In this time of great uncertainty, as we strive to protect our families, communities, nation, and world from COVID-19, we want to publicly share our sincere appreciation for YOU, our LGS community. The LGS Foundation staff and Board of Directors are working tirelessly to continue to provide accurate information, facilitate family support programs, and continue research that will improve the lives of those affected by LGS.
Together, we support one another in the fight against LGS and COVID-19.
Important Information About Covid-19
U.S. Government information about Covid-19, how to protect yourself or what to do if you are sick.
Up to date, global information on Coronavirus (Covid-19)
Updated FAQs to address concerns regarding the COVID-19 outbreak.
For Families & Caregivers
Covid-19 & Your Loved One
Signs and symptoms of coronavirus (covid-19) and how to protect your family.
Señales y síntomas del Coronavirus (covid-19) y cómo proteger a su familia
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COVID-19: Information for Families of Children and Youth with Special Health Care Needs from the American Academy of Pediatrics
Brief article with resources for children with chronic conditions, disabilities, and medically complex conditions related to safety, therapy, and resilience
Brief article summarizing researchers’ ideas to help families, caregivers, and children cope during COVID-19
Kids pay attention to the news and what adults are saying. On Our Sleeves has expert resources and guides to help you manage life during COVID-19.
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How to Manage Disruptive and Harmful Behavior During Covid-19 (YouTube Video)
Common behavioral issues that families come up against, and strategies for dealing with these issues during the pandemic
Accessing Medical Care
Article published by the Autism Science Foundation includes information on co-occurring medical conditions like epilepsy.
Financial Assistance
Help for costs related to Covid-19
Critical Relief Program to provide much needed assistance to members of the rare community affected by the Covid-19 pandemic.
Prescription Assistance
Current and Resolved Drug shortages and Discontinuations Reported to the FDA
Struggling with the burden of paying for your medication? UCB offers several types of financial assistance for qualified patients.
The Epidiolex Copay Savings Program is expanding to better support eligible patients in response to the Covid-19 pandemic.
Information and resources to help patients access BANZEL
The SYMPAZAN Savings Card can help lower your out-of-pocket costs.
Eligible patients may receive a 14 day free trial as well as copay assistance.
Child Friendly Information
Short social story for explaining COVID-19 to children with learning or neuro differences.
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Helping your child develop hand-washing skills. (PDF)
Self-Care for Parents and Caregivers
Tools and Strategies for reducing Covid-19 related stress in your life.
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Feeling Overwhelmed with Parenting Demands? From the American Academy of Pediatrics
Strategies to help you manage expectations and practice self-care while effectively parenting
Important Covid-19 Webinars
Dr. Amanda Cothern shares tips for coping during the pandemic
Dr Tracy Dixon-Salazar, LGSF Director of Research and Strategy answers questions regarding Covid-19 and it's impact on the LGS community.
Dr. Anup Patel addresses pressing questions regarding healthcare and community needs during the pandemic.
Virtual Town Hall co-hosted by the LGS Foundation, TS Alliance & the Dravet Syndrome Foundation.
