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DTSTART;TZID=America/New_York:20260622T200000
DTEND;TZID=America/New_York:20260622T210000
DTSTAMP:20260624T055754
CREATED:20260325T172253Z
LAST-MODIFIED:20260325T172315Z
UID:10000287-1782158400-1782162000@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – June Support Group Meeting
DESCRIPTION:Join us for our monthly Caregiver of Adults with LGS support group. \nCaring for an adult with Lennox-Gastaut Syndrome comes with unique challenges as needs evolve over time. This group offers a supportive space to share experiences\, ask questions\, and connect with others who understand the long-term caregiving journey. \nHosted by adult LGS caregivers\, this conversation is grounded in lived experience and mutual support. \nCaregivers of adolescents preparing for adulthood are also encouraged to attend. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregivers-of-adults-with-lgs-june-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260618T200000
DTEND;TZID=America/New_York:20260618T210000
DTSTAMP:20260624T055754
CREATED:20260325T162846Z
LAST-MODIFIED:20260325T162846Z
UID:10000284-1781812800-1781816400@www.lgsfoundation.org
SUMMARY:Grupo de Esperanza – Reunión de Apoyo de Junio
DESCRIPTION:Únase a nuestro grupo de apoyo mensual Grupo de Esperanza\, un espacio acogedor para familias y cuidadores de personas con síndrome de Lennox-Gastaut. \nEste grupo brinda la oportunidad de compartir experiencias\, encontrar apoyo y conectarse con otros que comprenden este camino. \nYa sea que desee compartir o simplemente escuchar\, usted es bienvenido. \n\nEste grupo de apoyo mensual está disponible para las familias con LGS que sean miembros de la Comunidad de Apoyo en Línea para Cuidadores de la LGS Foundation. \nPara unirse a nuestra comunidad en línea y obtener la información de acceso\, por favor visite nuestro grupo en www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-reunion-de-apoyo-de-junio/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260616T200000
DTEND;TZID=America/New_York:20260616T210000
DTSTAMP:20260624T055754
CREATED:20260325T152926Z
LAST-MODIFIED:20260325T152926Z
UID:10000281-1781640000-1781643600@www.lgsfoundation.org
SUMMARY:Dad to Dad – June Support Group Meeting
DESCRIPTION:Join our Dad to Dad support group\, a space created specifically for male caregivers navigating the LGS journey. This group offers an opportunity to connect\, share experiences\, and support one another in an open\, understanding environment. \nWhether you feel like talking or just listening\, you’re welcome here. \nBring your favorite beverage and take some time for yourself. \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-june-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260609T200000
DTEND;TZID=America/New_York:20260609T210000
DTSTAMP:20260624T055754
CREATED:20260325T150433Z
LAST-MODIFIED:20260325T150648Z
UID:10000278-1781035200-1781038800@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - June Support Group Meeting
DESCRIPTION:Join us for our monthly Standing Together. Stronger Together. caregiver support group. \nTopic: What is Respite? 💙Caregiving is not easy. The ongoing demands of caring for someone with Lennox-Gastaut Syndrome can strain even the most resilient person. That’s why it’s critical for caregivers to ask for help and take time to rest. \nBut how do we actually make that happen? \nThis month\, we’ll come together to share ideas\, challenges\, and practical ways to access respite and support one another along the way. \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-june-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/03/2023-Graphic-Jens-Group-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260601T200000
DTEND;TZID=America/New_York:20260601T210000
DTSTAMP:20260624T055754
CREATED:20260325T171913Z
LAST-MODIFIED:20260428T182545Z
UID:10000286-1780344000-1780347600@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – Support Group Meeting
