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LGS Foundation - Lennox Gastaut Syndrome
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Standing Together. Stronger Together.

  • About LGS
    • Like many rare conditions, Lennox-Gastaut Syndrome can be a complete mystery when you first hear about it. Explore this section to get a thorough understanding of LGS—including its causes, symptoms, diagnosis and treatment.

      • What is Lennox-Gastaut Syndrome?
      • What Causes LGS?
      • How is LGS Diagnosed?
      • How is LGS Treated?
      • How Many People Have LGS?
      • LGS and Infantile Spasms
      • Read LGS Stories
      • Glossary of Terms
      • Request Info & Materials
      • For Healthcare Professionals
  • New to LGS
    • A diagnosis of LGS is deeply unsettling and can leave you at a loss as to where to turn for help and guidance. We’re here for you. In this section you will find information, resources, and communities of support for the challenging road ahead.

      • A Message for New Families
      • Request a New Family Welcome Kit
      • Request an About LGS Treatments Kit
      • Find a Doctor or Comprehensive Care Center
      • Learn about Seizures & Safety
  • For Families
    • If a loved one is living with LGS, the entire family shares in the difficult journey. How can you keep them safe? Find appropriate medical care? Get the support you need? This section gives answers to these and other critical questions.

      • Get Connected and Supported
        • Caregiver Support
        • Sibling Support
        • Patient Navigators & Ambassadors
        • Patient Assistance Program
        • For Our Bereaved Families
      • Clinical Trials in LGS
      • LGS Learn From Every Patient Database
      • Join a Community Awareness Event
        • Family & Professional Conference
        • Walk ‘n’ Wheel for LGS Research
        • International LGS Awareness Day
      • LGS Learning and Resource Center
      • Request Information & Materials
      • Additional Resources
  • About Research
    • Even as our understanding of LGS grows, there is so much more to learn. From research grants to conferences, from publications to voice of the patient family, this section provides avenues for furthering your knowledge and impact.

      • Finding the Cures, Together
      • Cure LGS 365 Research Grants
        • Cure LGS 365 Research Grant Recipients
      • Voices of LGS and Natural History
      • For Healthcare Professionals
        • Key LGS Publications
      • Research Conferences
        • Patient-Focused Drug Development (PFDD) Meeting
        • LGS Meeting of the Minds
        • LGS Foundation Seminar Series
        • LGS Research Roundtable at AES
  • Get Involved
    • Host a fundraiser. Volunteer at an event. Shop our LGS store. These are just some of the ways you can lend your personal support to our mission. Check out this section to get started.

      • Share Your Story
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      • Attend an Event
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      • Ways to Give
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University of Colorado

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Aurora, CO 80045 United States
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LGS Foundation - Lennox Gastaut Syndrome

6030 Santo Road, Suite 1, Unit 420878
San Diego, CA 92142
info@lgsfoundation.org
(718) 374-3800

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A very special thank you to the TSC Alliance, Dravet Syndrome Foundation, and Child Neurology Foundation for assisting in preparing this website. This website is made possible through grants from our partners. Partners did not have a role in developing content. Thank you to:

Aquestive Eisai Jazz UCB

The information you obtain at this site is not, nor is it intended to be, medical advice. Full Disclaimer
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