BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//LGS Foundation - ECPv6.15.17.1//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-ORIGINAL-URL:https://www.lgsfoundation.org
X-WR-CALDESC:Events for LGS Foundation
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20260308T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20261101T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20270314T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20271107T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260811T200000
DTEND;TZID=America/New_York:20260811T210000
DTSTAMP:20260818T080304
CREATED:20260706T171425Z
LAST-MODIFIED:20260706T171425Z
UID:10000293-1786478400-1786482000@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. – August Support Group Meeting
DESCRIPTION:Join us for our monthly Standing Together. Stronger Together. caregiver support group. \nTopic: Everything Happens For A Reason (Yikes!) \n“God only gives special challenges to special people.”You’re so strong. I could never do what you do.” Sound familiar? \nFor caregivers navigating the relentless realities of LGS\, well-meaning words can sometimes land like a punch to the gut. \nThe people who love us often reach for comfort and come up with a cliché instead\, and the gap between what they mean and what we hear can be enormous. \nJoin us for our next gathering as we unpack the phrases that make us cringe\, cry\, or want to flip a table. What are the words that stop you in your tracks? How do you respond\, or wish you could? \nBring your most triggering phrases\, your most gracious comebacks\, and your most honest reactions. \nThis is a safe space to say the things you can’t always say out loud. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-august-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260727T200000
DTEND;TZID=America/New_York:20260727T210000
DTSTAMP:20260818T080304
CREATED:20260706T181639Z
LAST-MODIFIED:20260706T181639Z
UID:10000301-1785182400-1785186000@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – July Support Group Meeting
DESCRIPTION:Join us for our monthly Caregiver of Adults with LGS support group. \nCaring for an adult with Lennox-Gastaut Syndrome comes with unique challenges as needs evolve over time. This group offers a supportive space to share experiences\, ask questions\, and connect with others who understand the long-term caregiving journey. \nHosted by adult LGS caregivers\, this conversation is grounded in lived experience and mutual support. \nCaregivers of adolescents preparing for adulthood are also encouraged to attend. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-july-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260721T200000
DTEND;TZID=America/New_York:20260721T210000
DTSTAMP:20260818T080304
CREATED:20260706T181010Z
LAST-MODIFIED:20260706T181010Z
UID:10000298-1784664000-1784667600@www.lgsfoundation.org
SUMMARY:Dad to Dad – July Support Group Meeting
DESCRIPTION:Join our Dad to Dad support group\, a space created specifically for male caregivers navigating the LGS journey. This group offers an opportunity to connect\, share experiences\, and support one another in an open\, understanding environment. \nWhether you feel like talking or just listening\, you’re welcome here. \nBring your favorite beverage and take some time for yourself. \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-july-support-group-meeting-4/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260716T200000
DTEND;TZID=America/New_York:20260716T210000
DTSTAMP:20260818T080304
CREATED:20260706T180412Z
LAST-MODIFIED:20260706T180412Z
UID:10000295-1784232000-1784235600@www.lgsfoundation.org
SUMMARY:Grupo de Esperanza – Reunión de Apoyo de Julio
DESCRIPTION:Únase a nuestro grupo de apoyo mensual Grupo de Esperanza\, un espacio acogedor para familias y cuidadores de personas con síndrome de Lennox-Gastaut (LGS). \nCada reunión ofrece la oportunidad de compartir experiencias\, hacer preguntas\, encontrar apoyo y conectar con otras familias que comprenden este camino. Juntos construimos una comunidad donde todos son escuchados y acompañados. \nYa sea que desee participar en la conversación o simplemente escuchar\, siempre será bienvenido. \n\nEste grupo de apoyo mensual está disponible para las familias con LGS que sean miembros de la Comunidad de Apoyo en Línea para Cuidadores de la LGS Foundation. \nPara unirse a nuestra comunidad en línea y obtener la información de acceso\, por favor visite nuestro grupo en www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-reunion-de-apoyo-de-julio/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260714T200000
DTEND;TZID=America/New_York:20260714T210000
DTSTAMP:20260818T080304
