BEGIN:VCALENDAR VERSION:2.0 PRODID:-//LGS Foundation - ECPv6.15.17.1//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-WR-CALNAME:LGS Foundation X-ORIGINAL-URL:https://www.lgsfoundation.org X-WR-CALDESC:Events for LGS Foundation REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:America/New_York BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20240310T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20241103T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20250309T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20251102T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20260308T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20261101T060000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=America/New_York:20250828T183000 DTEND;TZID=America/New_York:20250828T193000 DTSTAMP:20260820T150959 CREATED:20250820T132217Z LAST-MODIFIED:20250820T132217Z UID:10000239-1756405800-1756409400@www.lgsfoundation.org SUMMARY:Setting Up for a Successful Future in Lennox-Gastaut Syndrome: Preparing for Adult Care DESCRIPTION:Setting Up for a Successful Future in Lennox-Gastaut Syndrome: Preparing for Adult Care\nDate & Time:📅 Thursday\, August 28\, 2025⏰ 6:30 PM ET \nDescription:Join us for a free\, educational webcast designed for caregivers and patients on transitioning individuals with Lennox-Gastaut Syndrome (LGS) to adult care. \nOur expert faculty – including a health care professional and an experienced LGS caregiver – will share best practices for collaborating with adult care teams to support long-term management of LGS. \nThis session is: \n\n🎓 Non-accredited\n💜 Caregiver-focused\nđŸ’» Virtual and free to attend\n\nRegistration:👉 Click here to register \nPartners:This program is provided in partnership with CME Outfitters and supported by an independent medical education grant from Jazz Pharmaceuticals. URL:https://www.lgsfoundation.org/event/setting-up-for-a-successful-future-in-lennox-gastaut-syndrome-preparing-for-adult-care/ LOCATION:Virtual END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250825T200000 DTEND;TZID=America/New_York:20250825T210000 DTSTAMP:20260820T150959 CREATED:20250625T203806Z LAST-MODIFIED:20250625T203806Z UID:10000235-1756152000-1756155600@www.lgsfoundation.org SUMMARY:Caregiver of Adults with LGS – August Support Group Meeting DESCRIPTION:Join us Monday\, August 25th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-august-support-group-meeting/ LOCATION:Virtual ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250821T200000 DTEND;TZID=America/New_York:20250821T210000 DTSTAMP:20260820T150959 CREATED:20250625T200308Z LAST-MODIFIED:20250625T200308Z UID:10000232-1755806400-1755810000@www.lgsfoundation.org SUMMARY:Grupo de Esperanza LGS - ReuniĂłn del Grupo de Apoyo de Agosto DESCRIPTION:Únase a nosotros el jueves 21 de agosto a las 8 pm ET\nNadie deberĂ­a caminar solo en este sendero\nEl grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias. \nÚnase a las cuidadoras Bertha GuillĂ©n y Michele Torres cada mes mientras nos escuchamos\, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS. \nJuntos somos mĂĄs fuertes. Nadie deberĂ­a caminar solo en este sendero. Todos son bienvenidos\, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ÂĄHay esperanza para nuestros niños! \n\nEste grupo mensual estĂĄ disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en lĂ­nea de la FundaciĂłn LGS. \nPara unirse a nuestra comunidad en lĂ­nea y obtener informaciĂłn de inicio de sesiĂłn\, visite nuestro grupo en www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-lgs-reunion-del-grupo-de-apoyo-de-agosto/ LOCATION:Virtual ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250819T200000 DTEND;TZID=America/New_York:20250819T210000 DTSTAMP:20260820T150959 CREATED:20250625T183402Z LAST-MODIFIED:20250625T183402Z UID:10000229-1755633600-1755637200@www.lgsfoundation.org SUMMARY:Dad to Dad – August Support Group Meeting DESCRIPTION:Join us Tuesday\, August 19th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/dad-to-dad-august-support-group-meeting-2/ LOCATION:Virtual ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250812T200000 DTEND;TZID=America/New_York:20250812T210000 DTSTAMP:20260820T150959 CREATED:20250625T180416Z LAST-MODIFIED:20250625T180416Z UID:10000226-1755028800-1755032400@www.lgsfoundation.org SUMMARY:Standing Together. Stronger Together. – August Support Group Meeting DESCRIPTION:Join us on Tuesday\, August 12th at 8 pm ET.