Topic: IEPs & Back to School - Is Everything Going As Expected? This monthly meetup is available to LGS families who are members of the LGS Foundation Online Family Community. To join our online community and for login information,...
Dad’s and our Male caregivers are the centers of the LGS Family. Join our exclusive support group for male caregivers and Dads as we talk, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and...
Living with LGS is a marathon, not a sprint. Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs...
Halloween Masquerade Ball at Epilepsy Awareness Day at Disneyland Monday, October 31, 2022 | 6:00pm PT Disneyland Hotel Conference Center - Anaheim, CA Join us for the FIRST-EVER Halloween Masquerade Ball at Epilepsy Awareness Day at Disneyland, co-hosted by Sofie's...
Epilepsy Awareness Day at Disneyland Sleeping Beauty Pavilion Tuesday, November 1, 2022 | 11:00am - 12:00pm PT The LGS Foundation welcomes ALL caregivers from the Developmental Epileptic Encephalopathies (DEEs) Community as we gather to build our caregiver support network, share...
Join us in person or online to view "one, one thousand..." and hear talks by the artist/photographer and her sister Lori, mother of David, who is diagnosed with Lennox-Gastaut Syndrome. “one, one thousand…” is an unconventional documentary and a different...
This year for LGS awareness, I am hosting "Cooking for a Cure for LGS"! I have rented the pop-up shop at Borden Bargains. We'll have chili, vegetable soup, and chicken and dumplings, as well as a bake sale and snack...
Every Moment Matters Awareness Dinner Event Saturday, November 5, 2022 | 6:00pm PT Birch Aquarium - San Diego, CA Join us for an evening of making every moment matter. Celebrate with us as we raise funds to help families impacted...
The LGS Support Community- We Are Stronger Together The LGS community is growing rapidly, and we couldn't be happier that, finally, our families are finding us. Not all that long ago, this wasn't the case for LGS caregivers. We longed...
Dad’s and our Male caregivers are the centers of the LGS Family. Join our exclusive support group for male caregivers and Dads as we talk, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and...
Living with LGS is a marathon, not a sprint. Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs...
Advancing Clinical Research In LGS, Starting The Conversation Friday, December 2, 2022 | 11:00am CT One21 at Johnny Cash's Bar & BBQ - Nashville, TN Every year, the LGS Foundation organizes the LGS Research Roundtable at the American Epilepsy Society's...