DESCRIPTION:Join us for our monthly Caregiver of Adults with LGS support group. \nCaring for an adult with Lennox-Gastaut Syndrome comes with unique challenges as needs evolve over time. This group offers a supportive space to share experiences\, ask questions\, and connect with others who understand the long-term caregiving journey. \nHosted by adult LGS caregivers\, this conversation is grounded in lived experience and mutual support. \nCaregivers of adolescents preparing for adulthood are also encouraged to attend. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregivers-of-adults-with-lgs-may-support-group-meeting/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260521T200000
DTEND;TZID=America/New_York:20260521T210000
DTSTAMP:20260624T055754
CREATED:20260325T162107Z
LAST-MODIFIED:20260325T162107Z
UID:10000283-1779393600-1779397200@www.lgsfoundation.org
SUMMARY:Grupo de Esperanza – Reunión de Apoyo de Mayo
DESCRIPTION:Únase a nuestro grupo de apoyo mensual Grupo de Esperanza\, un espacio acogedor para familias y cuidadores de personas con síndrome de Lennox-Gastaut. \nEste grupo brinda la oportunidad de compartir experiencias\, encontrar apoyo y conectarse con otros que comprenden este camino. \nYa sea que desee compartir o simplemente escuchar\, usted es bienvenido. \n\nEste grupo de apoyo mensual está disponible para las familias con LGS que sean miembros de la Comunidad de Apoyo en Línea para Cuidadores de la LGS Foundation. \nPara unirse a nuestra comunidad en línea y obtener la información de acceso\, por favor visite nuestro grupo en www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-reunion-de-apoyo-de-mayo/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260519T200000
DTEND;TZID=America/New_York:20260519T210000
DTSTAMP:20260624T055754
CREATED:20260325T152346Z
LAST-MODIFIED:20260325T152346Z
UID:10000280-1779220800-1779224400@www.lgsfoundation.org
SUMMARY:Dad to Dad – May Support Group Meeting
DESCRIPTION:Hosted by dads\, for dads. \nJoin our Dad to Dad support group\, a space created specifically for male caregivers navigating the LGS journey. This group offers an opportunity to connect\, share experiences\, and support one another in an open\, understanding environment. \nWhether you feel like talking or just listening\, you’re welcome here. \nBring your favorite beverage and take some time for yourself. \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-may-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260512T200000
DTEND;TZID=America/New_York:20260512T210000
DTSTAMP:20260624T055754
CREATED:20260325T144339Z
LAST-MODIFIED:20260325T144339Z
UID:10000277-1778616000-1778619600@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - May Support Group Meeting
DESCRIPTION:Join us for our monthly Standing Together. Stronger Together. caregiver support group. \nTopic: Research Updates 💙The LGS Foundation is driving research and leading the way in the development of new treatments. Join us this month as we welcome special guest Helen Chen\, Research Director at the LGS Foundation\, to share updates and insights into current research efforts. \nLearn more about how you and your family can participate in research and help move progress forward. \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-may-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/03/2023-Graphic-Jens-Group-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260427T200000
DTEND;TZID=America/New_York:20260427T210000
DTSTAMP:20260624T055754
CREATED:20260325T170903Z
LAST-MODIFIED:20260325T170903Z
UID:10000285-1777320000-1777323600@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – April Support Group Meeting
DESCRIPTION:Join us for our monthly Caregiver of Adults with LGS support group. \nCaring for an adult with Lennox-Gastaut Syndrome comes with unique challenges as needs evolve over time. This group offers a supportive space to share experiences\, ask questions\, and connect with others who understand the long-term caregiving journey. \nHosted by adult LGS caregivers\, this conversation is grounded in lived experience and mutual support. \nCaregivers of adolescents preparing for adulthood are also encouraged to attend. \n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-april-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260421T200000
