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Our Sibs Rock 

LGS siblings are nothing short of heroic. Many of them have made sacrifices in order to take second place to their brother or sister with LGS. They’ve missed important events such as parties, sports games, family vacations, and so many more because of a sudden seizure that nobody could’ve predicted.

Some struggle with anxiety and fear of the future while others have been inspired by their LGS experiences to help others. 

They’re all unique and their response to LGS is as well. But one thing is certain, they don’t get enough attention and love for all that they’ve given so let’s change that. 

 
VIP siblings are siblings who have a brother or sister with a rare epilepsy. They are often unselfish, dedicated, and demonstrate an amazing ability to see beyond the challenges, exhibiting understanding and compassion beyond their years.

The VIP Sibling Collaboration Team has developed three special kits just for rare epilepsy families based on research, expertise, and lots of community input, including from VIP siblings.
Check out the kits that interest you below and order them by mail or download them today.

 

Parents & Caregivers Kit
 

The Parents & Caregivers Kit was created based on research, guidance, and inspiration from patient organizations in the rare epilepsy community and from HCP and mental health experts specializing in rare seizure disorders. We hope it can offer support and resources for families who are impacted by rare epilepsies. Here’s a peek at what’s included in this kit-by-mail.

  • Guide

  • Love Notes

  • My Family Is Living with a Rare Epilepsy Form 

  • VIP Sibling Seizure Plan Form 

VIP Sibling Kit 
Ages 4-10

Learning about a rare epilepsy isn’t easy for younger siblings. When their brother or sister has a seizure or other emergency, they may feel a little scared or worried. This special VIP Sibling Kit was created to assure them having different emotions is okay and helps celebrate how important and loved they are. Here’s a peek at what’s included in this kit-by-mail.

  • My Sibling Is Special Book 

  • Coloring Journal

  • Mood Stickers

  • Rockin' it / Rough Day Wristband

  • Plush Star

VIP Sibling Kit 
Ages 11-18

Your older VIP siblings may feel like nobody else their age has to cope with the kinds of challenges they do having a brother or sister with a rare epilepsy. Designed to reassure your VIP sibling that their thoughts and feelings are normal, this special VIP Sibling Kit also provides encouragement and insight from other rare epilepsy siblings. Here’s a peek at what’s included in this kit-by-mail.

  • Journal 

  • Rockin' it / Rough Day Wristband 

  • Door Hanger

Sibling Spotlight 
Tenley age 10 

If I could tell another special needs sibling one thing, it would be to enjoy every moment you have with your special sibling.

Bennett age 6

Coming Soon 

Want to nominate a Sibling to Spotlight? Email the LGSF for more information. 
This program is proudly sponsored by:
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VIP Caregiver & Siblings Kits made possible by collaboration with: 
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The information collected by LGS Foundation will not be sold or distributed outside of the LGSF and is used solely to verify the identity of and to communicate with Sibling member families as needed. Questions or concerns can be directed to our team.