\nTopic: What’s The Title of Your LGS Story? \nIf you could write a book about your family’s LGS journey\, what would it be called? Come join our group this month and share that title and a little bit of your story. Maybe your story is just beginning\, or maybe you’ve been doing this for a long time. We want to hear it all!\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-august-support-group-meeting-2/ LOCATION:Virtual ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250728T200000 DTEND;TZID=America/New_York:20250728T210000 DTSTAMP:20260820T150959 CREATED:20250625T203421Z LAST-MODIFIED:20250625T203421Z UID:10000234-1753732800-1753736400@www.lgsfoundation.org SUMMARY:Caregiver of Adults with LGS – July Support Group Meeting DESCRIPTION:Join us Monday\, July 28th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-july-support-group-meeting-2/ LOCATION:Virtual ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250717T200000 DTEND;TZID=America/New_York:20250717T210000 DTSTAMP:20260820T150959 CREATED:20250625T195624Z LAST-MODIFIED:20250625T195624Z UID:10000231-1752782400-1752786000@www.lgsfoundation.org SUMMARY:Grupo de Esperanza LGS - ReuniĂłn del Grupo de Apoyo de julio DESCRIPTION:Únase a nosotros el jueves 17 de julio a las 8 pm ET\nNadie deberĂ­a caminar solo en este sendero\nEl grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias. \nÚnase a las cuidadoras Bertha GuillĂ©n y Michele Torres cada mes mientras nos escuchamos\, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS. \nJuntos somos mĂĄs fuertes. Nadie deberĂ­a caminar solo en este sendero. Todos son bienvenidos\, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ÂĄHay esperanza para nuestros niños! \n\nEste grupo mensual estĂĄ disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en lĂ­nea de la FundaciĂłn LGS. \nPara unirse a nuestra comunidad en lĂ­nea y obtener informaciĂłn de inicio de sesiĂłn\, visite nuestro grupo en www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-lgs-reunion-del-grupo-de-apoyo-de-julio/ LOCATION:Virtual ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250715T200000 DTEND;TZID=America/New_York:20250715T210000 DTSTAMP:20260820T150959 CREATED:20250625T182115Z LAST-MODIFIED:20250625T182115Z UID:10000228-1752609600-1752613200@www.lgsfoundation.org SUMMARY:Dad to Dad – July Support Group Meeting DESCRIPTION:Join us Tuesday\, July 15th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/dad-to-dad-july-support-group-meeting-3/ LOCATION:Virtual ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20250715 DTEND;VALUE=DATE:20250815 DTSTAMP:20260820T150959 CREATED:20250523T163645Z LAST-MODIFIED:20250721T203724Z UID:10000222-1752537600-1755215999@www.lgsfoundation.org SUMMARY:Your Story. Your Session. DESCRIPTION:Your Story. Your Session. is a free\, live\, virtual experience created just for caregivers of those living with Lennox-Gastaut Syndrome (LGS). Whether you’re newly navigating a diagnosis or have years of experience\, this is a space for you to learn\, connect\, and feel supported. \n💜 Live Sessions – Choose the Time That Fits Your Life:\n\nTuesday\, July 15 @ 6:00 PM ET\nThursday\, August 1 @ 1:00 PM ET\nWednesday\, August 14 @ 4:00 PM ET\n\n🧠 What to Expect:\n\nExpert insights from pediatric neurologists and epilepsy specialists\nReal caregiver stories and strategies\nPractical tools for navigating daily challenges and transitions in care\nOpportunities to ask questions or simply listen in\n\nđŸŽ€ You decide how to participate—share your experience\, ask a question\, or just take it all in. All voices are welcome. \n📍 Where: Online via Zoom\n⏰ Duration: 1 HourđŸ’Č Cost: FREE \nReserve Your Spot Today URL:https://www.lgsfoundation.org/event/your-story-your-session/ LOCATION:Virtual ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2025/05/Your-Story-Your-Session-Iridum-Project-Featured-Image.