DTEND;TZID=America/New_York:20260421T210000
DTSTAMP:20260624T055754
CREATED:20260325T152002Z
LAST-MODIFIED:20260325T152153Z
UID:10000279-1776801600-1776805200@www.lgsfoundation.org
SUMMARY:Dad to Dad - April Support Group Meeting
DESCRIPTION:Hosted by dads\, for dads. \nJoin our Dad to Dad support group\, a space created specifically for male caregivers navigating the LGS journey. This group offers an opportunity to connect\, share experiences\, and support one another in an open\, understanding environment. \nWhether you feel like talking or just listening\, you’re welcome here. \nBring your favorite beverage and take some time for yourself. \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-april-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260420T190000
DTEND;TZID=America/New_York:20260420T203000
DTSTAMP:20260624T055754
CREATED:20260406T153903Z
LAST-MODIFIED:20260406T154241Z
UID:10000289-1776711600-1776717000@www.lgsfoundation.org
SUMMARY:LGS New Family Orientation
DESCRIPTION:Welcome. This virtual orientation is designed for caregivers who are new to Lennox-Gastaut Syndrome (LGS) and/or new to the LGS Foundation. \nDuring this session\, we will introduce you to our mission\, walk through key resources and programs\, and share ways you can get connected within the LGS community. You will also learn about opportunities to contribute to research and access tools designed to support your family’s journey. \nWe will close with an open\, supportive group conversation where you can connect with other caregivers\, ask questions\, and share experiences. \nWhether you are newly diagnosed or navigating a new stage of care\, this space is here for you. \nTo receive invitation details\, please email FamilySupport@LGSFoundation.org. \n\nWho Should Attend\nCaregivers and families who are new to LGS or newly connected to the LGS Foundation \n\nWhat to Expect\n\nIntroduction to the LGS Foundation\nOverview of programs and resources\nWays to get involved and stay connected\nResearch participation opportunities\nOpen caregiver discussion and Q&A
URL:https://www.lgsfoundation.org/event/lgs-new-family-orientation/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2025/08/Copy-of-Invitation-to-New-Family-Orientation-email-header-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260416T200000
DTEND;TZID=America/New_York:20260416T210000
DTSTAMP:20260624T055754
CREATED:20260325T155641Z
LAST-MODIFIED:20260325T155641Z
UID:10000282-1776369600-1776373200@www.lgsfoundation.org
SUMMARY:Grupo de Esperanza – Reunión de Apoyo de Abril
DESCRIPTION:Únase a nuestro grupo de apoyo mensual Grupo de Esperanza\, un espacio acogedor para familias y cuidadores de personas con síndrome de Lennox-Gastaut. \nEste grupo brinda la oportunidad de compartir experiencias\, encontrar apoyo y conectarse con otros que comprenden este camino. \nYa sea que desee compartir o simplemente escuchar\, usted es bienvenido. \n\nEste grupo de apoyo mensual está disponible para las familias con LGS que sean miembros de la Comunidad de Apoyo en Línea para Cuidadores de la LGS Foundation. \nPara unirse a nuestra comunidad en línea y obtener la información de acceso\, por favor visite nuestro grupo en www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-reunion-de-apoyo-de-abril/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260414T200000
DTEND;TZID=America/New_York:20260414T210000
DTSTAMP:20260624T055754
CREATED:20260325T142737Z
LAST-MODIFIED:20260325T143010Z
UID:10000276-1776196800-1776200400@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - April Support Group Meeting
DESCRIPTION:Join us for our monthly Standing Together. Stronger Together. caregiver support group. \nTopic: Let’s Talk About Siblings 💙As caregivers\, so much of our time and energy goes into supporting our child with Lennox-Gastaut Syndrome\, while many of us are also raising (or have raised) other children who need us just as deeply. Along the way\, it’s natural to feel a mix of emotions\, including guilt and concerns about their future. \nThis month\, let’s come together to recognize\, support\, and celebrate the siblings who share this journey with us. \nThis group offers a welcoming space to share\, listen\, and connect with other caregivers who understand. \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-april-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/03/2023-Graphic-Jens-Group-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260323T200000