CREATED:20260706T170231Z
LAST-MODIFIED:20260706T170231Z
UID:10000292-1784059200-1784062800@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. – July Support Group Meeting
DESCRIPTION:Join us for our monthly Standing Together. Stronger Together. caregiver support group. \nTopic: Let’s recap the LGS Conference \nThe LGS Foundation’s 10th International Family & Professional Conference just wrapped up. For those who were unable to attend\, please join us as we share some highlights. And\, for those who participated in the conference\, please join our group and offer your impressions of this beloved event. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-july-support-group-meeting-4/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260622T200000
DTEND;TZID=America/New_York:20260622T210000
DTSTAMP:20260818T080304
CREATED:20260325T172253Z
LAST-MODIFIED:20260325T172315Z
UID:10000287-1782158400-1782162000@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – June Support Group Meeting
DESCRIPTION:Join us for our monthly Caregiver of Adults with LGS support group. \nCaring for an adult with Lennox-Gastaut Syndrome comes with unique challenges as needs evolve over time. This group offers a supportive space to share experiences\, ask questions\, and connect with others who understand the long-term caregiving journey. \nHosted by adult LGS caregivers\, this conversation is grounded in lived experience and mutual support. \nCaregivers of adolescents preparing for adulthood are also encouraged to attend. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregivers-of-adults-with-lgs-june-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260618T200000
DTEND;TZID=America/New_York:20260618T210000
DTSTAMP:20260818T080304
CREATED:20260325T162846Z
LAST-MODIFIED:20260325T162846Z
UID:10000284-1781812800-1781816400@www.lgsfoundation.org
SUMMARY:Grupo de Esperanza – Reunión de Apoyo de Junio
DESCRIPTION:Únase a nuestro grupo de apoyo mensual Grupo de Esperanza\, un espacio acogedor para familias y cuidadores de personas con síndrome de Lennox-Gastaut. \nEste grupo brinda la oportunidad de compartir experiencias\, encontrar apoyo y conectarse con otros que comprenden este camino. \nYa sea que desee compartir o simplemente escuchar\, usted es bienvenido. \n\nEste grupo de apoyo mensual está disponible para las familias con LGS que sean miembros de la Comunidad de Apoyo en Línea para Cuidadores de la LGS Foundation. \nPara unirse a nuestra comunidad en línea y obtener la información de acceso\, por favor visite nuestro grupo en www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-reunion-de-apoyo-de-junio/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260616T200000
DTEND;TZID=America/New_York:20260616T210000
DTSTAMP:20260818T080304
CREATED:20260325T152926Z
LAST-MODIFIED:20260325T152926Z
UID:10000281-1781640000-1781643600@www.lgsfoundation.org
SUMMARY:Dad to Dad – June Support Group Meeting
DESCRIPTION:Join our Dad to Dad support group\, a space created specifically for male caregivers navigating the LGS journey. This group offers an opportunity to connect\, share experiences\, and support one another in an open\, understanding environment. \nWhether you feel like talking or just listening\, you’re welcome here. \nBring your favorite beverage and take some time for yourself. \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-june-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260609T200000
DTEND;TZID=America/New_York:20260609T210000
DTSTAMP:20260818T080304
CREATED:20260325T150433Z
LAST-MODIFIED:20260325T150648Z
UID:10000278-1781035200-1781038800@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - June Support Group Meeting
DESCRIPTION:Join us for our monthly Standing Together. Stronger Together. caregiver support group. \nTopic: What is Respite? 💙Caregiving is not easy. The ongoing demands of caring for someone with Lennox-Gastaut Syndrome can strain even the most resilient person. That’s why it’s critical for caregivers to ask for help and take time to rest. \nBut how do we actually make that happen? \nThis month\, we’ll come together to share ideas\, challenges\, and practical ways to access respite and support one another along the way. \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-june-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/03/2023-Graphic-Jens-Group-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260601T200000
DTEND;TZID=America/New_York:20260601T210000
DTSTAMP:20260818T080304
CREATED:20260325T171913Z
LAST-MODIFIED:20260428T182545Z
UID:10000286-1780344000-1780347600@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – Support Group Meeting