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250708T200000 DTEND;TZID=America/New_York:20250708T210000 DTSTAMP:20260820T150959 CREATED:20250625T175642Z LAST-MODIFIED:20250625T175642Z UID:10000225-1752004800-1752008400@www.lgsfoundation.org SUMMARY:Standing Together. Stronger Together. - July Support Group Meeting DESCRIPTION:Join us on Tuesday\, July 8th at 8 pm ET.\nTopic: Summer’s Here! Is That A Good Thing?\nHow will your family be spending the summer? Extended School Year (ESY)? Summer Camp? Are you able to create a fun\, safe\, and relaxing summer for your LGS loved one and their siblings\, or does this big break in the routine add chaos to your lives? Join a group of like-minded caregivers as we unwind\, unload\, listen\, and support one another.\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-july-support-group-meeting-3/ LOCATION:Virtual ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250623T200000 DTEND;TZID=America/New_York:20250623T210000 DTSTAMP:20260820T150959 CREATED:20250327T211352Z LAST-MODIFIED:20250327T211352Z UID:10000220-1750708800-1750712400@www.lgsfoundation.org SUMMARY:Caregiver of Adults with LGS – June Support Group Meeting DESCRIPTION:Join us Monday\, June 23rd at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-june-support-group-meeting-2/ LOCATION:Virtual ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250619T200000 DTEND;TZID=America/New_York:20250619T210000 DTSTAMP:20260820T150959 CREATED:20250327T203207Z LAST-MODIFIED:20250327T203207Z UID:10000217-1750363200-1750366800@www.lgsfoundation.org SUMMARY:Grupo de Esperanza LGS - ReuniĂłn del Grupo de Apoyo de junio DESCRIPTION:Únase a nosotros el jueves 19 de junio a las 8 pm ET\nNadie deberĂ­a caminar solo en este sendero\nEl grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias. \nÚnase a las cuidadoras Bertha GuillĂ©n y Michele Torres cada mes mientras nos escuchamos\, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS. \nJuntos somos mĂĄs fuertes. Nadie deberĂ­a caminar solo en este sendero. Todos son bienvenidos\, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ÂĄHay esperanza para nuestros niños! \n\nEste grupo mensual estĂĄ disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en lĂ­nea de la FundaciĂłn LGS. \nPara unirse a nuestra comunidad en lĂ­nea y obtener informaciĂłn de inicio de sesiĂłn\, visite nuestro grupo en www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-lgs-reunion-del-grupo-de-apoyo-de-junio/ LOCATION:Virtual ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250617T200000 DTEND;TZID=America/New_York:20250617T210000 DTSTAMP:20260820T150959 CREATED:20250327T195515Z LAST-MODIFIED:20250327T195548Z UID:10000214-1750190400-1750194000@www.lgsfoundation.org SUMMARY:Dad to Dad - June Support Group Meeting DESCRIPTION:Join us Tuesday\, June 17th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/dad-to-dad-june-support-group-meeting-2/ LOCATION:Virtual ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250610T200000 DTEND;TZID=America/New_York:20250610T210000 DTSTAMP:20260820T150959 CREATED:20250327T193528Z LAST-MODIFIED:20250327T193528Z UID:10000211-1749585600-1749589200@www.lgsfoundation.org SUMMARY:Standing Together. Stronger Together. - June Support Group Meeting DESCRIPTION:Join us on Tuesday\, June 10th at 8 pm ET.\nTopic: Managing the Business of LGS!