DTEND;TZID=America/New_York:20260323T210000
DTSTAMP:20260624T055754
CREATED:20260105T212532Z
LAST-MODIFIED:20260105T212532Z
UID:10000265-1774296000-1774299600@www.lgsfoundation.org
SUMMARY:Caregivers of Adults with LGS – March Support Group
DESCRIPTION:Caring for an adult with LGS is complex—but support makes it lighter. \nJoin fellow parents and caregivers for a monthly\, judgment-free space to share\, listen\, and connect. Whether you are navigating long-term caregiving or preparing for the transition to adulthood\, you are welcome here. \nHosted by adult LGS caregivers Geraldine and Elizabeth.Caregivers of adolescents approaching adulthood are encouraged to attend. \n🗓 Monday\, March 23rd⏰ 8:00 pm ET \nAvailable to members of the LGS Foundation Online Caregiver Support Community.Join for access details: www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregivers-of-adults-with-lgs-march-support-group/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260319T200000
DTEND;TZID=America/New_York:20260319T210000
DTSTAMP:20260624T055754
CREATED:20260105T201615Z
LAST-MODIFIED:20260105T201615Z
UID:10000262-1773950400-1773954000@www.lgsfoundation.org
SUMMARY:LGS Grupo de Esperanza (Spanish Support Group)
DESCRIPTION:Acompáñenos en marzo para el Grupo de Esperanza de LGS\, un encuentro mensual en español creado para apoyar\, animar y conectar a familias afectadas por el síndrome de Lennox-Gastaut. \nFacilitado por Bertha Guillen\, Michele Torres\, y Kelly Arrango\, este grupo ofrece un espacio compasivo donde podemos compartir libremente\, escuchar sin juicios y encontrar fortaleza unos en otros. \nYa sea que esté buscando apoyo\, conexión o simplemente un lugar donde sentirse comprendido\, este espacio es para usted. \nHay esperanza. Hay comunidad. Nadie camina solo. \nEste grupo mensual está disponible para familias con LGS que forman parte de la Comunidad de Apoyo para Cuidadores de la Fundación LGS.Para unirse y obtener la información de acceso\, visite:👉 www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/lgs-grupo-de-esperanza-spanish-support-group-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260317T200000
DTEND;TZID=America/New_York:20260317T210000
DTSTAMP:20260624T055754
CREATED:20260105T180342Z
LAST-MODIFIED:20260105T180724Z
UID:10000259-1773777600-1773781200@www.lgsfoundation.org
SUMMARY:Dad to Dad - March Support Group Meeting
DESCRIPTION:Join us Tuesday\, March 17th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-march-support-group-meeing/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260310T200000
DTEND;TZID=America/New_York:20260310T210000
DTSTAMP:20260624T055754
CREATED:20260105T165508Z
LAST-MODIFIED:20260127T000951Z
UID:10000256-1773172800-1773176400@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - March Support Group Meeting
DESCRIPTION:Join us on Tuesday\, March 10th at 8 pm ET.\nTopic: Community Connections Make Us Stronger \n\n\nCaregiving for someone with LGS can feel isolating\, but we’re not meant to do this alone.\nJoin us for this support group conversation as we explore simple\, meaningful strategies to stay connected with our caregiver community\, strengthen relationships\, and support one another along the way. Learn more about our upcoming Family & Professional Conference and how you can join us in July. Together\, we’re stronger.\n\n\n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-march-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260223T200000
DTEND;TZID=America/New_York:20260223T210000
DTSTAMP:20260624T055754
CREATED:20260105T212156Z
LAST-MODIFIED:20260105T212328Z
UID:10000264-1771876800-1771880400@www.lgsfoundation.org
SUMMARY:Caregivers of Adults with LGS – February Support Group
