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DTSTART;VALUE=DATE:20260401
DTEND;VALUE=DATE:20260501
DTSTAMP:20260403T230425
CREATED:20251217T221122Z
LAST-MODIFIED:20260123T203528Z
UID:10000253-1775001600-1777593599@www.lgsfoundation.org
SUMMARY:2026 Walk for LGS Research
DESCRIPTION:Together for a Breakthrough\nApril 2026 is Walk Month for Lennox-Gastaut Syndrome\, a month-long movement that expands the Walk beyond just one day—giving families\, advocates\, and supporters everywhere more ways to walk\, wheel\, and make an impact. \nWalk your way. In your community. Together for a breakthrough. \n\n\nGet Involved\nWalk for LGS Research takes place throughout April—on your own\, with others\, in your community\, or virtually—bringing people together to raise awareness\, build connection\, and fuel critical LGS research. \nWhether you participate in an existing walk\, join virtually\, or walk on your own\, every step moves the mission forward. \n➕ Add Walk for LGS Research to your calendar\nStay connected to Walk Month moments\, stories\, and ways to participate throughout April. \n📍 Host a local Walk for LGS Research event \n\n\nHost a Walk in Your Community\nHosting a Walk for LGS Research event is a powerful way to bring families and supporters together\, increase visibility for LGS\, and help accelerate research. \nNo large event required.No set distance.Just your community—showing up together. \nApply to host a local Walk  \n\nWhy We Walk\nEvery step taken during Walk for LGS Research helps support the LGS Foundation’s Finding the Cures\, Together research program\, advancing collaborative research that could lead to real breakthroughs for the LGS community. \nJoin the global movement this April.
URL:https://www.lgsfoundation.org/event/2026-walk-for-lgs-research/
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2021/04/2026-WalkforLGS-Research.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260401
DTEND;VALUE=DATE:20260501
DTSTAMP:20260403T230425
CREATED:20260318T170315Z
LAST-MODIFIED:20260318T170315Z
UID:10000275-1775001600-1777593599@www.lgsfoundation.org
SUMMARY:Neurelis Walk for LGS Research - Private Event
DESCRIPTION:About This Walk\nThis April\, Nuerelis is joining the global movement for Lennox-Gastaut Syndrome (LGS) by hosting a private\, month-long Walk for LGS Research initiative. \nAs an industry partner\, their team is coming together throughout April to raise awareness\, support families\, and help drive critical research forward. \nWhile this is a private\, internal event\, the impact reaches far beyond their organization — contributing to a collective effort happening across communities worldwide. \n\nSupport Their Impact\nEven though this is a private event\, you can still be part of the movement. \nSupport the LGS Foundation’s Walk for LGS Research Campaign
URL:https://www.lgsfoundation.org/event/neurelis-walk-for-lgs-research-private-event/
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2021/04/2026-WalkforLGS-Research-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260411T090000
DTEND;TZID=America/New_York:20260411T110000
DTSTAMP:20260403T230425
CREATED:20260312T144316Z
LAST-MODIFIED:20260327T143347Z
UID:10000273-1775898000-1775905200@www.lgsfoundation.org
SUMMARY:Color Run & Walk for LGS Research – Winter Garden\, Florida
DESCRIPTION:About This Walk\nJoin us in Winter Garden for a Color Run & Walk for LGS Research — a joyful community event filled with color\, connection\, and purpose. \nThis event began four years ago to honor Jacob\, an incredible LGS warrior\, and it continues to grow each year as more families\, friends\, and local businesses come together to support the Lennox-Gastaut Syndrome community. \nParticipants can walk\, run\, or complete laps at their own pace while enjoying a colorful experience that celebrates strength\, awareness\, and hope. \n💜 Together\, we step forward for a breakthrough. \nRegister to Join Us  \nSupport Our Fundraising Efforts  \n\nTicket & Guest Information\nAdults (18+): $10Children (17 & under): FreePeople living with LGS: Free \nEveryone is welcome. Please register each guest so we can plan accordingly. \n\nWhat to Expect\nRun/Walk Route: Participants may complete as many laps as they wish during the event. \nActivities & Community Fun:• Color Run experience• Free food for attendees• Local vendors and community supporters• A welcoming space to connect with other LGS families and supporters
