For Professionals Archives

About LGS
- Like many rare conditions, Lennox-Gastaut Syndrome can be a complete mystery when you first hear about it. Explore this section to get a thorough understanding of LGS—including its causes, symptoms, diagnosis and treatment.
New to LGS
- A diagnosis of LGS is deeply unsettling and can leave you at a loss as to where to turn for help and guidance. We’re here for you. In this section you will find information, resources, and communities of support for the challenging road ahead.
For Families
- If a loved one is living with LGS, the entire family shares in the difficult journey. How can you keep them safe? Find appropriate medical care? Get the support you need? This section gives answers to these and other critical questions.
About Research
- Even as our understanding of LGS grows, there is so much more to learn. From research grants to conferences, from publications to voice of the patient family, this section provides avenues for furthering your knowledge and impact.
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2025 Grant Recipients – Emre Sezgin, Anup Patel, & Zach Grinspan

Artificial Intelligence for LGS and Epilepsy Registry Creation to Improve the Health Outcomes Highlights: Leverage advanced AI techniques to extract LGS-specific clinical data from electronic health records and create a scalable, AI-assisted registry. Aim to capture key LGS-related variables such…

Clinical Trials in LGS

What is a Clinical Trial? Clinical trials and research studies are done to scientifically evaluate a medical or surgical intervention. They are the primary way that researchers find out if a new treatment, like a new drug, diet, surgery, or…