\nLGS is tough. Navigating all of the ‘systems’ shouldn’t have to be. But it is!!. It can often feel like you’re running a small business. Appointments\, insurance denials\, specialists\, therapists\, day programs\, IEPs!! And who manages it all? YOU! Join all of the other ‘small business owners’ also known as ‘LGS Caregivers’\, and let’s talk about it. Share your strategies\, tips\, and self-care ideas for when it gets to be too much! \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-june-support-group-meeting-2/ LOCATION:Virtual ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/03/2023-Graphic-Jens-Group-.png ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250520T200000 DTEND;TZID=America/New_York:20250520T210000 DTSTAMP:20260820T150959 CREATED:20250327T195300Z LAST-MODIFIED:20250327T195300Z UID:10000213-1747771200-1747774800@www.lgsfoundation.org SUMMARY:Dad to Dad - May Support Group Meeting DESCRIPTION:Join us Tuesday\, May 20th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/dad-to-dad-may-support-group-meeting-2/ LOCATION:Virtual ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250519T200000 DTEND;TZID=America/New_York:20250519T210000 DTSTAMP:20260820T150959 CREATED:20250327T210358Z LAST-MODIFIED:20250429T211448Z UID:10000219-1747684800-1747688400@www.lgsfoundation.org SUMMARY:Caregiver of Adults with LGS - May Support Group Meeting DESCRIPTION:Join us Monday\, May 19th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-may-support-group-meeting-2/ LOCATION:Virtual ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250515T200000 DTEND;TZID=America/New_York:20250515T210000 DTSTAMP:20260820T150959 CREATED:20250327T202257Z LAST-MODIFIED:20250327T202257Z UID:10000216-1747339200-1747342800@www.lgsfoundation.org SUMMARY:LGS Grupo de Esperanza - ReuniĂłn del Grupo de Apoyo de Mayo DESCRIPTION:Únase a nosotros el jueves 15 de mayo a las 8 pm ET\nNadie deberĂ­a caminar solo en este sendero\nEl grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias. \nÚnase a las cuidadoras Bertha GuillĂ©n y Michele Torres cada mes mientras nos escuchamos\, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS. \nJuntos somos mĂĄs fuertes. Nadie deberĂ­a caminar solo en este sendero. Todos son bienvenidos\, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ÂĄHay esperanza para nuestros niños! \n\nEste grupo mensual estĂĄ disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en lĂ­nea de la FundaciĂłn LGS. \nPara unirse a nuestra comunidad en lĂ­nea y obtener informaciĂłn de inicio de sesiĂłn\, visite nuestro grupo en www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/lgs-grupo-de-esperanza-reunion-del-grupo-de-apoyo-de-mayo/ LOCATION:Virtual ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250513T200000 DTEND;TZID=America/New_York:20250513T210000 DTSTAMP:20260820T150959 CREATED:20250327T192811Z LAST-MODIFIED:20250327T192901Z UID:10000210-1747166400-1747170000@www.lgsfoundation.org SUMMARY:Standing Together. Stronger Together. - May Support Group Meeting DESCRIPTION:Join us on Tuesday\, May 13th at 8 pm ET.\nTopic: Your Favorite Things!\nWhat’s that thing that you need to get through the day? Is it your morning coffee? The 10-minute afternoon nap? The fully-charged iPad that will keep your loved one occupied so you can drink that coffee\, or quietly close your eyes? \nIt’s always the little things in life that can be the BIGGEST things in life.  We always hear “I don’t know how you do it”. \nJoin us and let us know\, how do you do it?!\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-may-support-group-meeting-2/ LOCATION:Virtual ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/03/2023-Graphic-Jens-Group-.png ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250428T200000 DTEND;TZID=America/New_York:20250428T210000 DTSTAMP:20260820T150959 CREATED:20250327T205942Z LAST-MODIFIED:20250327T205942Z UID:10000218-1745870400-1745874000@www.lgsfoundation.org SUMMARY:Caregiver of Adults with LGS - April Support Group Meeting DESCRIPTION:Join us Monday\, April 28th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-april-support-group-meeting-2/ LOCATION:Virtual ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250424T200000 DTEND;TZID=America/New_York:20250424T210000 DTSTAMP:20260820T150959 CREATED:20250327T200655Z LAST-MODIFIED:20250328T132851Z UID:10000215-1745524800-1745528400@www.lgsfoundation.org SUMMARY:LGS Grupo de Esperanza - ReuniĂłn del Grupo de Apoyo de abril DESCRIPTION:Únase a nosotros el jueves 24 de abril a las 8 pm ET\nNadie deberĂ­a caminar solo en este sendero\nEl grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias. \nÚnase a las cuidadoras Bertha GuillĂ©n y Michele Torres cada mes mientras nos escuchamos\, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS. \nJuntos somos mĂĄs fuertes. Nadie deberĂ­a caminar solo en este sendero. Todos son bienvenidos\, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ÂĄHay esperanza para nuestros niños! \n\nEste grupo mensual estĂĄ disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en lĂ­nea de la FundaciĂłn LGS. \nPara unirse a nuestra comunidad en lĂ­nea y obtener informaciĂłn de inicio de sesiĂłn\, visite nuestro grupo en www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/lgs-grupo-de-esperanza-reunion-del-grupo-de-apoyo-de-abril/ LOCATION:Virtual ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250415T200000 DTEND;TZID=America/New_York:20250415T210000 DTSTAMP:20260820T150959 CREATED:20250327T194421Z LAST-MODIFIED:20250327T194920Z UID:10000212-1744747200-1744750800@www.lgsfoundation.org SUMMARY:Dad to Dad - April Support Group Meeting DESCRIPTION:Join us Tuesday\, April 15th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/dad-to-dad-april-support-group-meeting-2/ LOCATION:Virtual ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250408T200000 DTEND;TZID=America/New_York:20250408T210000 DTSTAMP:20260820T150959 CREATED:20250327T191616Z LAST-MODIFIED:20250327T191616Z UID:10000209-1744142400-1744146000@www.lgsfoundation.org SUMMARY:Standing Together. Stronger Together. - April Support Group Meeting DESCRIPTION:Join us on Tuesday\, April 8th at 8 pm ET.\nTopic: Spring is finally here. A time of new beginnings!\nThis has been a difficult winter for the LGS community. A lot of grief\, a lot of new families\, and as always\, a lot of seizures. During these times\, it’s more important than ever to connect with others. Join us! If you need to talk\, we’ll always listen. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-april-support-group-meeting-2/ LOCATION:Virtual ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/03/2023-Graphic-Jens-Group-.png ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250324T200000 DTEND;TZID=America/New_York:20250324T210000 DTSTAMP:20260820T150959 CREATED:20241231T231641Z LAST-MODIFIED:20241231T231641Z UID:10000203-1742846400-1742850000@www.lgsfoundation.org SUMMARY:Caregiver of Adults with LGS – March Support Group Meeting DESCRIPTION:Join us Monday\, March 24th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-march-support-group-meeting-2/ LOCATION:Virtual ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250320T200000 DTEND;TZID=America/New_York:20250320T210000 DTSTAMP:20260820T150959 CREATED:20241231T230522Z LAST-MODIFIED:20241231T230522Z UID:10000200-1742500800-1742504400@www.lgsfoundation.org SUMMARY:LGS Grupo de Esperanza DESCRIPTION:Join us Thursday\, March 20th at 8 pm ET\nNadie deberĂ­a caminar solo en este sendero\nEl grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias. \nÚnase a las cuidadoras Bertha GuillĂ©n y Michele Torres cada mes mientras nos escuchamos\, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS. \nJuntos somos mĂĄs fuertes. Nadie deberĂ­a caminar solo en este sendero. Todos son bienvenidos\, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ÂĄHay esperanza para nuestros niños! