Media
Media Contact
Media members and anyone seeking more information about Lennox-Gastaut Syndrome or the LGS Foundation can direct inquiries to info@lgsfoundation.org.
LGS in the News
August 15, 2025 - Source: USA Today
These parents don't only fear the death of their child. They fear dying first.
April 3, 2025 - Source: US Magazine
Inside Tristan Thompson’s Life as Brother Amari’s Legal Guardian Amid Lennox-Gastaut Syndrome
October 29, 2024 - Source: Loudon Times
Leesburg family aims to raise awareness about son's rare disease
May 1, 2024 - Source: The Balancing Act
Behind the Mystery Community Member, Dr. Tracy Dixon Salazar’s Journey with LGS Advocacy
April 22, 2024 - Source: TODAY
Her daughter had 300 seizures a month. So a mom earned a Ph.D. and found a treatment for her
Aired February 20, 2023 - Source: The Balancing Act on Lifetime TV
The Lennox-Gastaut Syndrome Foundation: Working Together to Find a Cure
Aired November 1, 2021 - Source: The Balancing Act on Lifetime TV
A Mom’s Journey to Understand Her Daughter’s Rare Disease
Press Release Archive
December 2, 2024
Lennox-Gastaut Syndrome (LGS) to be a Major Focus at the 2024 American Epilepsy Society Meeting in Los Angeles
October 17, 2024
New Los Angeles Musical Highlights One Family’s Struggle to Live With Epilepsy and Lennox-Gastaut Syndrome
October 15, 2024
Lennox-Gastaut Syndrome (LGS) Foundation Announces International LGS Awareness Day on November 1st, Kicking Off Epilepsy Awareness Month
September 18, 2024
Beacon Launches HEADFIRST Clinical Trial to Study Sleep EEG in Pediatric Developmental Disorders, Partners with LGS Foundation
August 8, 2024
Lennox-Gastaut Syndrome (LGS) Foundation’s Advocates for LGS Program Brings Awareness to Rare Disease
October 26, 2023
International Lennox-Gastaut Syndrome (LGS) Awareness Day, November 1st, Will Kick Off Epilepsy Awareness Month
May 1, 2023
Lennox-Gastaut Syndrome (LGS) Foundation Hosts 8th Annual Walk ‘n’ Wheel for LGS Research
April 14, 2023
Lennox-Gastaut Syndrome (LGS) Foundation Launches Educational Kits for Caregivers to Learn about Treatments
February 16, 2023
For Rare Disease Day, Behind the Mystery of Lennox-Gastaut Syndrome is airing on Lifetime TV February 20th and 28th
October 27, 2022
International Lennox-Gastaut Syndrome (LGS) Awareness Day, November 1st, to Kick Off Epilepsy Awareness Month
October 13, 2022
Lennox-Gastaut Syndrome Foundation Hosts Every Moment Matters Awareness Dinner to Help Families with Severe Epilepsy
March 22, 2022
7th Annual Lennox-Gastaut Syndrome (LGS) Walk is Raising Critical Funds for Research on Purple Day, March 26th
February 28, 2022
LGS Foundation Debuts Novel Scientific Research Grant Program on Rare Disease Day
September 8, 2021
First-ever LGS Research Meeting of the Minds is Scheduled for September 13-14 with a Family Research Day on September 18.
May 31, 2021
Sixth Annual LGS Walk Scheduled for June 5 Raising Critical Funds for Research
February 1, 2021
Seizure Action Plan Awareness Week Scheduled for February 8-14
December 3, 2020
LGS Foundation Announces New Executive Director
November 1, 2020
New Coalition Launches to Promote Importance of Seizure Emergency Plans
October 29, 2020
LGS Awareness Day to Kick Off Epilepsy Awareness Month
Updated 08/15/25 (AM)