Living with LGS is a marathon, not a sprint. Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great.  Not only do the needs...

“Rare Disease doesn’t come with a manual, it comes with a mother who never gives up!” Tune In – February 20 & 28, 2023 For A Special Segment Of Behind The Mystery Featuring LGS Foundation Executive Director, Tracy Dixon-Salazar, PhD  ...

Topic: Care Provider Shortages Is your loved one eligible for in-home nursing? Do you receive respite or other services that could either lighten your load a bit or improve your loved one's quality of life? Once you become eligible for...

Dad’s and our Male caregivers are the centers of the LGS Family. Join our exclusive support group for male caregivers and Dads as we talk, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and...

Guest Speaker: Dr. Pete Crino, MD Topic: Transitioning to Adulthood Parents of teens and adults with LGS!  Did you know there is such a thing as an ADULT EPILEPTOLOGIST?  If you want to meet one of these special unicorns of...

Topic: Celebrating Siblings The LGS siblings have seen it all from an early age - The seizures, the ER visits, the behaviors, the special occasions ruined by LGS,...and more. But most of them seem to possess a level of maturity, a...

Dad’s and our Male caregivers are the centers of the LGS Family. Join our exclusive support group for male caregivers and Dads as we talk, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and...

Living with LGS is a marathon, not a sprint. Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great.  Not only do the needs...