About LGS
- Like many rare conditions, Lennox-Gastaut Syndrome can be a complete mystery when you first hear about it. Explore this section to get a thorough understanding of LGS—including its causes, symptoms, diagnosis and treatment.
New to LGS
- A diagnosis of LGS is deeply unsettling and can leave you at a loss as to where to turn for help and guidance. We’re here for you. In this section you will find information, resources, and communities of support for the challenging road ahead.
For Families
- If a loved one is living with LGS, the entire family shares in the difficult journey. How can you keep them safe? Find appropriate medical care? Get the support you need? This section gives answers to these and other critical questions.
About Research
- Even as our understanding of LGS grows, there is so much more to learn. From research grants to conferences, from publications to voice of the patient family, this section provides avenues for furthering your knowledge and impact.
Get Involved
- Host a fundraiser. Volunteer at an event. Shop our LGS store. These are just some of the ways you can lend your personal support to our mission. Check out this section to get started.
Give Now
Search

GO

Generic filters

Home / Findings from the LGS-CORE Study

Findings from the LGS-CORE Study

Latest Data from the Registry

Empowering Families, Advancing LGS Research.

The LGS & LGS-Related DEEs Collaborative Outcomes Registry (LGS-CORE) Study is a powerful tool for the LGS community to advance understanding of LGS, areas of unmet need, standards of care, and new therapies.

Your participation helps us uncover new insights into LGS. We’ve translated many of these findings into easy-to-understand articles for families.

Latest Data From the Registry

What do seizures look like in LGS?

Learn more about the LGS-CORE Study

Updated 09/30/26 (AM)