DESCRIPTION:Connection matters—especially on the hardest days. \nThis monthly support group brings together caregivers of adults with Lennox-Gastaut Syndrome for open conversation\, shared insight\, and encouragement. As caregiving needs change over time\, this space offers reassurance that you are not alone. \nHosted by adult LGS caregivers Geraldine and Elizabeth.Caregivers of adolescents preparing for adulthood are welcome. \n🗓 Monday\, February 23rd ⏰ 8:00 pm ET \nAvailable to members of the LGS Foundation Online Caregiver Support Community.Join for access details: www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregivers-of-adults-with-lgs-february-support-group/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260219T200000
DTEND;TZID=America/New_York:20260219T210000
DTSTAMP:20260624T055754
CREATED:20260105T200917Z
LAST-MODIFIED:20260105T200917Z
UID:10000261-1771531200-1771534800@www.lgsfoundation.org
SUMMARY:LGS Grupo de Esperanza (Spanish Support Group)
DESCRIPTION:El Grupo de Esperanza de LGS es un espacio de apoyo\, escucha y conexión para familias que viven con el síndrome de Lennox-Gastaut. \nCada mes\, las cuidadoras Bertha Guillen\, Michele Torres\, y Kelly Arrango nos guían en conversaciones significativas donde compartimos experiencias\, desafíos y momentos de fortaleza—en comunidad y en español. \nEste es un lugar para sentirse acompañado\, comprendido y apoyado. No importa dónde se encuentre en su camino con LGS\, aquí es bienvenido. \nNadie debería caminar este camino solo. Juntos somos más fuertes. \nDisponible para familias con LGS que son miembros de la Comunidad de Apoyo para Cuidadores de la Fundación LGS.Únase a nuestra comunidad en línea para recibir la información de acceso:👉 www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/lgs-grupo-de-esperanza-spanish-support-group-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260217T200000
DTEND;TZID=America/New_York:20260217T210000
DTSTAMP:20260624T055754
CREATED:20260105T173005Z
LAST-MODIFIED:20260105T173525Z
UID:10000258-1771358400-1771362000@www.lgsfoundation.org
SUMMARY:Dad to Dad - February Support Group Meeting
DESCRIPTION:Join us Tuesday\, February 17th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-february-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260210T200000
DTEND;TZID=America/New_York:20260210T210000
DTSTAMP:20260624T055754
CREATED:20260105T165051Z
LAST-MODIFIED:20260105T165051Z
UID:10000255-1770753600-1770757200@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. - February Support Group Meeting
DESCRIPTION:Join us on Tuesday\, February 10th at 8 pm ET.\nTopic: How Do You Keep Track of EVERYTHING?\n\nSeizure Action Plan Awareness Week is every February. Join this month’s support group and share how you track the seizures\, behaviors\, sleep patterns\, medications\, and everything else. You may give & receive some great tips from your fellow caregivers. \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-february-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260126T200000
DTEND;TZID=America/New_York:20260126T210000
DTSTAMP:20260624T055754
CREATED:20260105T211702Z
LAST-MODIFIED:20260105T211853Z
UID:10000263-1769457600-1769461200@www.lgsfoundation.org
SUMMARY:Caregivers of Adults with LGS – January Support Group
DESCRIPTION:A new year doesn’t mean starting over—it means continuing forward\, together. \nJoin parents and caregivers of adults with Lennox-Gastaut Syndrome for a supportive space to connect\, share experiences\, and feel understood. Caring for an adult with LGS brings evolving challenges\, and this group offers community from those who truly get it. \nHosted by adult LGS caregivers Geraldine and Elizabeth.Caregivers of adolescents approaching adulthood are also welcome. \n🗓 Monday\, January 26th ⏰ 8:00 pm ET \nAvailable to members of the LGS Foundation Online Caregiver Support Community.Join for access details: www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregivers-of-adults-with-lgs-january-support-group/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgsfoundation.org/wp-content/uploads/2022/05/Copy-of-Support-Group-MeetUps.jpg
