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ANNUAL LENNOX-GASTAUT SYNDROME AWARENESS DAY TO KICK OFF EPILEPSY AWARENESS MONTH 

 

(Nashville, TN - November 1, 2015) Today is the annual worldwide observance of Lennox- Gastaut Syndrome (LGS), a rare and catastrophic form of epilepsy. International LGS Awareness Day takes place every year on November 1st and kicks off Epilepsy Awareness Month, which takes place during the entire month of November.  The LGS Foundation’s signature awareness event is being held today at the Nashville Zoo; the family-friendly event will feature a variety of activities and live music as the community celebrates the Foundation’s progress in research, programs, and education. Additionally, awards will be given to this year’s “Leaders in LGS”.

 

“Lennox-Gastaut Syndrome is rare and debilitating, so initiatives that increase public awareness are extremely important,” explains LGS Foundation’s President, Christina SanInocencio. “Today, we honor three “Leaders in LGS”, all whom have contributed to raising awareness in the Lennox-Gastaut Syndrome Community;  Amanda Parvis of Milford, CT, Sara Todd of Cedar Rapids, IA, and Omar Soto of Mexico City, Mexico are this year’s awardees”.

 

In addition to today’s event in Nashville, there are dozens of other events and educational conferences being held around the world. Family conferences on LGS have been organized by the LGS Foundation’s partner organizations in Bologna, Italy and Mexico City this week, and the LGS Foundation launched the website lgsfoundation.org.uk, their first “virtual chapter” of the LGSF in the United Kingdom. A variety of public monuments and parks in the USA including Niagara Falls and the Saint Louis Science Center have been “Illuminated for LGS” in the LGS awareness colors of green and purple. Greg Stanton, the Mayor of Phoenix, AZ has officially proclaimed November 1st as International LGS Awareness Day.  Additionally, advocates from around the globe have organized local fundraisers or have created personal awareness campaigns to help raise funds for the LGS Foundation.  International LGS Awareness Day Event has been graciously sponsored by Eisai Inc. and Lundbeck.

 

About Lennox-Gastaut Syndrome

Lennox-Gastaut Syndrome is a rare and severe form of childhood-onset epilepsy. The syndrome is usually diagnosed before the age of 8 years old and is characterized by frequent, uncontrolled seizures, multiple seizure types, a resistance to medication and/or therapies, and intellectual disability. In the United States, it is estimated that less than 50,000 people are affected.

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