URL:https://www.lgsfoundation.org/event/color-run-walk-for-lgs-research-winter-garden-florida/
LOCATION:Waterleigh Sports Field\, 10697 Atwater Bay Drive\, Winter Garden\, FL\, 34787\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2026/03/Winter-Garden-Florida-WalkForLGS.png
ORGANIZER;CN="Kristyn Baker":MAILTO:orestesdawn@gmail.com
GEO:28.4122718;-81.6438371
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Waterleigh Sports Field 10697 Atwater Bay Drive Winter Garden FL 34787 United States;X-APPLE-RADIUS=500;X-TITLE=10697 Atwater Bay Drive:geo:-81.6438371,28.4122718
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260411T093000
DTEND;TZID=America/New_York:20260411T110000
DTSTAMP:20260403T230425
CREATED:20260330T152112Z
LAST-MODIFIED:20260402T141200Z
UID:10000288-1775899800-1775905200@www.lgsfoundation.org
SUMMARY:Walk for LGS Research – Hudson\, Florida
DESCRIPTION:About This Walk\nJoin family and friends for a Walk for LGS Research with Deven in Hudson\, Florida. This smaller\, community-centered gathering is an opportunity to come together\, raise awareness\, and support those living with Lennox-Gastaut Syndrome. \nWhether you walk the full route or simply spend time connecting\, this event is about showing up\, sharing support\, and standing together. \n💜 Together\, we step forward for a breakthrough. \nRegister to Attend \nSupport Our Fundraising Efforts \n\nTicket & Guest Information\n\nAdults (18+): $10\nChildren (17 & under): Free\nPeople living with LGS: Free\n\nEveryone is welcome. Please register each guest so we can plan food and activities. \n\nWhat to Expect\nWalk Distance: Approximately 1 mile \nCommunity Gathering:• A relaxed\, supportive walk with family and friends• Light snacks provided • Time to connect and raise awareness for LGS• A meaningful way to support Deven and others living with LGS \n\nAccessibility & Comfort\n• Smooth\, paved walk paths (wheelchair & stroller accessible)• Onsite accessible restrooms• Covered shelter available in case of inclement weather• Ample parking available• Dogs welcome on leash \n\nWalk Shirts & Hoodies\nPlanning to attend this walk? Grab an official Walk for LGS Research shirt or hoodie and wear it at your event to help show support and raise awareness for Lennox-Gastaut Syndrome. \nShop the collection \nOrder early to receive your gear before the walk.
URL:https://www.lgsfoundation.org/event/walk-for-lgs-research-hudson-florida/
LOCATION:Veterans Memorial Park\, 14330 Hicks Rd\, Hudson\, FL\, 34669\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2026/03/Hudson-Florida-WalkForLGS.png
ORGANIZER;CN="Lesa McLeod":MAILTO:steelersrock1224@gmail.com
GEO:28.366136;-82.648801
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Veterans Memorial Park 14330 Hicks Rd Hudson FL 34669 United States;X-APPLE-RADIUS=500;X-TITLE=14330 Hicks Rd:geo:-82.648801,28.366136
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260414T200000
DTEND;TZID=America/New_York:20260414T210000
DTSTAMP:20260403T230425
CREATED:20260325T142737Z
LAST-MODIFIED:20260325T143010Z
UID:10000276-1776196800-1776200400@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - April Support Group Meeting
DESCRIPTION:Join us for our monthly Standing Together. Stronger Together. caregiver support group. \nTopic: Let’s Talk About Siblings 💙As caregivers\, so much of our time and energy goes into supporting our child with Lennox-Gastaut Syndrome\, while many of us are also raising (or have raised) other children who need us just as deeply. Along the way\, it’s natural to feel a mix of emotions\, including guilt and concerns about their future. \nThis month\, let’s come together to recognize\, support\, and celebrate the siblings who share this journey with us. \nThis group offers a welcoming space to share\, listen\, and connect with other caregivers who understand. \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-april-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/03/2023-Graphic-Jens-Group-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260416T200000
DTEND;TZID=America/New_York:20260416T210000