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260120T200000
DTEND;TZID=America/New_York:20260120T210000
DTSTAMP:20260624T055754
CREATED:20260105T170659Z
LAST-MODIFIED:20260105T171100Z
UID:10000257-1768939200-1768942800@www.lgsfoundation.org
SUMMARY:Dad to Dad - January Support Group
DESCRIPTION:Join us Tuesday\, January 20th at 8 pm ET\nHosted by dads\, for dads.\nJoin our exclusive support group for male caregivers and Dads as we talk\, share\, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you! \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/dad-to-dad-january-support-group/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Dad-to-Dad.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260115T200000
DTEND;TZID=America/New_York:20260115T210000
DTSTAMP:20260624T055754
CREATED:20260105T200458Z
LAST-MODIFIED:20260105T200458Z
UID:10000260-1768507200-1768510800@www.lgsfoundation.org
SUMMARY:LGS Grupo de Esperanza (Spanish Support Group)
DESCRIPTION:Únase a nosotros este mes para el Grupo de Esperanza de LGS\, un espacio seguro y acogedor para reunirnos virtualmente\, compartir nuestras historias y apoyarnos mutuamente. \nEste grupo mensual en español está facilitado por las cuidadoras Bertha Guillen\, Michele Torres\, y Kelly Arrango\, quienes acompañan a las familias mientras navegamos juntas el camino del síndrome de Lennox-Gastaut (LGS). \nAquí encontrará conexión\, comprensión y ánimo—ya sea que esté comenzando su recorrido con LGS o que tenga muchos años de experiencia. Nadie debería caminar este camino solo. \nJuntos somos más fuertes. Hay esperanza para nuestros niños. \nEste grupo está disponible para familias con LGS que forman parte de la Comunidad de Apoyo para Cuidadores de la Fundación LGS.Para unirse a nuestra comunidad en línea y recibir la información de acceso\, visite:👉 www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/lgs-grupo-de-esperanza-spanish-support-group/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260113T200000
DTEND;TZID=America/New_York:20260113T210000
DTSTAMP:20260624T055754
CREATED:20260105T161434Z
LAST-MODIFIED:20260105T161733Z
UID:10000254-1768334400-1768338000@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. January Support Group Meeting
DESCRIPTION:Join us on Tuesday\, January 13th at 8 pm ET.\nTopic: Setting Achievable Goals! It’s all about finding BALANCE! \n\nAs we look ahead to 2026\, it’s a great time to reflect and set intentions. What is one personal goal you hope to achieve in the coming year that will help you better balance caring for your loved one with caring for yourself? \n\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-january-support-group-meeting-3/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260106T190000
DTEND;TZID=America/New_York:20260106T203000
DTSTAMP:20260624T055754
CREATED:20250818T150839Z
LAST-MODIFIED:20250820T163655Z
UID:10000238-1767726000-1767731400@www.lgsfoundation.org
SUMMARY:New Family Orientation Meeting
DESCRIPTION:New Family Orientation Meeting\nDate: Tuesday\, January 6th\, 2026Time: 7:00 – 8:30 PM ESTLocation: Virtual (Zoom) \nAre you new to the Lennox-Gastaut Syndrome (LGS) community? Whether you’ve just received a diagnosis or are new to the LGS Foundation\, this meeting is designed to welcome and support you. \n\nWhat to Expect\n\nLearn about the LGS Foundation’s mission and meet our team (many of whom are caregivers too)\nExplore the LGS Foundation website and resources.\nDiscover how to participate in the Learn from Every Patient Database to help advance science.\nFind out about family-focused programs\, including the 2026 International Family & Professional Conference.\nAccess helpful toolkits and resources created for families navigating the LGS journey.\nConnect with other caregivers in a safe\, supportive group chat.\n\nWhy Attend?\nThis orientation is a chance to learn\, ask questions\, and meet others who understand the challenges of caring for someone with LGS. You’ll walk away with resources\, connections\, and a sense of community. \n👉 RSVP today to reserve your spot!
