Interested in Becoming an Ambassador?

Thank you for being a voice for LGS! The LGS Foundation is currently seeking volunteers to join the LGS Family Ambassadors Program to represent the LGS Foundation in their regions.

Being an active Ambassador means that you will:

  • Be responsible for hosting two annual Meet UPs in your state or virtually. The LGS Foundation provides guidance and support to make those connections possible.
  • Connect with families in your state, to support and assist in finding resources and services in your local communities.
  • Offer ways to maintain contact and share Foundation news with local families
  • Be the voice of the families you serve. Bring the voice of those you serve and your creative ideas to quarterly meetings.
  • The LGSF also encourages Ambassadors to get involved in local and statewide advocacy efforts.
Be a part of our LGS Family Ambassador Team.  Apply below to begin the process!

Application Here

Please note that the LGSF understands the ongoing challenges of caring for someone with LGS. We understand that there will be times when life with LGS will interrupt ambassador responsibilities. We get it and will make it work for you. 

The information here is not intended to provide diagnosis, treatment, or medical advice and should not be considered a substitute for advice from a healthcare professional. The content provided is for informational purposes only. LGSF is not responsible for actions taken based on the information included on this webpage. Please consult with a physician or other healthcare professional regarding any medical or health related diagnosis or treatment options.


Updated 8/27/22