DTSTAMP:20260403T230425
CREATED:20260325T155641Z
LAST-MODIFIED:20260325T155641Z
UID:10000282-1776369600-1776373200@www.lgsfoundation.org
SUMMARY:Grupo de Esperanza – Reunión de Apoyo de Abril
DESCRIPTION:Únase a nuestro grupo de apoyo mensual Grupo de Esperanza\, un espacio acogedor para familias y cuidadores de personas con síndrome de Lennox-Gastaut. \nEste grupo brinda la oportunidad de compartir experiencias\, encontrar apoyo y conectarse con otros que comprenden este camino. \nYa sea que desee compartir o simplemente escuchar\, usted es bienvenido. \n\nEste grupo de apoyo mensual está disponible para las familias con LGS que sean miembros de la Comunidad de Apoyo en Línea para Cuidadores de la LGS Foundation. \nPara unirse a nuestra comunidad en línea y obtener la información de acceso\, por favor visite nuestro grupo en www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-reunion-de-apoyo-de-abril/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260417T110000
DTEND;TZID=America/New_York:20260417T113000
DTSTAMP:20260403T230425
CREATED:20260312T183411Z
LAST-MODIFIED:20260318T170703Z
UID:10000274-1776423600-1776425400@www.lgsfoundation.org
SUMMARY:RHA Health Services Walk for LGS Research - Private Event
DESCRIPTION:About This Walk\nThis private Walk for LGS Research event is being hosted by the team at RHA Health Services to celebrate and support individuals living with Lennox-Gastaut Syndrome in their care. \nStaff members and community home residents will come together to walk around the facility\, raise awareness for LGS\, and celebrate the strength of the individuals they support. \n💜 Together\, we step forward for a breakthrough. \n\nEvent Information\nThis event is a private gathering for RHA Health Services staff and residents and is not open to the public. \n\nWhat to Expect\nWalk Route: Around the RHA Health Services facility \nCommunity Gathering:• A supportive walk honoring individuals living with LGS• Staff and residents coming together to raise awareness• A meaningful opportunity to celebrate and recognize the LGS community
URL:https://www.lgsfoundation.org/event/walk-for-lgs-research-newton-north-carolina/
LOCATION:RHA Health Services\, 1754 GKN Way\, Newton\, NC\, 28658\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2026/03/Newton-North-Carolina-WalkForLGS.png
ORGANIZER;CN="Miranda Desmond":MAILTO:miranda.desmond@rhanet.org
GEO:35.602532;-81.21733
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=RHA Health Services 1754 GKN Way Newton NC 28658 United States;X-APPLE-RADIUS=500;X-TITLE=1754 GKN Way:geo:-81.21733,35.602532
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260418T103000
DTEND;TZID=America/New_York:20260418T140000
DTSTAMP:20260403T230425
CREATED:20260203T192417Z
LAST-MODIFIED:20260316T141601Z
UID:10000267-1776508200-1776520800@www.lgsfoundation.org
SUMMARY:Walk for LGS Research – Leesburg\, Virginia
DESCRIPTION:About This Walk\nJoin fellow LGS families\, caregivers\, and advocates as we walk\, roll\, ride\, and stroll together in Leesburg. This local Walk for LGS Research event is centered on connection — meeting families who understand the journey\, sharing stories\, raising awareness\, and spending time together in an accessible\, family-friendly space. \n💜 Together\, we step forward for a breakthrough. \nRegister to Join Us \nSupport Our Fundraising Efforts  \n\nTicket & Guest Information\n\nAdults (18+): $10\nChildren (17 & under): Free\nPeople living with LGS: Free\n\nEveryone is welcome. Please register each guest so we can plan accordingly. \n\nWhat to Expect\n\nWalk Distance: Details coming soon\nCommunity Gathering: A welcoming space to connect with other LGS families and supporters\nActivities: Accessible playground and family-friendly fun\n\n\nAccessibility & Comfort\n\nSmooth\, paved walk paths (wheelchair & stroller accessible)\nOn-site accessible restrooms\nCovered shelter available in case of inclement weather\nAmple parking available\nDogs welcome on leash\n\n\nWalk Shirts & Hoodies\nPlanning to attend this walk? Grab an official Walk for LGS Research shirt or hoodie and wear it at your event to help show support and raise awareness for Lennox-Gastaut Syndrome. \nShop the collection \nOrder early to receive your gear before the walk.
