LGS Foundation

Living with LGS is a marathon, not a sprint. Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great.  Not only do the needs...

Topic: Care Provider Shortages Is your loved one eligible for in-home nursing? Do you receive respite or other services that could either lighten your load a bit or improve your loved one's quality of life? Once you become eligible for...

Guest Speaker: Dr. Pete Crino, MD Topic: Transitioning to Adulthood Parents of teens and adults with LGS!  Did you know there is such a thing as an ADULT EPILEPTOLOGIST?  If you want to meet one of these special unicorns of...

Topic: Celebrating Siblings The LGS siblings have seen it all from an early age - The seizures, the ER visits, the behaviors, the special occasions ruined by LGS,...and more. But most of them seem to possess a level of maturity, a...

Living with LGS is a marathon, not a sprint. Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great.  Not only do the needs...

Join us in Tampa, FL at our 8th Annual Walk 'n' Wheel for LGS as we Step Towards a Cure, Together! Each year, hundreds of community members come together in person and virtually to raise funds for the LGS Foundation's "Finding...

Join Us in Kannapolis, NC at our 8th Annual Walk 'n' Wheel for LGS. Every year hundreds of community members come together in person and virtually to raise awareness and funds for the LGS Foundation's "Finding the Cures, Together" Research...

Necessity is the Mother of Invention in the DIY world of LGS. Do you have a clever invention? A household go-to tip? Or do you need some cost-effective ideas on how to solve a challenge? Bring your homespun ideas to...

Living with LGS is a marathon, not a sprint. Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great.  Not only do the needs...