Our Financial Accountability

The LGS Foundation realizes the significance of financial transparency. We pride ourselves on maintaining operating expenses at a minimum to ensure that the generous gift of every donor truly brings us one step closer to our vision of ending the…

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Our Impact

The LGS Foundation is a nonprofit organization that acts as a convener of the LGS community. Since our inception in 2008, we have engaged and educated all of our community stakeholders – patient families, clinicians, researchers, industry partners, and others…

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Our Approach

In everything we do, our belief is that every child and adult deserves a chance to live life to the fullest. Our Vision To end the suffering and devastation caused by LGS.  Our Mission The LGS Foundation is a nonprofit…

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Our Story

When the LGS Foundation was founded in 2008, there was no community of support for families living with LGS. The founders had one goal — to improve the lives of those impacted by LGS. That’s where our story began. In…

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Our Partners

We are all in this together The LGS Foundation recognizes that by opening lines of communication, connecting patients, families, researchers, doctors, our fellow advocacy organizations, industry partners, regulators, policymakers, payors, and other community organizations, we can ensure resources are leveraged,…

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