URL:https://www.lgsfoundation.org/event/walk-for-lgs-research-leesburg-virginia/
LOCATION:Douglass Community Center Park\, 407 E. Market Street\, Leesburg\, VA\, 20176\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2026/02/Leesburg-VA-WalkForLGS-2.png
ORGANIZER;CN="Jeannie Schnur":MAILTO:jeannieschnur@gmail.com
GEO:39.11598;-77.55878
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Douglass Community Center Park 407 E. Market Street Leesburg VA 20176 United States;X-APPLE-RADIUS=500;X-TITLE=407 E. Market Street:geo:-77.55878,39.11598
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260419T100000
DTEND;TZID=America/Chicago:20260419T130000
DTSTAMP:20260403T230425
CREATED:20260211T154231Z
LAST-MODIFIED:20260327T140733Z
UID:10000269-1776592800-1776603600@www.lgsfoundation.org
SUMMARY:Walk for LGS Research – Willow Springs\, Illinois
DESCRIPTION:About This Walk\nJoin Chicago-area LGS families\, caregivers\, and supporters as we walk\, roll\, and stroll together at the beautiful Little Red Schoolhouse Nature Center. This local Walk for LGS Research event is centered on connection\, awareness\, and community — bringing families together who understand the journey while supporting critical research and advocacy efforts. \n💜 Together\, we step forward for a breakthrough. \nRegister to Join Us \nSupport Our Fundraising Efforts \n\nTicket & Guest Information\n\nAdults (18+): $10\nChildren (17 & under): Free\nPeople living with LGS: Free\n\nEveryone is welcome. Please register each guest so we can plan accordingly. \n\nWhat to Expect\n\nWalk Distance: Approximately 2.5 miles (flexible and family-friendly)\nCommunity Gathering: Meet other local LGS families and supporters\nActivities: Picnic tables\, playground access\, and time to connect in a natural setting\nDoor Prizes & Giveaways: Fun opportunities to win items throughout the event\n\n\nAccessibility & Comfort\n\nSmooth\, paved walk paths (wheelchair & stroller accessible)\nOn-site accessible restrooms\nAmple parking available\nPicnic tables and playground on site\n\nPlease note: Dogs are not permitted on the trails (service animals allowed). \n\nWalk Shirts & Hoodies\nPlanning to attend this walk? Grab an official Walk for LGS Research shirt or hoodie and wear it at your event to help show support and raise awareness for Lennox-Gastaut Syndrome. \nShop the collection \nOrder early to receive your gear before the walk.
URL:https://www.lgsfoundation.org/event/walk-for-lgs-research-willow-springs-illinois/
LOCATION:Little Red Schoolhouse Nature Center Trails\, 9800 Willow Springs Rd\, Willow Springs\, IL\, 60480\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2026/02/Santa-Barbara-CA-WalkForLGS-1.png
ORGANIZER;CN="Kathy Herrera":MAILTO:mskatwendling@gmail.com
GEO:41.709265;-87.875625
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Little Red Schoolhouse Nature Center Trails 9800 Willow Springs Rd Willow Springs IL 60480 United States;X-APPLE-RADIUS=500;X-TITLE=9800 Willow Springs Rd:geo:-87.875625,41.709265
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260421T200000
DTEND;TZID=America/New_York:20260421T210000
DTSTAMP:20260403T230425
CREATED:20260325T152002Z
LAST-MODIFIED:20260325T152153Z
UID:10000279-1776801600-1776805200@www.lgsfoundation.org
SUMMARY:Dad to Dad - April Support Group Meeting
DESCRIPTION:Hosted by dads\, for dads. \nJoin our Dad to Dad support group\, a space created specifically for male caregivers navigating the LGS journey. This group offers an opportunity to connect\, share experiences\, and support one another in an open\, understanding environment. \nWhether you feel like talking or just listening\, you’re welcome here. \nBring your favorite beverage and take some time for yourself. \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-april-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260425T100000
DTEND;TZID=America/Los_Angeles:20260425T140000
DTSTAMP:20260403T230425
CREATED:20260211T152321Z
LAST-MODIFIED:20260319T191645Z
UID:10000268-1777111200-1777125600@www.lgsfoundation.org
SUMMARY:Walk for LGS Research – Santa Barbara\, California
DESCRIPTION:About This Walk\nJoin us for our first Southern California Walk for LGS Research as families\, friends\, and supporters come together along the beautiful Santa Barbara coastline. We’ll walk along the cliffs overlooking the Pacific Ocean to raise awareness for our loved ones living with Lennox-Gastaut Syndrome and celebrate the strength of our community. \nFollowing the walk\, we’ll gather at the picnic area for lunch\, games\, and time to connect. \n💜 Together\, we step forward for a breakthrough. \nRegister to Join Us \nSupport Our Fundraising Efforts \n\nTicket & Guest Information\n\nAdults (18+): $10\nChildren (17 & under): Free\nPeople living with LGS: Free\n\nEveryone is welcome. Please register each guest so we can plan accordingly. \n\nWhat to Expect\n\nWalk Distance: Approximately 1 mile (flexible and family-friendly)\nScenic Walk: Paved paths along the shoreline with ocean views\nActivities: Door prizes\, picnic lunch\, games\, and connection time following the walk\n\n\n\nFree parking is available in a nearby lot and on residential streets. \n\nAccessibility & Comfort\n\nSmooth\, paved walk paths (wheelchair & stroller accessible)\nOn-site accessible restrooms\nAmple parking available nearby\nDogs permitted on leash\n\n\nWalk Shirts & Hoodies\nPlanning to attend this walk? Grab an official Walk for LGS Research shirt or hoodie and wear it at your event to help show support and raise awareness for Lennox-Gastaut Syndrome. \nShop the collection \nOrder early to receive your gear before the walk.
