and Tony explain that although their path has not been an easy one, they are grateful for each and every day with their…

More