About LGS
- Like many rare conditions, Lennox-Gastaut Syndrome can be a complete mystery when you first hear about it. Explore this section to get a thorough understanding of LGS—including its causes, symptoms, diagnosis and treatment.
New to LGS
- A diagnosis of LGS is deeply unsettling and can leave you at a loss as to where to turn for help and guidance. We’re here for you. In this section you will find information, resources, and communities of support for the challenging road ahead.
For Families
- If a loved one is living with LGS, the entire family shares in the difficult journey. How can you keep them safe? Find appropriate medical care? Get the support you need? This section gives answers to these and other critical questions.
About Research
- Even as our understanding of LGS grows, there is so much more to learn. From research grants to conferences, from publications to voice of the patient family, this section provides avenues for furthering your knowledge and impact.
Get Involved
- Host a fundraiser. Volunteer at an event. Shop our LGS store. These are just some of the ways you can lend your personal support to our mission. Check out this section to get started.
Give Now
Search

GO

Generic filters

Home / Get Involved

Get Involved

The LGS Foundation is funding life-changing research to find the cures for LGS and is the leading source of information about LGS research, support, education, and therapies. The LGS Foundation continues to expand the network of clinicians and researchers dedicated to improving the lives of those impacted by LGS.

None of this would be possible without the continued support of the LGS community and we thank you! Below are some ways that you can get involved with the Foundation and give back to the LGS community.

Sign Up for Our Newsletter

Sign up for our email newsletter to stay up to date with the latest information on LGS.

Follow Us on Social Media

Follow us and share posts on social media to help raise awareness of LGS.

Share the Latest LGS Research News

Check out the latest LGS Research News

Share Your Story to Inspire Others

We want to hear from you! Your story can help others to understand what living with LGS is like and the effects it has on your family.

Volunteer

The LGS Foundation Volunteer Team is an easy way to get connected with a wide variety of opportunities at the LGS Foundation and within the LGS community.

Fundraise & Raise Awareness

The LGS Foundation is powered by our community of families, friends, and supporters. Together we can make a difference!

Advocate for Lennox-Gastaut Syndrome

Your voice is important. Join other LGS community members in advocating for government funding and support for LGS-related issues and causes.

Shop For the Cures

Give back to the LGS Foundation while doing the shopping you are already doing.

Share Your Thoughts with the LGS Foundation

Have a fun new idea, thoughts on research, or a new topic you’d like to know about? We would love to hear from you – email us at info@lgsfoundation.org!

Updated 12/02/24 (AM)