URL:https://www.lgsfoundation.org/event/walk-for-lgs-research-santa-barbara-california/
LOCATION:Shoreline Park (Picnic Area)\, Shoreline Dr. & Santa Rosa Place\, Santa Barbara\, CA\, 93109\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2026/02/Santa-Barbara-CA-WalkForLGS.png
ORGANIZER;CN="Jennifer Griffin":MAILTO:Jen@LGSFoundation.org
GEO:34.39693;-119.707065
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Shoreline Park (Picnic Area) Shoreline Dr. & Santa Rosa Place Santa Barbara CA 93109 United States;X-APPLE-RADIUS=500;X-TITLE=Shoreline Dr. & Santa Rosa Place:geo:-119.707065,34.39693
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260425T103000
DTEND;TZID=America/New_York:20260425T130000
DTSTAMP:20260403T230425
CREATED:20260310T154844Z
LAST-MODIFIED:20260310T165026Z
UID:10000270-1777113000-1777122000@www.lgsfoundation.org
SUMMARY:Walk for LGS Research - Kannapolis\, North Carolina
DESCRIPTION:About This Walk\nJoin fellow LGS families\, caregivers\, and advocates as we walk\, roll\, ride\, and stroll together in Kannapolis. This local Walk for LGS Research event is centered on connection — meeting families who understand the journey\, sharing stories\, raising awareness\, and spending time together in a welcoming community space. \n💜 Together\, we step forward for a breakthrough. \nRegister to Join Us \n\nTicket & Guest Information\n\nAdults (18+): $10\nChildren (17 & under): Free\nPeople living with LGS: Free\n\nEveryone is welcome. Please register each guest so we can plan food and activities. \n\nWhat to Expect\nWalk Distance: Route details coming soon\nCommunity Gathering:A welcoming space to connect with other LGS families\, caregivers\, and supporters. \n\nWalk Shirts & Hoodies\nPlanning to attend this walk? Grab an official Walk for LGS Research shirt or hoodie and wear it at your event to help show support and raise awareness for Lennox-Gastaut Syndrome. \nShop the collection \nOrder early to receive your gear before the walk.
URL:https://www.lgsfoundation.org/event/walk-for-lgs-research-kannapolis-north-carolina/
LOCATION:Village Park\, 700 W C St\, Kannapolis\, NC\, 28081\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2026/03/Kannapolis-NC-WalkForLGS.png
ORGANIZER;CN="Cynthia Lyons":MAILTO:cynthialyons56@gmail.com
GEO:35.502895;-80.6318053
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Village Park 700 W C St Kannapolis NC 28081 United States;X-APPLE-RADIUS=500;X-TITLE=700 W C St:geo:-80.6318053,35.502895
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/North_Dakota/Center:20260425T110000
DTEND;TZID=America/North_Dakota/Center:20260425T140000
DTSTAMP:20260403T230425
CREATED:20260311T212101Z
LAST-MODIFIED:20260327T140256Z
UID:10000272-1777114800-1777125600@www.lgsfoundation.org
SUMMARY:Walk for LGS Research – Emporia\, Kansas
DESCRIPTION:About This Walk\nJoin fellow LGS families\, caregivers\, and advocates as we walk\, roll\, ride\, and stroll together in Emporia. This local Walk for LGS Research event is centered on connection — bringing families together to raise awareness\, support one another\, and spend meaningful time as a community. \n💜 Together\, we step forward for a breakthrough. \nRegister to Join Us \nSupport Our Fundraising Efforts \n\nTicket & Guest Information\nAdults (18+): $10Children (17 & under): FreePeople living with LGS: Free \nEveryone is welcome. Please register each guest so we can plan accordingly. \n\nWhat to Expect\nWalk Distance: Route details coming soon \nCommunity Activities:• Walk and community cookout• Activities for siblings and families• Opportunities to learn more about epilepsy safety and awareness \nFamilies will also have the opportunity to take home a “Blessing Box” — a small collection of resources and party favors as a reminder that they are not alone on this journey. \n\nWalk Shirts & Hoodies\nPlanning to attend this walk? Grab an official Walk for LGS Research shirt or hoodie and wear it at your event to help show support and raise awareness for Lennox-Gastaut Syndrome. \nShop Walk Gear \nOrder early to receive your gear before the walk.
