Interested in Joining the Patient Navigator or Family Ambassador team?

The Lennox-Gastaut Syndrome (LGS) Foundation Patient Navigator & Family Ambassador Program is a dedicated group of empowered and caring volunteers who work closely with the LGS Foundation to ensure no one feels alone on this LGS journey.

The LGS Foundation is firmly grounded in the belief that everyone living with LGS should have access to the information, resources, and support they deserve, including a connection with others.

Do you have the heart to help others and a desire to give back? The LGSF is seeking caring individuals to assist with our growing community. As a Patient Navigator or Family Ambassador, you uniquely understand life with LGS. Sharing your experience positively impacts others, knowing they are not alone.

Patient Navigators and Family Ambassadors are committed to the LGS Foundation Mission and Vision as they:

  • Provide one-on-one support and mentorship upon completion of the new peer support training program.
  • Are an active part of our Facebook Support Community and monthly Support Groups facilitating connections for those newly diagnosed families and caregiver members who are seeking information on a specific topic.
  • Participate and attend virtual and in-person events, including fundraising for our family-centered programs.
  • Raise LGS Awareness through education, outreach, and collaboration
Be a part of our LGS Family Ambassador Team.  Apply below to begin the process!

Application Here

Please note that the LGSF understands the ongoing challenges of caring for someone with LGS. We understand that there will be times when life with LGS will interrupt ambassador responsibilities. We get it and will make it work for you. 

The information here is not intended to provide diagnosis, treatment, or medical advice and should not be considered a substitute for advice from a healthcare professional. The content provided is for informational purposes only. LGSF is not responsible for actions taken based on the information included on this webpage. Please consult with a physician or other healthcare professional regarding any medical or health related diagnosis or treatment options.

Updated 12/13/22