DESCRIPTION:Join us for our monthly Caregiver of Adults with LGS support group. \nCaring for an adult with Lennox-Gastaut Syndrome comes with unique challenges as needs evolve over time. This group offers a supportive space to share experiences\, ask questions\, and connect with others who understand the long-term caregiving journey. \nHosted by adult LGS caregivers\, this conversation is grounded in lived experience and mutual support. \nCaregivers of adolescents preparing for adulthood are also encouraged to attend. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregivers-of-adults-with-lgs-may-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260521T200000
DTEND;TZID=America/New_York:20260521T210000
DTSTAMP:20260818T080304
CREATED:20260325T162107Z
LAST-MODIFIED:20260325T162107Z
UID:10000283-1779393600-1779397200@www.lgsfoundation.org
SUMMARY:Grupo de Esperanza – Reunión de Apoyo de Mayo
DESCRIPTION:Únase a nuestro grupo de apoyo mensual Grupo de Esperanza\, un espacio acogedor para familias y cuidadores de personas con síndrome de Lennox-Gastaut. \nEste grupo brinda la oportunidad de compartir experiencias\, encontrar apoyo y conectarse con otros que comprenden este camino. \nYa sea que desee compartir o simplemente escuchar\, usted es bienvenido. \n\nEste grupo de apoyo mensual está disponible para las familias con LGS que sean miembros de la Comunidad de Apoyo en Línea para Cuidadores de la LGS Foundation. \nPara unirse a nuestra comunidad en línea y obtener la información de acceso\, por favor visite nuestro grupo en www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-reunion-de-apoyo-de-mayo/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260519T200000
DTEND;TZID=America/New_York:20260519T210000
DTSTAMP:20260818T080304
CREATED:20260325T152346Z
LAST-MODIFIED:20260325T152346Z
UID:10000280-1779220800-1779224400@www.lgsfoundation.org
SUMMARY:Dad to Dad – May Support Group Meeting
DESCRIPTION:Hosted by dads\, for dads. \nJoin our Dad to Dad support group\, a space created specifically for male caregivers navigating the LGS journey. This group offers an opportunity to connect\, share experiences\, and support one another in an open\, understanding environment. \nWhether you feel like talking or just listening\, you’re welcome here. \nBring your favorite beverage and take some time for yourself. \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-may-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260512T200000
DTEND;TZID=America/New_York:20260512T210000
DTSTAMP:20260818T080304
CREATED:20260325T144339Z
LAST-MODIFIED:20260325T144339Z
UID:10000277-1778616000-1778619600@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - May Support Group Meeting
DESCRIPTION:Join us for our monthly Standing Together. Stronger Together. caregiver support group. \nTopic: Research Updates 💙The LGS Foundation is driving research and leading the way in the development of new treatments. Join us this month as we welcome special guest Helen Chen\, Research Director at the LGS Foundation\, to share updates and insights into current research efforts. \nLearn more about how you and your family can participate in research and help move progress forward. \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-may-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/03/2023-Graphic-Jens-Group-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260427T200000
DTEND;TZID=America/New_York:20260427T210000
DTSTAMP:20260818T080304
CREATED:20260325T170903Z
LAST-MODIFIED:20260325T170903Z
UID:10000285-1777320000-1777323600@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – April Support Group Meeting
DESCRIPTION:Join us for our monthly Caregiver of Adults with LGS support group. \nCaring for an adult with Lennox-Gastaut Syndrome comes with unique challenges as needs evolve over time. This group offers a supportive space to share experiences\, ask questions\, and connect with others who understand the long-term caregiving journey. \nHosted by adult LGS caregivers\, this conversation is grounded in lived experience and mutual support. \nCaregivers of adolescents preparing for adulthood are also encouraged to attend. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-april-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260421T200000
DTEND;TZID=America/New_York:20260421T210000
DTSTAMP:20260818T080304
CREATED:20260325T152002Z
LAST-MODIFIED:20260325T152153Z
UID:10000279-1776801600-1776805200@www.lgsfoundation.org
SUMMARY:Dad to Dad - April Support Group Meeting
DESCRIPTION:Hosted by dads\, for dads. \nJoin our Dad to Dad support group\, a space created specifically for male caregivers navigating the LGS journey. This group offers an opportunity to connect\, share experiences\, and support one another in an open\, understanding environment. \nWhether you feel like talking or just listening\, you’re welcome here. \nBring your favorite beverage and take some time for yourself. \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-april-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260420T190000