URL:https://www.lgsfoundation.org/event/walk-for-lgs-research-emporia-kansas/
LOCATION:Soden’s Grove Park\, 1000 S Commercial Street\, Emporia\, KS\, 66801\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2026/03/Emporia-Kansas-WalkForLGS.png
ORGANIZER;CN="Bertha Guillen":MAILTO:bertha.guillen620@gmail.com
GEO:38.38527;-96.181241
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Soden’s Grove Park 1000 S Commercial Street Emporia KS 66801 United States;X-APPLE-RADIUS=500;X-TITLE=1000 S Commercial Street:geo:-96.181241,38.38527
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Phoenix:20260425T110000
DTEND;TZID=America/Phoenix:20260425T150000
DTSTAMP:20260403T230425
CREATED:20260203T182311Z
LAST-MODIFIED:20260319T191040Z
UID:10000266-1777114800-1777129200@www.lgsfoundation.org
SUMMARY:Walk for LGS Research – Littleton\, Colorado
DESCRIPTION:About This Walk\nJoin fellow LGS families\, caregivers\, and advocates as we walk\, roll\, ride\, and stroll together around Johnson Reservoir. This local Walk for LGS Research event is centered on connection — meeting families who understand the journey\, sharing stories\, raising awareness\, and spending time together in an accessible\, family-friendly space. \n💜 Together\, we step forward for a breakthrough. \nRegister to Join Us \nSupport Our Fundraising Efforts  \n\nTicket & Guest Information\n\nAdults (18+): $10\nChildren (17 & under): Free\nPeople living with LGS: Free\n\nEveryone is welcome. Please register each guest so we can plan food and activities. \n\nWhat to Expect\n\nWalk Distance: 1.4 miles around Johnson Reservoir\nFood Provided: Hamburgers\, hot dogs\, chips & drinks\nActivities: Door prizes\, activities\, and family-friendly fun\n\n\nAccessibility & Comfort\n\nSmooth\, paved walk paths (wheelchair & stroller accessible)\nADA-accessible bathrooms\nWheelchair-accessible playground\nCovered shelter available in case of inclement weather\nDogs welcome on leash\n\n\nWalk Shirts & Hoodies\nPlanning to attend this walk? Grab an official Walk for LGS Research shirt or hoodie and wear it at your event to help show support and raise awareness for Lennox-Gastaut Syndrome. \nShop the collection \nOrder early to receive your gear before the walk.
URL:https://www.lgsfoundation.org/event/walk-for-lgs-research-littleton-colorado/
LOCATION:Clement Park Shelter 1\, 7306 W Bowles Ave\, Littleton\, CO\, 80911\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2026/02/2026-WalkforLGS-Research-5.png
ORGANIZER;CN="Jordan Bradley":MAILTO:bradleyjordan26@gmail.com
GEO:39.60163;-105.07372
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Clement Park Shelter 1 7306 W Bowles Ave Littleton CO 80911 United States;X-APPLE-RADIUS=500;X-TITLE=7306 W Bowles Ave:geo:-105.07372,39.60163
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260425T120000
DTEND;TZID=America/New_York:20260425T150000
DTSTAMP:20260403T230425
CREATED:20260310T193915Z
LAST-MODIFIED:20260310T231815Z
UID:10000271-1777118400-1777129200@www.lgsfoundation.org
SUMMARY:Walk for LGS Research – Tilton\, New Hampshire
DESCRIPTION:About This Walk\nJoin fellow LGS families\, caregivers\, and advocates as we walk\, roll\, ride\, and stroll together in Tilton. This local Walk for LGS Research event is centered on connection — meeting families who understand the journey\, sharing stories\, raising awareness\, and spending time together in a welcoming community space. \n💜 Together\, we step forward for a breakthrough. \nRegister to Join Us  \nSupport Our Fundraising Efforts  \n\nTicket & Guest Information\nAdults (18+): $10Children (17 & under): FreePeople living with LGS: Free \nEveryone is welcome. Please register each guest so we can plan accordingly. \n\nWhat to Expect\nWalk Distance: Less than a mile \nActivities & Fun:• Music• Balloon artist for kids• Snacks and refreshments• Time to connect with other LGS families and supporters \n\nWalk Shirts & Hoodies\nPlanning to attend this walk? Grab an official Walk for LGS Research shirt or hoodie and wear it at your event to help show support and raise awareness for Lennox-Gastaut Syndrome. \nShop Walk Gear \nOrder early to receive your gear before the walk.