URL:https://www.lgsfoundation.org/event/5070/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2025/08/Copy-of-Invitation-to-New-Family-Orientation-email-header-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251218T200000
DTEND;TZID=America/New_York:20251218T210000
DTSTAMP:20260624T055754
CREATED:20250925T191541Z
LAST-MODIFIED:20250925T191541Z
UID:10000248-1766088000-1766091600@www.lgsfoundation.org
SUMMARY:Grupo de Esperanza LGS – Reunión del Grupo de Apoyo de Diciembre
DESCRIPTION:Únase a nosotros el jueves 18 de diciembre a las 8 pm ET\nNadie debería caminar solo en este sendero\nEl grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias. \nÚnase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos\, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS. \nJuntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos\, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños! \n\nEste grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS. \nPara unirse a nuestra comunidad en línea y obtener información de inicio de sesión\, visite nuestro grupo en www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-lgs-reunion-del-grupo-de-apoyo-de-diciembre/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251216T200000
DTEND;TZID=America/New_York:20251216T210000
DTSTAMP:20260624T055754
CREATED:20250925T180327Z
LAST-MODIFIED:20251124T200921Z
UID:10000242-1765915200-1765918800@www.lgsfoundation.org
SUMMARY:Standing Together. Stronger Together. – December Support Group Meeting
DESCRIPTION:Join us on Tuesday\, December 16th at 8 pm ET.\nTopic: 2025\, The Year That Was\nLet’s look back on the past year. How has 2025 treated you and your family? Personally? Professionally? Come join our group as we reflect on the highs and lows\, and bid farewell to 2025.\n\nThis monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/standing-together-stronger-together-december-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2023/01/2023-Header-Copy-of-Support-Groups-2.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251124T200000
DTEND;TZID=America/New_York:20251124T210000
DTSTAMP:20260624T055754
CREATED:20250925T192337Z
LAST-MODIFIED:20250925T192450Z
UID:10000250-1764014400-1764018000@www.lgsfoundation.org
SUMMARY:Caregiver of Adults with LGS – November Support Group Meeting
DESCRIPTION:Join us Monday\, November 24th at 8 pm ET\nLiving with LGS is a marathon\, not a sprint.\nCaring for an adult with LGS can be every bit as demanding as caring for a child with LGS\, and the need for support is great.  Not only do the needs of the individual with LGS change in adulthood\, but\, so\, too\, do the needs of aging caregivers.  We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.) \nAdult caregivers\, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome. \n\nThis monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community. \nTo join our online community and for login information\, please visit our group at www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/caregiver-of-adults-with-lgs-november-support-group-meeting-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/Caregiver-of-Adults-with-LGS-.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251120T200000
DTEND;TZID=America/New_York:20251120T210000
DTSTAMP:20260624T055754
CREATED:20251117T202949Z
LAST-MODIFIED:20251117T202949Z
UID:10000252-1763668800-1763672400@www.lgsfoundation.org
SUMMARY:Grupo de Esperanza LGS – Reunión del Grupo de Apoyo de Noviembre
DESCRIPTION:Únase a nosotros el jueves 20 de noviembre a las 8pm ET\nNadie debería caminar solo en este sendero\nEl grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias. \nÚnase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos\, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS. \nJuntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos\, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para \n\nEste grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS. \nPara unirse a nuestra comunidad en línea y obtener información de inicio de sesión\, visite nuestro grupo en www.facebook.com/groups/lgsfoundation
URL:https://www.lgsfoundation.org/event/grupo-de-esperanza-lgs-reunion-del-grupo-de-apoyo-de-noviembre-2/
LOCATION:Virtual
ATTACH;FMTTYPE=image/png:https://www.lgsfoundation.org/wp-content/uploads/2024/12/LGS-Grupo-de-Esperanza-8.png
ORGANIZER;CN="LGS Foundation Family Support":MAILTO:FamilySupport@LGSFoundation.org
END:VEVENT
END:VCALENDAR