DTEND;TZID=America/New_York:20260420T203000
DTSTAMP:20260818T080304
CREATED:20260406T153903Z
LAST-MODIFIED:20260406T154241Z
UID:10000289-1776711600-1776717000@www.lgsfoundation.org
SUMMARY:LGS New Family Orientation
DESCRIPTION:Welcome. This virtual orientation is designed for caregivers who are new to Lennox-Gastaut Syndrome (LGS) and/or new to the LGS Foundation. \nDuring this session\, we will introduce you to our mission\, walk through key resources and programs\, and share ways you can get connected within the LGS community. You will also learn about opportunities to contribute to research and access tools designed to support your family’s journey. \nWe will close with an open\, supportive group conversation where you can connect with other caregivers\, ask questions\, and share experiences. \nWhether you are newly diagnosed or navigating a new stage of care\, this space is here for you. \nTo receive invitation details\, please email FamilySupport@LGSFoundation.org. \n\nWho Should Attend\nCaregivers and families who are new to LGS or newly connected to the LGS Foundation \n\nWhat to Expect\n\nIntroduction to the LGS Foundation\nOverview of programs and resources\nWays to get involved and stay connected\nResearch participation opportunities\nOpen caregiver discussion and Q&A
URL:https://www.lgsfoundation.org/event/lgs-new-family-orientation/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2025/08/Copy-of-Invitation-to-New-Family-Orientation-email-header-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260416T200000
DTEND;TZID=America/New_York:20260416T210000
DTSTAMP:20260818T080304
CREATED:20260325T155641Z
LAST-MODIFIED:20260325T155641Z
UID:10000282-1776369600-1776373200@www.lgsfoundation.org
SUMMARY:Grupo de Esperanza – Reunión de Apoyo de Abril
DESCRIPTION:Únase a nuestro grupo de apoyo mensual Grupo de Esperanza\, un espacio acogedor para familias y cuidadores de personas con síndrome de Lennox-Gastaut. \nEste grupo brinda la oportunidad de compartir experiencias\, encontrar apoyo y conectarse con otros que comprenden este camino. \nYa sea que desee compartir o simplemente escuchar\, usted es bienvenido. \n\nEste grupo de apoyo mensual está disponible para las familias con LGS que sean miembros de la Comunidad de Apoyo en Línea para Cuidadores de la LGS Foundation. \nPara unirse a nuestra comunidad en línea y obtener la información de acceso\, por favor visite nuestro grupo en www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-reunion-de-apoyo-de-abril/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260414T200000
DTEND;TZID=America/New_York:20260414T210000
DTSTAMP:20260818T080304
CREATED:20260325T142737Z
LAST-MODIFIED:20260325T143010Z
UID:10000276-1776196800-1776200400@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - April Support Group Meeting
DESCRIPTION:Join us for our monthly Standing Together. Stronger Together. caregiver support group. \nTopic: Let’s Talk About Siblings 💙As caregivers\, so much of our time and energy goes into supporting our child with Lennox-Gastaut Syndrome\, while many of us are also raising (or have raised) other children who need us just as deeply. Along the way\, it’s natural to feel a mix of emotions\, including guilt and concerns about their future. \nThis month\, let’s come together to recognize\, support\, and celebrate the siblings who share this journey with us. \nThis group offers a welcoming space to share\, listen\, and connect with other caregivers who understand. \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-april-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/03/2023-Graphic-Jens-Group-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260323T200000
DTEND;TZID=America/New_York:20260323T210000
DTSTAMP:20260818T080304
CREATED:20260105T212532Z
LAST-MODIFIED:20260105T212532Z
UID:10000265-1774296000-1774299600@www.lgsfoundation.org
SUMMARY:Caregivers of Adults with LGS – March Support Group
DESCRIPTION:Caring for an adult with LGS is complex—but support makes it lighter. \nJoin fellow parents and caregivers for a monthly\, judgment-free space to share\, listen\, and connect. Whether you are navigating long-term caregiving or preparing for the transition to adulthood\, you are welcome here. \nHosted by adult LGS caregivers Geraldine and Elizabeth.Caregivers of adolescents approaching adulthood are encouraged to attend. \n🗓 Monday\, March 23rd⏰ 8:00 pm ET \nAvailable to members of the LGS Foundation Online Caregiver Support Community.Join for access details: www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregivers-of-adults-with-lgs-march-support-group/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260319T200000
