International LGS Awareness Day

Join us on November 1st for International LGS Awareness Day Each year, the LGS Foundation organizes a social media campaign and in-person events worldwide to recognize International LGS Awareness Day.  In addition, more than 50 locations will Illuminate for LGS…

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LGS Research Roundtable

Every year, the LGS Foundation organizes the LGS Research Roundtable at the American Epilepsy Society’s annual meeting in an effort to #FreeTheData and share research updates from our grant recipients and research collaborations. 2021 Roundtable Agenda Come hear about the amazing…

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2022 LGS Family Conference in Dallas, Texas

Coming in 2022!  Every 18 months, the LGS Foundation organizes a comprehensive multi-day educational meeting. The conference brings together more than 350 LGS family members and epilepsy professionals from around the world to better understand the causes, treatments, and future…

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Patient Focused Drug Development (PFDD) Meeting

On November 1, 2019, the LGS Foundation convened the first patient-focused drug development meeting (PFDD) for the DEEs (developmental and epileptic encephalopathies) including Lennox-Gastaut Syndrome in College Park. Over 100 people ranging from patients, caregivers, FDA representatives, pharmaceutical companies, device…

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