Apply for our Elevate Patient Assistance Program
The LGS Foundation’s Elevate Patient Assistance Program provides financial assistance to individuals with LGS to help pay for durable medical equipment not typically covered through insurance or other programs.
The LGSF Elevate Patient Assistance Program is open to residents in the United States, Canada, and the United Kingdom. The 2021 grant cycle opens in January 2021 and will remain open until all funds are depleted.
The maximum lifetime allowance per family is $1,500. Each family may apply for one award, covering up to three items.
Items currently covered under this program include:
- Durable medical equipment (such as helmets, wheelchairs, orthotics, cooling vests, etc.)
- Sensory Items (such as weighted blankets)
- Therapy Equipment (such as adaptive bikes)
- Communication Equipment (such as iPads)
- Seizure Alert Devices (provided in partnership with Danny Did Foundation)
If a request is made for an eligible item with a cost greater than $1,500 the LGSF will apply the awarded amount as the final payment towards that item.
If you are applying for an iPad, please note the assistance program only covers either an iPad (128GB, wifi only) or an iPad mini (256GB, wifi only). If you were granted funding for an iPad previously, there is a 4-year minimum before you may reapply for a new one. The LGSF does not provide AppleCare insurance, but you may choose to add it later at your own cost. We do suggest a durable cover be used to protect the device. This can be included as one of the three items on your application.
If the equipment you are interested in is not listed above, please contact with more details regarding the requested item(s) for eligibility review.
Our assistance application period begins each year in January, and we cannot accept applications prior to the beginning of each grant cycle. When funds are depleted for the year, the program will be closed until the next application cycle. Notification will be placed on our website. Complete applications will be reviewed and approved on a first-come, first-served basis.
Your application packet must include the following documentation:
- Completed application
- Utility Bill in your name
- A recent letter from the child’s physician or health care professional explaining the medical necessity of your request
- A letter of denial from the insurance provider stating that the requested equipment was denied (when applicable)
- Any additional documentation pertaining to the nature of your request
All submitted information is kept confidential.
By awarding this financial assistance, LGSF is making no recommendation as to the appropriateness or safety of a particular piece of equipment for persons with Lennox-Gastaut Syndrome, associated epilepsies, and other conditions. LGSF and its Board of Directors are not responsible for the safety and proper use of awarded equipment. Applicants are strongly encouraged to consult with medical professionals regarding the equipment requested. Application information will not be divulged without written consent from the applicant, parent, or legal guardian. We do ask that award recipients submit a photo showing the person with LGS using the equipment that may be used for awareness purposes for this grant program. Grant recipients will be identified by their first name only with the written permission of the parent or legal guardian.
For questions about this program, please email