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/lgs-grupo-de-esperanza-3/ LOCATION:Virtual ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250318T200000 DTEND;TZID=America/New_York:20250318T210000 DTSTAMP:20260820T150959 CREATED:20241231T225035Z LAST-MODIFIED:20241231T225035Z UID:10000197-1742328000-1742331600@www.lgsfoundation.org SUMMARY:Dad to Dad - March Support Group Meeting DESCRIPTION:Join us Tuesday\, March 18th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/dad-to-dad-march-support-group-meeting-2/ LOCATION:Virtual ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250311T190000 DTEND;TZID=America/New_York:20250311T210000 DTSTAMP:20260820T150959 CREATED:20241231T222023Z LAST-MODIFIED:20250101T164247Z UID:10000194-1741719600-1741726800@www.lgsfoundation.org SUMMARY:Standing Together. Stronger Together. - March Support Group Meeting DESCRIPTION:Join us on Tuesday\, March 11th at 7 pm ET.\nTopic: PTSD & the Impact of LGS on the Caregivers\nMany LGS caregivers have expressed feeling traumatized from witnessing ongoing seizures and their effects on their loved ones.\nPlease join us for a special 2-hour support group that will begin with a recorded presentation from a trauma expert and mother of a child with catastrophic seizures. We’ll follow this talk with our support group and discussion. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-march-support-group-meeting-2/ LOCATION:Virtual ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250224T200000 DTEND;TZID=America/New_York:20250224T210000 DTSTAMP:20260820T150959 CREATED:20241231T231440Z LAST-MODIFIED:20241231T231440Z UID:10000202-1740427200-1740430800@www.lgsfoundation.org SUMMARY:Caregiver of Adults with LGS – February Support Group Meeting DESCRIPTION:Join us Monday\, February 24th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-february-support-group-meeting/ LOCATION:Virtual ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250220T200000 DTEND;TZID=America/New_York:20250220T210000 DTSTAMP:20260820T150959 CREATED:20241231T230253Z LAST-MODIFIED:20241231T230253Z UID:10000199-1740081600-1740085200@www.lgsfoundation.org SUMMARY:LGS Grupo de Esperanza DESCRIPTION:Join us Thursday\, February 20th at 8 pm ET\nNadie deberĂ­a caminar solo en este sendero\nEl grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias. \nÚnase a las cuidadoras Bertha GuillĂ©n y Michele Torres cada mes mientras nos escuchamos\, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS. \nJuntos somos mĂĄs fuertes. Nadie deberĂ­a caminar solo en este sendero. Todos son bienvenidos\, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ÂĄHay esperanza para nuestros niños! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/lgs-grupo-de-esperanza-2/ LOCATION:Virtual ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250218T200000 DTEND;TZID=America/New_York:20250218T210000 DTSTAMP:20260820T150959 CREATED:20241231T224700Z LAST-MODIFIED:20241231T224700Z UID:10000196-1739908800-1739912400@www.lgsfoundation.org SUMMARY:Dad to Dad - February Support Group Meeting DESCRIPTION:Join us Tuesday\, February 18th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/dad-to-dad-february-support-group-meeting/ LOCATION:Virtual ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20250211T200000 DTEND;TZID=America/New_York:20250211T210000 DTSTAMP:20260820T150959 CREATED:20241231T221352Z LAST-MODIFIED:20241231T221352Z UID:10000193-1739304000-1739307600@www.lgsfoundation.org SUMMARY:Standing Together. Stronger Together. - February Support Group Meeting DESCRIPTION:Join us on Tuesday\, February 11th at 8 pm ET.\nTopic: It’s All About Love!\nWe shed a lot of tears as caregivers. Because we love so deeply and fight for our loved ones so fiercely. It isn’t always a heartbreaking love. There’s joy as well. With Valentine’s Day just around the corner\, can we stop for a moment and celebrate LOVE? \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-february-support-group-meeting/ LOCATION:Virtual ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png ORGANIZER;CN="LGS Foundation":MAILTO:info@lgsfoundation.org END:VEVENT END:VCALENDAR