DTEND;TZID=America/New_York:20260319T210000
DTSTAMP:20260818T080304
CREATED:20260105T201615Z
LAST-MODIFIED:20260105T201615Z
UID:10000262-1773950400-1773954000@www.lgsfoundation.org
SUMMARY:LGS Grupo de Esperanza (Spanish Support Group)
DESCRIPTION:Acompáñenos en marzo para el Grupo de Esperanza de LGS\, un encuentro mensual en español creado para apoyar\, animar y conectar a familias afectadas por el síndrome de Lennox-Gastaut. \nFacilitado por Bertha Guillen\, Michele Torres\, y Kelly Arrango\, este grupo ofrece un espacio compasivo donde podemos compartir libremente\, escuchar sin juicios y encontrar fortaleza unos en otros. \nYa sea que esté buscando apoyo\, conexión o simplemente un lugar donde sentirse comprendido\, este espacio es para usted. \nHay esperanza. Hay comunidad. Nadie camina solo. \nEste grupo mensual está disponible para familias con LGS que forman parte de la Comunidad de Apoyo para Cuidadores de la Fundación LGS.Para unirse y obtener la información de acceso\, visite:👉 www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/lgs-grupo-de-esperanza-spanish-support-group-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260317T200000
DTEND;TZID=America/New_York:20260317T210000
DTSTAMP:20260818T080304
CREATED:20260105T180342Z
LAST-MODIFIED:20260105T180724Z
UID:10000259-1773777600-1773781200@www.lgsfoundation.org
SUMMARY:Dad to Dad - March Support Group Meeting
DESCRIPTION:Join us Tuesday\, March 17th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-march-support-group-meeing/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260310T200000
DTEND;TZID=America/New_York:20260310T210000
DTSTAMP:20260818T080304
CREATED:20260105T165508Z
LAST-MODIFIED:20260127T000951Z
UID:10000256-1773172800-1773176400@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - March Support Group Meeting
DESCRIPTION:Join us on Tuesday\, March 10th at 8 pm ET.\nTopic: Community Connections Make Us Stronger \n\n\nCaregiving for someone with LGS can feel isolating\, but we’re not meant to do this alone.\nJoin us for this support group conversation as we explore simple\, meaningful strategies to stay connected with our caregiver community\, strengthen relationships\, and support one another along the way. Learn more about our upcoming Family & Professional Conference and how you can join us in July. Together\, we’re stronger.\n\n\n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-march-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260223T200000
DTEND;TZID=America/New_York:20260223T210000
DTSTAMP:20260818T080304
CREATED:20260105T212156Z
LAST-MODIFIED:20260105T212328Z
UID:10000264-1771876800-1771880400@www.lgsfoundation.org
SUMMARY:Caregivers of Adults with LGS – February Support Group
DESCRIPTION:Connection matters—especially on the hardest days. \nThis monthly support group brings together caregivers of adults with Lennox-Gastaut Syndrome for open conversation\, shared insight\, and encouragement. As caregiving needs change over time\, this space offers reassurance that you are not alone. \nHosted by adult LGS caregivers Geraldine and Elizabeth.Caregivers of adolescents preparing for adulthood are welcome. \n🗓 Monday\, February 23rd ⏰ 8:00 pm ET \nAvailable to members of the LGS Foundation Online Caregiver Support Community.Join for access details: www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregivers-of-adults-with-lgs-february-support-group/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260219T200000
DTEND;TZID=America/New_York:20260219T210000
DTSTAMP:20260818T080304
CREATED:20260105T200917Z
LAST-MODIFIED:20260105T200917Z
UID:10000261-1771531200-1771534800@www.lgsfoundation.org
SUMMARY:LGS Grupo de Esperanza (Spanish Support Group)
DESCRIPTION:El Grupo de Esperanza de LGS es un espacio de apoyo\, escucha y conexión para familias que viven con el síndrome de Lennox-Gastaut. \nCada mes\, las cuidadoras Bertha Guillen\, Michele Torres\, y Kelly Arrango nos guían en conversaciones significativas donde compartimos experiencias\, desafíos y momentos de fortaleza—en comunidad y en español. \nEste es un lugar para sentirse acompañado\, comprendido y apoyado. No importa dónde se encuentre en su camino con LGS\, aquí es bienvenido. \nNadie debería caminar este camino solo. Juntos somos más fuertes. \nDisponible para familias con LGS que son miembros de la Comunidad de Apoyo para Cuidadores de la Fundación LGS.Únase a nuestra comunidad en línea para recibir la información de acceso:👉 www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/lgs-grupo-de-esperanza-spanish-support-group-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260217T200000
