About LGS Treatments Kits

For families considering "What's Next" in treatment

This comprehensive kit contains information on current treatments, clinical trials, and tips on maximizing your time with your loved one’s healthcare team.

Please note that given the comprehensive nature of this kit, it might be overwhelming to some. Take your time reading through all the materials, come back to them as many times as you need to, and know you are not alone. We are here if you have any questions. 

DOWNLOAD THE FULL KIT 

  • Due to high postage costs, kits are only mailed to U.S. residents at this time.
  • If requesting a kit by mail, please limit to one per household.

About LGS Treatments Kit Contents Include:



About LGS Treatments Kits are available to LGS Families at no charge, thanks to support from Our 2026 Partners:

Updated 07/08/26 (AM)