Connect with LGS Families

Looking for support for LGS? 

Meet thousands of others who understand. 

You're Not Alone

The LGS Foundation moderates a social network group for those affected by LGS. Get the emotional support you need from others in similar circumstances, and gain practical advice and insights on managing treatment or therapies for LGS. Our network allows families to truly connect, make real friendships, and share daily ups and downs in a judgment-free place. Join our global community today. 

The LGSF also understands the importance of making local connections.

With the help of our LGS Family Ambassadors, we have created local/state support groups for families to connect and share local resources.

For information about groups in your area please email

LGS Canada Facebook Group


Facebook Group

Additional Support & Resources