URL:https://www.lgsfoundation.org/event/walk-for-lgs-research-tilton-new-hampshire/
LOCATION:Riverfront Park\, 322 W Main St\, Tilton\, NH\, 03276\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2026/03/Tilton-New-Hampshire-WalkForLGS.png
ORGANIZER;CN="Jamie Riley":MAILTO:jamiefleck76@gmail.com
GEO:43.44325;-71.593538
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Riverfront Park 322 W Main St Tilton NH 03276 United States;X-APPLE-RADIUS=500;X-TITLE=322 W Main St:geo:-71.593538,43.44325
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260427T200000
DTEND;TZID=America/New_York:20260427T210000
DTSTAMP:20260403T230425
CREATED:20260325T170903Z
LAST-MODIFIED:20260325T170903Z
UID:10000285-1777320000-1777323600@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – April Support Group Meeting
DESCRIPTION:Join us for our monthly Caregiver of Adults with LGS support group. \nCaring for an adult with Lennox-Gastaut Syndrome comes with unique challenges as needs evolve over time. This group offers a supportive space to share experiences\, ask questions\, and connect with others who understand the long-term caregiving journey. \nHosted by adult LGS caregivers\, this conversation is grounded in lived experience and mutual support. \nCaregivers of adolescents preparing for adulthood are also encouraged to attend. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-april-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260512T200000
DTEND;TZID=America/New_York:20260512T210000
DTSTAMP:20260403T230425
CREATED:20260325T144339Z
LAST-MODIFIED:20260325T144339Z
UID:10000277-1778616000-1778619600@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - May Support Group Meeting
DESCRIPTION:Join us for our monthly Standing Together. Stronger Together. caregiver support group. \nTopic: Research Updates 💙The LGS Foundation is driving research and leading the way in the development of new treatments. Join us this month as we welcome special guest Helen Chen\, Research Director at the LGS Foundation\, to share updates and insights into current research efforts. \nLearn more about how you and your family can participate in research and help move progress forward. \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-may-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/03/2023-Graphic-Jens-Group-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260519T200000
DTEND;TZID=America/New_York:20260519T210000
DTSTAMP:20260403T230425
CREATED:20260325T152346Z
LAST-MODIFIED:20260325T152346Z
UID:10000280-1779220800-1779224400@www.lgsfoundation.org
SUMMARY:Dad to Dad – May Support Group Meeting
DESCRIPTION:Hosted by dads\, for dads. \nJoin our Dad to Dad support group\, a space created specifically for male caregivers navigating the LGS journey. This group offers an opportunity to connect\, share experiences\, and support one another in an open\, understanding environment. \nWhether you feel like talking or just listening\, you’re welcome here. \nBring your favorite beverage and take some time for yourself. \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-may-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260521T200000
DTEND;TZID=America/New_York:20260521T210000
DTSTAMP:20260403T230425
CREATED:20260325T162107Z
LAST-MODIFIED:20260325T162107Z
UID:10000283-1779393600-1779397200@www.lgsfoundation.org
SUMMARY:Grupo de Esperanza – Reunión de Apoyo de Mayo
DESCRIPTION:Únase a nuestro grupo de apoyo mensual Grupo de Esperanza\, un espacio acogedor para familias y cuidadores de personas con síndrome de Lennox-Gastaut. \nEste grupo brinda la oportunidad de compartir experiencias\, encontrar apoyo y conectarse con otros que comprenden este camino. \nYa sea que desee compartir o simplemente escuchar\, usted es bienvenido. \n\nEste grupo de apoyo mensual está disponible para las familias con LGS que sean miembros de la Comunidad de Apoyo en Línea para Cuidadores de la LGS Foundation. \nPara unirse a nuestra comunidad en línea y obtener la información de acceso\, por favor visite nuestro grupo en www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-reunion-de-apoyo-de-mayo/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260525T200000
DTEND;TZID=America/New_York:20260525T210000
DTSTAMP:20260403T230425
CREATED:20260325T171913Z
LAST-MODIFIED:20260325T172504Z
UID:10000286-1779739200-1779742800@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – May Support Group Meeting
DESCRIPTION:Join us for our monthly Caregiver of Adults with LGS support group. \nCaring for an adult with Lennox-Gastaut Syndrome comes with unique challenges as needs evolve over time. This group offers a supportive space to share experiences\, ask questions\, and connect with others who understand the long-term caregiving journey. \nHosted by adult LGS caregivers\, this conversation is grounded in lived experience and mutual support. \nCaregivers of adolescents preparing for adulthood are also encouraged to attend. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregivers-of-adults-with-lgs-may-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260609T200000
DTEND;TZID=America/New_York:20260609T210000
