About LGS
- Like many rare conditions, Lennox-Gastaut Syndrome can be a complete mystery when you first hear about it. Explore this section to get a thorough understanding of LGS—including its causes, symptoms, diagnosis and treatment.
New to LGS
- A diagnosis of LGS is deeply unsettling and can leave you at a loss as to where to turn for help and guidance. We’re here for you. In this section you will find information, resources, and communities of support for the challenging road ahead.
For Families
- If a loved one is living with LGS, the entire family shares in the difficult journey. How can you keep them safe? Find appropriate medical care? Get the support you need? This section gives answers to these and other critical questions.
About Research
- Even as our understanding of LGS grows, there is so much more to learn. From research grants to conferences, from publications to voice of the patient family, this section provides avenues for furthering your knowledge and impact.
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- Host a fundraiser. Volunteer at an event. Shop our LGS store. These are just some of the ways you can lend your personal support to our mission. Check out this section to get started.
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Caregiver of Adults with LGS – December Support Group Meeting

Name: Caregiver of Adults with LGS – December Support Group Meeting
Start: 2025-12-22T20:00:00-05:00
End: 2025-12-22T21:00:00-05:00
Location: Virtual

December 22 @ 8:00 pm - 9:00 pm EST

Join us Monday, December 22nd at 8 pm ET

Living with LGS is a marathon, not a sprint.

Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)

Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.

To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Details

Date:: December 22
Time:: 8:00 pm - 9:00 pm EST

Organizer

: LGS Foundation Family Support
Email: FamilySupport@LGSFoundation.org

Venue

: Virtual