Request a New Family Welcome Kit

Whether you’re new to LGS or new to the LGS Foundation, we are here to support you. New Family Welcome Kits are free to families and caregivers and provide educational materials to those who want to learn more about LGS….

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Personal Stories

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Get Connected & Supported

A diagnosis of LGS can be deeply unsettling and may leave you at a loss as to where to turn for help and guidance. We are here for you. In this section, you will find information, resources, and communities of…

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Clinical Trials in LGS

What is a Clinical Trial? Clinical trials and research studies are done to scientifically evaluate a medical or surgical intervention. They are the primary way that researchers find out if a new treatment, like a new drug, diet, surgery, or…

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A Message for New Families

On this journey, you are never alone. We Understand Regardless of the age at diagnosis, the Lennox-Gastaut Syndrome (LGS) journey can be overwhelming. You can rest assured that the LGS Foundation, our family ambassadors, and volunteers will be available as…

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