DTSTAMP:20260403T230425
CREATED:20260325T150433Z
LAST-MODIFIED:20260325T150648Z
UID:10000278-1781035200-1781038800@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - June Support Group Meeting
DESCRIPTION:Join us for our monthly Standing Together. Stronger Together. caregiver support group. \nTopic: What is Respite? 💙Caregiving is not easy. The ongoing demands of caring for someone with Lennox-Gastaut Syndrome can strain even the most resilient person. That’s why it’s critical for caregivers to ask for help and take time to rest. \nBut how do we actually make that happen? \nThis month\, we’ll come together to share ideas\, challenges\, and practical ways to access respite and support one another along the way. \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-june-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/03/2023-Graphic-Jens-Group-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260616T200000
DTEND;TZID=America/New_York:20260616T210000
DTSTAMP:20260403T230425
CREATED:20260325T152926Z
LAST-MODIFIED:20260325T152926Z
UID:10000281-1781640000-1781643600@www.lgsfoundation.org
SUMMARY:Dad to Dad – June Support Group Meeting
DESCRIPTION:Join our Dad to Dad support group\, a space created specifically for male caregivers navigating the LGS journey. This group offers an opportunity to connect\, share experiences\, and support one another in an open\, understanding environment. \nWhether you feel like talking or just listening\, you’re welcome here. \nBring your favorite beverage and take some time for yourself. \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-june-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260618T200000
DTEND;TZID=America/New_York:20260618T210000
DTSTAMP:20260403T230425
CREATED:20260325T162846Z
LAST-MODIFIED:20260325T162846Z
UID:10000284-1781812800-1781816400@www.lgsfoundation.org
SUMMARY:Grupo de Esperanza – Reunión de Apoyo de Junio
DESCRIPTION:Únase a nuestro grupo de apoyo mensual Grupo de Esperanza\, un espacio acogedor para familias y cuidadores de personas con síndrome de Lennox-Gastaut. \nEste grupo brinda la oportunidad de compartir experiencias\, encontrar apoyo y conectarse con otros que comprenden este camino. \nYa sea que desee compartir o simplemente escuchar\, usted es bienvenido. \n\nEste grupo de apoyo mensual está disponible para las familias con LGS que sean miembros de la Comunidad de Apoyo en Línea para Cuidadores de la LGS Foundation. \nPara unirse a nuestra comunidad en línea y obtener la información de acceso\, por favor visite nuestro grupo en www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-reunion-de-apoyo-de-junio/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260622T200000
DTEND;TZID=America/New_York:20260622T210000
DTSTAMP:20260403T230425
CREATED:20260325T172253Z
LAST-MODIFIED:20260325T172315Z
UID:10000287-1782158400-1782162000@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – June Support Group Meeting
DESCRIPTION:Join us for our monthly Caregiver of Adults with LGS support group. \nCaring for an adult with Lennox-Gastaut Syndrome comes with unique challenges as needs evolve over time. This group offers a supportive space to share experiences\, ask questions\, and connect with others who understand the long-term caregiving journey. \nHosted by adult LGS caregivers\, this conversation is grounded in lived experience and mutual support. \nCaregivers of adolescents preparing for adulthood are also encouraged to attend. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregivers-of-adults-with-lgs-june-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260709
DTEND;VALUE=DATE:20260712
DTSTAMP:20260403T230425
CREATED:20250523T173020Z
LAST-MODIFIED:20260210T165015Z
UID:10000223-1783555200-1783814399@www.lgsfoundation.org
SUMMARY:10th International Family & Professional Conference
DESCRIPTION:Save the Date! | July 9–11\, 2026\n📍 Orlando\, Florida\nJoin us for the LGS Foundation’s 10th International Family & Professional Conference\, a powerful three-day event that brings together hundreds of families\, caregivers\, and epilepsy professionals from around the globe. \nHeld every two years\, this comprehensive conference explores the latest in Lennox-Gastaut Syndrome (LGS) research\, treatments\, services\, and strategies to improve quality of life. Whether you’re looking for expert talks\, practical resources\, or community connection\, this event is for you. \n✨ Don’t miss this special opportunity to connect\, learn\, and grow with the global LGS community. \nMore details and registration coming soon! \nLearn More
URL:https://www.lgsfoundation.org/event/10th-international-family-professional-conference/
LOCATION:Caribe Royale Orlando\, 8101 World Center Drive\, Orlando\, FL\, 32821\, United States
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2021/08/Conference-Logo-Options-2.png
ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org
GEO:28.3612508;-81.4917908
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Caribe Royale Orlando 8101 World Center Drive Orlando FL 32821 United States;X-APPLE-RADIUS=500;X-TITLE=8101 World Center Drive:geo:-81.4917908,28.3612508
END:VEVENT
END:VCALENDAR