The Door's Open
A few years ago, we were nearing the 20 year mark of Lennox-Gastaut Syndrome. Essentially, we were at the point where things were just "standing still" in the ongoing quest to find relief from seizures and a happier place for our son, Aaron. Of course, things standing still are better than things getting worse, although “no change” also means no improvement. It was pretty depressing every time a doctor ran out of things to try or when they seemed to give up. In this leg of the journey, we were on our fourth neurologist. Each one so far was at the top of their field and the chief of their institution, yet they would run out of ideas. It felt like standing in a hallway with many doors, all of which were shut and locked.
Facebook was just taking root in my life and I made a new connection with the LGS Foundation and became part of their