DTEND;TZID=America/New_York:20260217T210000
DTSTAMP:20260818T080304
CREATED:20260105T173005Z
LAST-MODIFIED:20260105T173525Z
UID:10000258-1771358400-1771362000@www.lgsfoundation.org
SUMMARY:Dad to Dad - February Support Group Meeting
DESCRIPTION:Join us Tuesday\, February 17th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-february-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260210T200000
DTEND;TZID=America/New_York:20260210T210000
DTSTAMP:20260818T080304
CREATED:20260105T165051Z
LAST-MODIFIED:20260105T165051Z
UID:10000255-1770753600-1770757200@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - February Support Group Meeting
DESCRIPTION:Join us on Tuesday\, February 10th at 8 pm ET.\nTopic: How Do You Keep Track of EVERYTHING?\n\nSeizure Action Plan Awareness Week is every February. Join this month’s support group and share how you track the seizures\, behaviors\, sleep patterns\, medications\, and everything else. You may give & receive some great tips from your fellow caregivers. \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-february-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260126T200000
DTEND;TZID=America/New_York:20260126T210000
DTSTAMP:20260818T080304
CREATED:20260105T211702Z
LAST-MODIFIED:20260105T211853Z
UID:10000263-1769457600-1769461200@www.lgsfoundation.org
SUMMARY:Caregivers of Adults with LGS – January Support Group
DESCRIPTION:A new year doesn’t mean starting over—it means continuing forward\, together. \nJoin parents and caregivers of adults with Lennox-Gastaut Syndrome for a supportive space to connect\, share experiences\, and feel understood. Caring for an adult with LGS brings evolving challenges\, and this group offers community from those who truly get it. \nHosted by adult LGS caregivers Geraldine and Elizabeth.Caregivers of adolescents approaching adulthood are also welcome. \n🗓 Monday\, January 26th ⏰ 8:00 pm ET \nAvailable to members of the LGS Foundation Online Caregiver Support Community.Join for access details: www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregivers-of-adults-with-lgs-january-support-group/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260120T200000
DTEND;TZID=America/New_York:20260120T210000
DTSTAMP:20260818T080304
CREATED:20260105T170659Z
LAST-MODIFIED:20260105T171100Z
UID:10000257-1768939200-1768942800@www.lgsfoundation.org
SUMMARY:Dad to Dad - January Support Group
DESCRIPTION:Join us Tuesday\, January 20th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-january-support-group/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260115T200000
DTEND;TZID=America/New_York:20260115T210000
DTSTAMP:20260818T080304
CREATED:20260105T200458Z
LAST-MODIFIED:20260105T200458Z
UID:10000260-1768507200-1768510800@www.lgsfoundation.org
SUMMARY:LGS Grupo de Esperanza (Spanish Support Group)
DESCRIPTION:Únase a nosotros este mes para el Grupo de Esperanza de LGS\, un espacio seguro y acogedor para reunirnos virtualmente\, compartir nuestras historias y apoyarnos mutuamente. \nEste grupo mensual en español está facilitado por las cuidadoras Bertha Guillen\, Michele Torres\, y Kelly Arrango\, quienes acompañan a las familias mientras navegamos juntas el camino del síndrome de Lennox-Gastaut (LGS). \nAquí encontrará conexión\, comprensión y ánimo—ya sea que esté comenzando su recorrido con LGS o que tenga muchos años de experiencia. Nadie debería caminar este camino solo. \nJuntos somos más fuertes. Hay esperanza para nuestros niños. \nEste grupo está disponible para familias con LGS que forman parte de la Comunidad de Apoyo para Cuidadores de la Fundación LGS.Para unirse a nuestra comunidad en línea y recibir la información de acceso\, visite:👉 www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/lgs-grupo-de-esperanza-spanish-support-group/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260113T200000
DTEND;TZID=America/New_York:20260113T210000
DTSTAMP:20260818T080304
CREATED:20260105T161434Z
LAST-MODIFIED:20260105T161733Z
UID:10000254-1768334400-1768338000@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. January Support Group Meeting
DESCRIPTION:Join us on Tuesday\, January 13th at 8 pm ET.\nTopic: Setting Achievable Goals! It’s all about finding BALANCE! \n\nAs we look ahead to 2026\, it’s a great time to reflect and set intentions. What is one personal goal you hope to achieve in the coming year that will help you better balance caring for your loved one with caring for yourself? \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-january-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
END:VCALENDAR